# Welcome **URL:** https://forum.livingwitheagle.org/c/welcome/10.md?page=1 [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) **Page:** 2 --- ## [I'm very much dreading this, but here goes my plea for help](https://forum.livingwitheagle.org/t/im-very-much-dreading-this-but-here-goes-my-plea-for-help/20867)
**Author:** [@sbincamp](https://forum.livingwitheagle.org/u/sbincamp)\ **Replies:** 58\ **Last updated:** [January 23, 2026, 4:50am UTC](https://forum.livingwitheagle.org/t/im-very-much-dreading-this-but-here-goes-my-plea-for-help/20867 "2026-01-23T04:50:39Z")
I have been battling daily pain for 3+ years now, and I honestly no longer know where to turn. I dismissed ES about a year or two ago, because it was considered quite rare and because I did not match most common symptoms… --- ## [Newbie from Chicago area - 4 year health crisis investigating structural issues after chiro visit](https://forum.livingwitheagle.org/t/newbie-from-chicago-area-4-year-health-crisis-investigating-structural-issues-after-chiro-visit/21699)
**Author:** [@eewilliams93](https://forum.livingwitheagle.org/u/eewilliams93)\ **Replies:** 12\ **Last updated:** [January 15, 2026, 3:32pm UTC](https://forum.livingwitheagle.org/t/newbie-from-chicago-area-4-year-health-crisis-investigating-structural-issues-after-chiro-visit/21699 "2026-01-15T15:32:30Z")
Hello everyone - my name is Eddie, and I’m a 33 yr old living in the Chicago suburbs with 3 (going on 4) beautiful children and an amazing wife. I’ll very briefly share my story then ask a couple questions. I am very thr… --- ## [I need awnsers](https://forum.livingwitheagle.org/t/i-need-awnsers/19356)
**Author:** [@Sabrinab](https://forum.livingwitheagle.org/u/Sabrinab)\ **Replies:** 13\ **Last updated:** [January 9, 2026, 1:09pm UTC](https://forum.livingwitheagle.org/t/i-need-awnsers/19356 "2026-01-09T13:09:29Z")
So I have been dealing with 24/7 off balance and dizziness and ear and head pressure and brain fog for 7 months now . So bad that I been in a wheelchair and mostly home bound . My heart rate shoots up with certain head m… --- ## [New here and looking for advice](https://forum.livingwitheagle.org/t/new-here-and-looking-for-advice/21656)
**Author:** [@Acefob](https://forum.livingwitheagle.org/u/Acefob)\ **Replies:** 12\ **Last updated:** [December 29, 2025, 9:17pm UTC](https://forum.livingwitheagle.org/t/new-here-and-looking-for-advice/21656 "2025-12-29T21:17:18Z")
Hi guys! I’m new here and I wanted to introduce myself and give a summary on my situation. But first of all: What an incredible community this seems to be, it has been really helpful reading through posts and other pe… --- ## [Surgery with Hackman this week](https://forum.livingwitheagle.org/t/surgery-with-hackman-this-week/21535)
**Author:** [@Spedula](https://forum.livingwitheagle.org/u/Spedula)\ **Replies:** 11\ **Last updated:** [December 14, 2025, 10:38pm UTC](https://forum.livingwitheagle.org/t/surgery-with-hackman-this-week/21535 "2025-12-14T22:38:40Z")
Hi, I am having surgery with dr. Hackman in a few days and I’m nervous. I have been suffering from bilateral facial nerve pain, stabbing in the throat, a voice that goes in and out, and a neck that gets caught in a 90-de… --- ## [Eagle Syndrome](https://forum.livingwitheagle.org/t/eagle-syndrome/21317)
