# Support **URL:** https://forum.livingwitheagle.org/c/support/23.md [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) --- ## [Suicide Hotline Numbers](https://forum.livingwitheagle.org/t/suicide-hotline-numbers/686)
**Author:** [@Ben\_Munoz](https://forum.livingwitheagle.org/u/Ben_Munoz)\ **Replies:** 6\ **Last updated:** [May 27, 2026, 7:09pm UTC](https://forum.livingwitheagle.org/t/suicide-hotline-numbers/686 "2026-05-27T19:09:44Z")
USA : 1800-■■■■■■■■ ; 1800-■■■■■■■■ ; 1800-■■■■■■■■ Argentina : 54-0223-■■■■■■■■ Austria : 01-■■■■■■■■ Australia Lifeline Crisis: 13 11 14 24-hours Australian Kids Helpline Crisis: 1-800-55-1800 24-hours Australian Su… --- ## [About the Support category](https://forum.livingwitheagle.org/t/about-the-support-category/1828)
**Author:** [@Mod\_support](https://forum.livingwitheagle.org/u/Mod_support)\ **Replies:** 0
Feeling down because of the Eagle Syndrome? Need to rant? This is the place to get help. Let it rip, we are here to listen about your Eagle Syndrome stories. --- ## [Best pillow wedge](https://forum.livingwitheagle.org/t/best-pillow-wedge/24115)
**Author:** [@Wafer16](https://forum.livingwitheagle.org/u/Wafer16)\ **Replies:** 1\ **Last updated:** [August 25, 2026, 1:18pm UTC](https://forum.livingwitheagle.org/t/best-pillow-wedge/24115 "2026-08-25T13:18:41Z")
Anyone found the perfect pillow wedge to sleep more upright? I’ve been sleeping flat with a cervical pillow and I am being woken up with horrific head pressure which is killing my sleep. Suggestions? --- ## [How many ppl with ES had surgery, and stylods grew back?](https://forum.livingwitheagle.org/t/how-many-ppl-with-es-had-surgery-and-stylods-grew-back/5290)
**Author:** [@Nanners](https://forum.livingwitheagle.org/u/Nanners)\ **Replies:** 28\ **Last updated:** [June 24, 2026, 8:18pm UTC](https://forum.livingwitheagle.org/t/how-many-ppl-with-es-had-surgery-and-stylods-grew-back/5290 "2026-06-24T20:18:31Z")
I had surgery on my left side 4 yrs ago, and after a couple of weeks I felt great! I thought ES was behind me! Well, lately I’ve been getting the same symptoms as before again on my left side. I don’t have the mental str… --- ## [7 days post styloidectomy and C1 shave surgery - vision worse and whooshing hasn't gone away](https://forum.livingwitheagle.org/t/7-days-post-styloidectomy-and-c1-shave-surgery-vision-worse-and-whooshing-hasnt-gone-away/18456)
**Author:** [@stingray](https://forum.livingwitheagle.org/u/stingray)\ **Replies:** 15\ **Last updated:** [June 9, 2026, 1:39pm UTC](https://forum.livingwitheagle.org/t/7-days-post-styloidectomy-and-c1-shave-surgery-vision-worse-and-whooshing-hasnt-gone-away/18456 "2026-06-09T13:39:08Z")
Hi everyone! I had right sided jugular decompression surgery 7 days ago now. They removed my styloid ligament, did a c1 shave and fascia and digastric muscle release. The positives: I have little to no brain fog It do… --- ## [Mixed TOS + possible styloid/C1 vascular compression?](https://forum.livingwitheagle.org/t/mixed-tos-possible-styloid-c1-vascular-compression/22981)
**Author:** [@Emoprince](https://forum.livingwitheagle.org/u/Emoprince)\ **Replies:** 16\ **Last updated:** [May 11, 2026, 11:08pm UTC](https://forum.livingwitheagle.org/t/mixed-tos-possible-styloid-c1-vascular-compression/22981 "2026-05-11T23:08:40Z")
Hi everyone, Thank you again for the warm welcome and for all the helpful information already shared here. I hope it’s okay if I attach a few anonymized screenshots from my exam, just to give some context to my question… --- ## [Dismissed by ENT and feeling dejected](https://forum.livingwitheagle.org/t/dismissed-by-ent-and-feeling-dejected/9168)