**Author:** [@jdeltiste](https://forum.livingwitheagle.org/u/jdeltiste)\ **Replies:** 12\ **Last updated:** [December 8, 2025, 2:57am UTC](https://forum.livingwitheagle.org/t/eagle-syndrome/21317 "2025-12-08T02:57:34Z")
Hello, I am fairly new to this group. I requested a neck CT in September due to an increase in symptoms, and an enlarged growth on my spine that hadn’t changed/gone away after 6 months. I learned that I have an elong… --- ## [hEDS, ES and lumbar shunt](https://forum.livingwitheagle.org/t/heds-es-and-lumbar-shunt/21348)
**Author:** [@Rosa](https://forum.livingwitheagle.org/u/Rosa)\ **Replies:** 8\ **Last updated:** [December 5, 2025, 12:33am UTC](https://forum.livingwitheagle.org/t/heds-es-and-lumbar-shunt/21348 "2025-12-05T00:33:11Z")
Hello, my daughter has just been diagnosed with bilateral jugular vein compression. She has been wheelchair bound for the last several yrs. Her other diagnosis are POTS, MCAS, hEDS, tethered cord, MALS, nutcracker and po… --- ## [New here TN GPN and ES/ HBS need help to get diagnosis](https://forum.livingwitheagle.org/t/new-here-tn-gpn-and-es-hbs-need-help-to-get-diagnosis/21390)
**Author:** [@DJflower33](https://forum.livingwitheagle.org/u/DJflower33)\ **Replies:** 7\ **Last updated:** [November 29, 2025, 2:23am UTC](https://forum.livingwitheagle.org/t/new-here-tn-gpn-and-es-hbs-need-help-to-get-diagnosis/21390 "2025-11-29T02:23:29Z")
Hi, I have Trigeminal neuralgia pain in my upper left 2nd molar. I have had TN since 2022 in lower left due to failed implant. The pain now is in upper no dental work done there. I have been told this is… --- ## [Dr Axon and Dr Sherif](https://forum.livingwitheagle.org/t/dr-axon-and-dr-sherif/18943)
**Author:** [@Evey](https://forum.livingwitheagle.org/u/Evey)\ **Replies:** 55\ **Last updated:** [November 15, 2025, 5:34pm UTC](https://forum.livingwitheagle.org/t/dr-axon-and-dr-sherif/18943 "2025-11-15T17:34:12Z")
Hello all I am new here and wondering if anyone has had surgery with Dr Axon (UK) or Dr Sherif (Ireland)? Any advice or experiences would be appreciated greatly. My CTA non positional shows no compression however my sy… --- ## [Possible ES or TMJ?](https://forum.livingwitheagle.org/t/possible-es-or-tmj/21034)
**Author:** [@FM1999](https://forum.livingwitheagle.org/u/FM1999)\ **Replies:** 15\ **Last updated:** [November 15, 2025, 5:26pm UTC](https://forum.livingwitheagle.org/t/possible-es-or-tmj/21034 "2025-11-15T17:26:58Z")
Hey everyone im not sure if i have ES, TMJ or C1 issues, i do have CT scans with contrast that ive done, my question is one doctor has told me its TMJ another has told me Eagle Syndrome another has said it is a misalgine… --- ## [Need help finding a Dr to treat me](https://forum.livingwitheagle.org/t/need-help-finding-a-dr-to-treat-me/20865)
**Author:** [@K1albert](https://forum.livingwitheagle.org/u/K1albert)\ **Replies:** 1\ **Last updated:** [October 14, 2025, 3:45pm UTC](https://forum.livingwitheagle.org/t/need-help-finding-a-dr-to-treat-me/20865 "2025-10-14T15:45:07Z")
Hello. I’m new to this group. I live in Missouri and I have Medicaid. I was diagnosed back in December of last year. All symptoms have been on Left side until tonight. I have searched for someone to see me but cannot fin… --- ## [Post Op- Dr Ryan Osborne- Current recovery-WHAT I HAVE LEARNED\*\*\*](https://forum.livingwitheagle.org/t/post-op-dr-ryan-osborne-current-recovery-what-i-have-learned/19639)
**Author:** [@vcp02](https://forum.livingwitheagle.org/u/vcp02)\ **Replies:** 43\ **Last updated:** [October 6, 2025, 7:19pm UTC](https://forum.livingwitheagle.org/t/post-op-dr-ryan-osborne-current-recovery-what-i-have-learned/19639 "2025-10-06T19:19:53Z")
\*\*\* VERY LONG READ- WHAT IVE LEARNED\*\*\*\* MOST IMPORANT PART :slight\_smile: I have been on the forum non-stop. Since only discovering my diagnosis ~ 3 weeks ago, after I confirmed my diagnosis with Dr. Middleton in Flori… --- ## [New :) Thank you for any help!](https://forum.livingwitheagle.org/t/new-thank-you-for-any-help/19551)
**Author:** [@Coco1](https://forum.livingwitheagle.org/u/Coco1)\ **Replies:** 38\ **Last updated:** [October 4, 2025, 4:45am UTC](https://forum.livingwitheagle.org/t/new-thank-you-for-any-help/19551 "2025-10-04T04:45:54Z")
Hello, I was so glad to find this online community and have been following along awhile hoping for answers. I am 37 and for over 5 years I have had reoccurring pain in my ears, then in my jaw, then electric like pains in… --- ## [Intra oral surgery](https://forum.livingwitheagle.org/t/intra-oral-surgery/20055)
**Author:** [@Max330](https://forum.livingwitheagle.org/u/Max330)\ **Replies:** 37\ **Last updated:** [September 6, 2025, 3:59pm UTC](https://forum.livingwitheagle.org/t/intra-oral-surgery/20055 "2025-09-06T15:59:22Z")
Hi all, I have opted for surgery after years and years of symptoms in the hope this is the root cause and I can start to feel like myself again. I’ve not had an official diagnosis of eagles because they don’t seem to kn… --- ## [Re-read my images or?](https://forum.livingwitheagle.org/t/re-read-my-images-or/20339)
**Author:** [@Drea](https://forum.livingwitheagle.org/u/Drea)\ **Replies:** 17\ **Last updated:** [September 4, 2025, 11:55am UTC](https://forum.livingwitheagle.org/t/re-read-my-images-or/20339 "2025-09-04T11:55:36Z")
Hi everyone, I promise I’ll come back and share my full story soon, but I wanted to get this post out now in hopes of getting some advice before my ENT appointment. I’ve had symptoms for quite a while, but about 18 mon… --- ## [Imaging- unilateral odd finding, no mention of it?!](https://forum.livingwitheagle.org/t/imaging-unilateral-odd-finding-no-mention-of-it/20133)
**Author:** [@rightsideup](https://forum.livingwitheagle.org/u/rightsideup)\ **Replies:** 3\ **Last updated:** [August 16, 2025, 11:59am UTC](https://forum.livingwitheagle.org/t/imaging-unilateral-odd-finding-no-mention-of-it/20133 "2025-08-16T11:59:11Z")
I’ve had a ton of symptoms consistent with this syndrome and had an overnight hospital stay from it- they did a ton of scans, and said they all were normal. I finally went and got the imaging myself, and reviewed it, an… --- ## [Costantino, osbourne , nakaji, Samji](https://forum.livingwitheagle.org/t/costantino-osbourne-nakaji-samji/20059)
**Author:** [@Deanm](https://forum.livingwitheagle.org/u/Deanm)\ **Replies:** 22\ **Last updated:** [August 16, 2025, 11:43am UTC](https://forum.livingwitheagle.org/t/costantino-osbourne-nakaji-samji/20059 "2025-08-16T11:43:53Z")
Costantino, osbourne , nakaji, Samji if you had any experience with any of the following or could choose or recommend any for your surgery who would you choose ? What was it like plus your recovery ? and do any do Veno… --- ## [Strongly Believe I’m Experiencing ES](https://forum.livingwitheagle.org/t/strongly-believe-i-m-experiencing-es/19464)
**Author:** [@AugustWest94](https://forum.livingwitheagle.org/u/AugustWest94)\ **Replies:** 57\ **Last updated:** [July 28, 2025, 12:44pm UTC](https://forum.livingwitheagle.org/t/strongly-believe-i-m-experiencing-es/19464 "2025-07-28T12:44:26Z")
Good morning all - I hope everyone is well. Before I start my story here I’ll let you know all the symptoms I’m dealing with as of June ‘25: Crazy ear pressure that is relieved for a split second when I jerk my jaw aro… --- ## [Back again with a cta!](https://forum.livingwitheagle.org/t/back-again-with-a-cta/16084)