**Author:** [@Flatterfeet](https://forum.livingwitheagle.org/u/Flatterfeet)\ **Replies:** 16\ **Last updated:** [March 25, 2026, 1:42am UTC](https://forum.livingwitheagle.org/t/dismissed-by-ent-and-feeling-dejected/9168 "2026-03-25T01:42:46Z")
Two weeks ago my dentist diagnosed me with ES after looking at my panoramic x rays…I spoke with my primary care doc, and he gave me a referral for an ENT. I regret not thinking to have my x rays sent to her office, but … --- ## [Dental X-ray - is it eagles?](https://forum.livingwitheagle.org/t/dental-x-ray-is-it-eagles/22300)
**Author:** [@Emmaann](https://forum.livingwitheagle.org/u/Emmaann)\ **Replies:** 23\ **Last updated:** [March 10, 2026, 11:32pm UTC](https://forum.livingwitheagle.org/t/dental-x-ray-is-it-eagles/22300 "2026-03-10T23:32:02Z")
I have been waiting for a diagnosis and slowly losing my mind for 20 years now. I got my tonsils out at 19 and a few months after, started to experience symptoms of ES. I just recently found out about it during one my tr… --- ## [How do I make it?](https://forum.livingwitheagle.org/t/how-do-i-make-it/20280)
**Author:** [@Ifrit](https://forum.livingwitheagle.org/u/Ifrit)\ **Replies:** 59\ **Last updated:** [March 6, 2026, 2:01pm UTC](https://forum.livingwitheagle.org/t/how-do-i-make-it/20280 "2026-03-06T14:01:09Z")
Ten months since I became debilitated by my symptoms, seven months since I first started trying to get help for potential Eagle Syndrome, I finally have all the necessary scans either completed or scheduled and a follow-… --- ## [Feels like 1 step forward, 2 steps back](https://forum.livingwitheagle.org/t/feels-like-1-step-forward-2-steps-back/22044)
**Author:** [@lsheep](https://forum.livingwitheagle.org/u/lsheep)\ **Replies:** 11\ **Last updated:** [February 3, 2026, 7:11pm UTC](https://forum.livingwitheagle.org/t/feels-like-1-step-forward-2-steps-back/22044 "2026-02-03T19:11:23Z")
Hi All, Today I had an appointment with the ENT speciality surgeon who is local to me. Encouraging things about this appointment: the surgeon I saw has done and actually super interested in Eagles & treating Eagles a… --- ## [Up in Denver again - Surgery for second side on Monday 2/12/'24](https://forum.livingwitheagle.org/t/up-in-denver-again-surgery-for-second-side-on-monday-2-12-24/15372)
**Author:** [@TheDude](https://forum.livingwitheagle.org/u/TheDude)\ **Replies:** 14\ **Last updated:** [January 27, 2026, 1:40pm UTC](https://forum.livingwitheagle.org/t/up-in-denver-again-surgery-for-second-side-on-monday-2-12-24/15372 "2026-01-27T13:40:33Z")
Hi friends, first of all I’d like to apologize for being quiet here in the last time. I tried to follow as good as possible and my thoughts had been at the one or the other of you although I wasn’t able to write. I’m so… --- ## [3 Weeks Post External Surgery - Hits & Misses](https://forum.livingwitheagle.org/t/3-weeks-post-external-surgery-hits-misses/6103)
**Author:** [@Angelmum](https://forum.livingwitheagle.org/u/Angelmum)\ **Replies:** 19\ **Last updated:** [January 18, 2026, 2:38pm UTC](https://forum.livingwitheagle.org/t/3-weeks-post-external-surgery-hits-misses/6103 "2026-01-18T14:38:41Z")
Looking for some guidance from the ES community with more experience in this area. I had surgery 3 weeks ago which I understood was to remove the stylo-hyoid ligament and as much of elongated styloid process as possible… --- ## [7 weeks post op](https://forum.livingwitheagle.org/t/7-weeks-post-op/6586)