**Author:** [@rebelscum44](https://forum.livingwitheagle.org/u/rebelscum44)\ **Replies:** 12\ **Last updated:** [July 21, 2025, 7:42pm UTC](https://forum.livingwitheagle.org/t/back-again-with-a-cta/16084 "2025-07-21T19:42:05Z")
I don’t know how to get rid of the bed in the picture :sob: I developed some pretty severe insomnia last week. My family doctor is calling around to see if she can get me in to see anyone sooner --- ## [May be Eagles… may be \[\_\_\_\_\_\_\_\_\_\_\_\] ?!](https://forum.livingwitheagle.org/t/may-be-eagles-may-be/19585)
**Author:** [@annaleighm](https://forum.livingwitheagle.org/u/annaleighm)\ **Replies:** 10\ **Last updated:** [July 17, 2025, 11:31pm UTC](https://forum.livingwitheagle.org/t/may-be-eagles-may-be/19585 "2025-07-17T23:31:53Z")
I’m not sure where to begin here. I’m a year into this journey. Began (Summer ‘24) with random onsets of loud ringing, followed by feeling dizzy, losing balance and (sometimes) falling over. Then for the next few hours … --- ## [Liquid/Squirting/Drainage sounds](https://forum.livingwitheagle.org/t/liquid-squirting-drainage-sounds/14709)
**Author:** [@Kay0531](https://forum.livingwitheagle.org/u/Kay0531)\ **Replies:** 18\ **Last updated:** [July 5, 2025, 3:16am UTC](https://forum.livingwitheagle.org/t/liquid-squirting-drainage-sounds/14709 "2025-07-05T03:16:08Z")
Hi- i have AAI and just found out i have stylo-jugular compression between c1 transverse process. Does anyone else experience liquid/squirting/drainage sensations as well? I’m being scheduled for the removal of the sty… --- ## [New to eagle syndrome (undiagnosed) do you'll suggest I see an ENT?](https://forum.livingwitheagle.org/t/new-to-eagle-syndrome-undiagnosed-do-youll-suggest-i-see-an-ent/19575)
**Author:** [@Mpasman](https://forum.livingwitheagle.org/u/Mpasman)\ **Replies:** 7\ **Last updated:** [June 27, 2025, 4:14pm UTC](https://forum.livingwitheagle.org/t/new-to-eagle-syndrome-undiagnosed-do-youll-suggest-i-see-an-ent/19575 "2025-06-27T16:14:05Z")
Hi all! New to this world after a CT scan today with a tmj specialist. I thought I was struggling with tmj but my joint looks great. But they did note ossification of my stylohyoid ligaments Have had symptoms for three… --- ## [New here,](https://forum.livingwitheagle.org/t/new-here/19479)
**Author:** [@Dancingpineapple](https://forum.livingwitheagle.org/u/Dancingpineapple)\ **Replies:** 10\ **Last updated:** [June 17, 2025, 1:30am UTC](https://forum.livingwitheagle.org/t/new-here/19479 "2025-06-17T01:30:55Z")
Hello everyone, not the way I would’ve liked to meet all of you lol but here’s a quick backstory, I’m 24 years old, was training as an mma fighter (not sure if maybe trauma from neck or getting punched in jaw caused some… --- ## [Pressure release?](https://forum.livingwitheagle.org/t/pressure-release/19456)
**Author:** [@Sabrinab](https://forum.livingwitheagle.org/u/Sabrinab)\ **Replies:** 2\ **Last updated:** [June 13, 2025, 7:11pm UTC](https://forum.livingwitheagle.org/t/pressure-release/19456 "2025-06-13T19:11:14Z")
With eagles is it normal for there to be like. Buildup of pressure like in the ear and back of head then all of a sudden have a random pressure release feeling and it switch sides like the pressure and everything moves o… --- ## [Pots people , question for all of you](https://forum.livingwitheagle.org/t/pots-people-question-for-all-of-you/19446)