**Author:** [@Lacy](https://forum.livingwitheagle.org/u/Lacy)\ **Replies:** 5\ **Last updated:** [January 17, 2026, 5:06pm UTC](https://forum.livingwitheagle.org/t/7-weeks-post-op/6586 "2026-01-17T17:06:36Z")
I am 7 weeks post op external left styloid and stylohyoid ligament removal. I was doing really well right after surgery. Saw dramatic improvement in so many symptoms. Most had gone away completely. After a couple weeks s… --- ## [Immense pain and still feeling symptoms 6 weeks post surgery](https://forum.livingwitheagle.org/t/immense-pain-and-still-feeling-symptoms-6-weeks-post-surgery/9682)
**Author:** [@Rogi](https://forum.livingwitheagle.org/u/Rogi)\ **Replies:** 9\ **Last updated:** [January 16, 2026, 5:29pm UTC](https://forum.livingwitheagle.org/t/immense-pain-and-still-feeling-symptoms-6-weeks-post-surgery/9682 "2026-01-16T17:29:09Z")
Hey everyone, I’m new here. Its my first post. I’m 26 years old. I will try to explain myself and be as short as I can be. More than two years ago (April 2019) I started to feel an odd pain in my left side of the neck… --- ## [Post op 3 weeks intraoral, not sure if it worked](https://forum.livingwitheagle.org/t/post-op-3-weeks-intraoral-not-sure-if-it-worked/21819)
**Author:** [@alibabac](https://forum.livingwitheagle.org/u/alibabac)\ **Replies:** 1\ **Last updated:** [January 7, 2026, 3:45pm UTC](https://forum.livingwitheagle.org/t/post-op-3-weeks-intraoral-not-sure-if-it-worked/21819 "2026-01-07T15:45:40Z")
Hello, Right styloidectomy intraoral done 3 weeks ago. The doc shortened it from 4.5 to 3cm and removed the ligament. I still have morning nausea to some extent and trap, shoulder, arm, hand pain that comes and goes wit… --- ## [Terrible pain days](https://forum.livingwitheagle.org/t/terrible-pain-days/20835)
**Author:** [@Minh2025](https://forum.livingwitheagle.org/u/Minh2025)\ **Replies:** 24\ **Last updated:** [November 7, 2025, 3:26am UTC](https://forum.livingwitheagle.org/t/terrible-pain-days/20835 "2025-11-07T03:26:55Z")
I don’t wanna wear anybody out on this thread.. but my pain has increased so much it’s been an especially terrible week… I had to take anti-nausea today because I was going to throw up from the pain.. I have a neurologis… --- ## [Which muscles get impacted in the C1 shave for jugular vein decompression?](https://forum.livingwitheagle.org/t/which-muscles-get-impacted-in-the-c1-shave-for-jugular-vein-decompression/14784)
**Author:** [@Kay0531](https://forum.livingwitheagle.org/u/Kay0531)\ **Replies:** 15\ **Last updated:** [November 2, 2025, 4:33am UTC](https://forum.livingwitheagle.org/t/which-muscles-get-impacted-in-the-c1-shave-for-jugular-vein-decompression/14784 "2025-11-02T04:33:13Z")
Which muscles get impacted in the C1 shave for jugular vein decompression? Curios to know due to CCI and upcoming surgery. Thanks! --- ## [Appreciate prayer - hard to keep fighting this battle but not giving up](https://forum.livingwitheagle.org/t/appreciate-prayer-hard-to-keep-fighting-this-battle-but-not-giving-up/20686)
**Author:** [@KarenG](https://forum.livingwitheagle.org/u/KarenG)\ **Replies:** 20\ **Last updated:** [October 17, 2025, 1:40am UTC](https://forum.livingwitheagle.org/t/appreciate-prayer-hard-to-keep-fighting-this-battle-but-not-giving-up/20686 "2025-10-17T01:40:05Z")
Hello, still waiting for a call (3 months) from Dr. Fargen for a diagnosis for my adult non-verbal autistic son, Ben. Today I requested a virtual call from Dr. Lee Pride radiologist in TX to try to get an official diagno… --- ## [Surgery Friday 8/22 Dr Lentsch intra oral](https://forum.livingwitheagle.org/t/surgery-friday-8-22-dr-lentsch-intra-oral/20179)
**Author:** [@annaleighm](https://forum.livingwitheagle.org/u/annaleighm)\ **Replies:** 14\ **Last updated:** [October 13, 2025, 1:43am UTC](https://forum.livingwitheagle.org/t/surgery-friday-8-22-dr-lentsch-intra-oral/20179 "2025-10-13T01:43:04Z")
Good evening everyone! I live in the Charleston area and am scheduled for bi-lateral intra oral with Dr. Lentsch on Friday. I am extremely nervous. Can anyone share their experience with having both removed at the same t… --- ## [Surgery Tomorrow - Prayers Appreciated!](https://forum.livingwitheagle.org/t/surgery-tomorrow-prayers-appreciated/19048)
**Author:** [@Ritaweagle](https://forum.livingwitheagle.org/u/Ritaweagle)\ **Replies:** 18\ **Last updated:** [October 13, 2025, 1:41am UTC](https://forum.livingwitheagle.org/t/surgery-tomorrow-prayers-appreciated/19048 "2025-10-13T01:41:16Z")
I’m excited that I found a compassionate and caring doctor in Chicago! I will have a styloidectomy tomorrow morning! The surgeon will perform a transcervixal procedure and it should last around two hours. Not sure what t… --- ## [Need a doctor who knows what it is](https://forum.livingwitheagle.org/t/need-a-doctor-who-knows-what-it-is/20256)
**Author:** [@Kristak](https://forum.livingwitheagle.org/u/Kristak)\ **Replies:** 5\ **Last updated:** [August 26, 2025, 8:38pm UTC](https://forum.livingwitheagle.org/t/need-a-doctor-who-knows-what-it-is/20256 "2025-08-26T20:38:10Z")
Hi there. I need some support. I feel like I am never going to find any help. I was diagnosed last february with eagle syndrome. My left styloid process is at a strange angle, and was protruding through the tissue in… --- ## [5 days past styloidectomy](https://forum.livingwitheagle.org/t/5-days-past-styloidectomy/2253)
**Author:** [@Emery](https://forum.livingwitheagle.org/u/Emery)\ **Replies:** 15\ **Last updated:** [August 25, 2025, 9:01pm UTC](https://forum.livingwitheagle.org/t/5-days-past-styloidectomy/2253 "2025-08-25T21:01:49Z")
Hi there everyone, I posed something somewhere , hummm not sure how to work this site. Anyway 5 days past surgery doing well, some swelling and chewing issues, not bad . I had an awesome surgical crew at THE VICTORIA… --- ## [Surgery Next Week With Dr. Osborne](https://forum.livingwitheagle.org/t/surgery-next-week-with-dr-osborne/20091)
**Author:** [@wade](https://forum.livingwitheagle.org/u/wade)\ **Replies:** 2\ **Last updated:** [August 13, 2025, 2:56pm UTC](https://forum.livingwitheagle.org/t/surgery-next-week-with-dr-osborne/20091 "2025-08-13T14:56:44Z")
Greetings Friends, I have surgery scheduled next week with Dr. Osborne. The first surgery is scheduled for August 20th and then doing the second side on the 22nd. I’m pretty nervous as you might expect. On days when my … --- ## [Associated Disease](https://forum.livingwitheagle.org/t/associated-disease/7102)
**Author:** [@painintheneck1](https://forum.livingwitheagle.org/u/painintheneck1)\ **Replies:** 17\ **Last updated:** [August 3, 2025, 4:33pm UTC](https://forum.livingwitheagle.org/t/associated-disease/7102 "2025-08-03T16:33:27Z")
So I recently was diagnosed with vertigo and have been receiving physical therapy to reposition my loose crystals. Many of my initial symptoms resembled the symptoms of Eagle Syndrome prior to my surgery years ago. I ass… --- ## [Surgery Tuesday Aug 5th](https://forum.livingwitheagle.org/t/surgery-tuesday-aug-5th/19975)
**Author:** [@Hopefulhermit](https://forum.livingwitheagle.org/u/Hopefulhermit)\ **Replies:** 5\ **Last updated:** [August 3, 2025, 3:47pm UTC](https://forum.livingwitheagle.org/t/surgery-tuesday-aug-5th/19975 "2025-08-03T15:47:47Z")
Hi Everyone, I am scheduled for styloid resection this Tuesday Aug 5th for the right side and Aug 12th for the left side with Dr. Osborne. I had consults with Osborne and Hepworth, and although Hepworth maintains that s… --- ## [Post op supplies?](https://forum.livingwitheagle.org/t/post-op-supplies/19530)
**Author:** [@Deemarie](https://forum.livingwitheagle.org/u/Deemarie)\ **Replies:** 10\ **Last updated:** [June 23, 2025, 3:52am UTC](https://forum.livingwitheagle.org/t/post-op-supplies/19530 "2025-06-23T03:52:33Z")
So i have tried to search to find maybe a list of important things after surgery to have and im not really finding post on it. If someone knows of one please let me know… but i will be traveling out of state for surgery … --- ## [Autism and Eagles man it’s freezing in here freezing when you say oh yeah](https://forum.livingwitheagle.org/t/autism-and-eagles-man-it-s-freezing-in-here-freezing-when-you-say-oh-yeah/19399)
**Author:** [@KarenG](https://forum.livingwitheagle.org/u/KarenG)\ **Replies:** 5\ **Last updated:** [June 11, 2025, 1:09am UTC](https://forum.livingwitheagle.org/t/autism-and-eagles-man-it-s-freezing-in-here-freezing-when-you-say-oh-yeah/19399 "2025-06-11T01:09:28Z")
We are at the hospital with our non verbal son being gaslighted again. Blaming autism for his behaviors instead of pain. They are totally ignoring his elongated styloids to be the cause of his symptoms. I have very littl… --- ## [Upcoming styloid surgery](https://forum.livingwitheagle.org/t/upcoming-styloid-surgery/12848)
**Author:** [@karen1](https://forum.livingwitheagle.org/u/karen1)\ **Replies:** 17\ **Last updated:** [June 3, 2025, 8:47pm UTC](https://forum.livingwitheagle.org/t/upcoming-styloid-surgery/12848 "2025-06-03T20:47:56Z")
Hi all. I am a little leery of posting. I find the posts quite helpful to read but I am a bit nervous to post. Partially because I am a bit shy and partially because this makes my upcoming surgery a reality. I am simulta… --- ## [Intro Post - Feeling Defeated/Down](https://forum.livingwitheagle.org/t/intro-post-feeling-defeated-down/18733)
**Author:** [@Astaria](https://forum.livingwitheagle.org/u/Astaria)\ **Replies:** 27\ **Last updated:** [April 14, 2025, 11:32am UTC](https://forum.livingwitheagle.org/t/intro-post-feeling-defeated-down/18733 "2025-04-14T11:32:59Z")
Hello all. I’ve been reading a lot of posts and info. This is a great forum. Today has been especially rough…symptom wise. Feel like I could use some support. I have yet to be diagnosed with anything having to do with m… --- ## [Managing the Day to Day](https://forum.livingwitheagle.org/t/managing-the-day-to-day/18803)
**Author:** [@Kit\_Cat](https://forum.livingwitheagle.org/u/Kit_Cat)\ **Replies:** 12\ **Last updated:** [April 12, 2025, 10:15pm UTC](https://forum.livingwitheagle.org/t/managing-the-day-to-day/18803 "2025-04-12T22:15:01Z")
Hi all, I’m just wondering if y’all have tips on how to manage the day to day while (hopefully) waiting for surgery? I recently started Brilinta and am hoping that will help. For those who are working, parents, pet-par… [Next page](https://forum.livingwitheagle.org/c/support/23.md?page=1)