**Author:** [@Sabrinab](https://forum.livingwitheagle.org/u/Sabrinab)\ **Replies:** 1\ **Last updated:** [June 12, 2025, 1:55pm UTC](https://forum.livingwitheagle.org/t/pots-people-question-for-all-of-you/19446 "2025-06-12T13:55:43Z")
I’ve been town between vascular eagles or pots . Can you explain the symptoms difference like how each one feels ? I really don’t think I have pots but idk cause I’m so drunk like off balance all the time and have had pr… --- ## [How long is this?](https://forum.livingwitheagle.org/t/how-long-is-this/19439)
**Author:** [@Sabrinab](https://forum.livingwitheagle.org/u/Sabrinab)\ **Replies:** 4\ **Last updated:** [June 11, 2025, 6:56pm UTC](https://forum.livingwitheagle.org/t/how-long-is-this/19439 "2025-06-11T18:56:37Z")
I used the measurement tool on dicom and lined it up next the measurement scale on dicom . But idk how much it measures to be . Can someone help me ? This is my styloid length on the right green line --- ## [24/7 balance issues and much more , is this eagles?](https://forum.livingwitheagle.org/t/24-7-balance-issues-and-much-more-is-this-eagles/19361)
**Author:** [@Sabrinab](https://forum.livingwitheagle.org/u/Sabrinab)\ **Replies:** 4\ **Last updated:** [June 5, 2025, 7:26pm UTC](https://forum.livingwitheagle.org/t/24-7-balance-issues-and-much-more-is-this-eagles/19361 "2025-06-05T19:26:46Z")
I have been having 24 seven off balance, blood pressure, brain fog, and dizziness, it’s putting me in a wheelchair so bad and I have no answers for my doctors. The only thing I have back is this and I feel like it looks … --- ## [CT 3D shows thinned/fractured right styloid.Can you help me confirm](https://forum.livingwitheagle.org/t/ct-3d-shows-thinned-fractured-right-styloid-can-you-help-me-confirm/19271)
**Author:** [@Shruti](https://forum.livingwitheagle.org/u/Shruti)\ **Replies:** 19\ **Last updated:** [May 31, 2025, 2:44am UTC](https://forum.livingwitheagle.org/t/ct-3d-shows-thinned-fractured-right-styloid-can-you-help-me-confirm/19271 "2025-05-31T02:44:16Z")
I have persistent pain my upper throat that feels like something sharp poking in my throat.In the last 3 months I have seen quite a few doctors and finally 2 days back my ENT suggested a 3D CT scan. It shows thinning in… --- ## [Can anybody help me to confirm if my CT shows elongated styloids?](https://forum.livingwitheagle.org/t/can-anybody-help-me-to-confirm-if-my-ct-shows-elongated-styloids/14963)
**Author:** [@Warrick](https://forum.livingwitheagle.org/u/Warrick)\ **Replies:** 105\ **Last updated:** [May 16, 2025, 4:54pm UTC](https://forum.livingwitheagle.org/t/can-anybody-help-me-to-confirm-if-my-ct-shows-elongated-styloids/14963 "2025-05-16T16:54:49Z")
Good afternoon. I’ve been struggling along with a myriad of symptoms which began after a bang on the back of the head / neck. I’ve been suffering dizziness headaches and fatigue, which have now progressed to tinnitus an… --- ## [Seeking any help and advice - again](https://forum.livingwitheagle.org/t/seeking-any-help-and-advice-again/18981)
**Author:** [@SKC100](https://forum.livingwitheagle.org/u/SKC100)\ **Replies:** 4\ **Last updated:** [May 3, 2025, 6:44pm UTC](https://forum.livingwitheagle.org/t/seeking-any-help-and-advice-again/18981 "2025-05-03T18:44:49Z")
Hi All, I just realised I put my scans on here back in 2018, and you kindly commented on them then, I didn’t realise my past posts were still here. So apologies to be asking for advice again - but I’d welcome any furthe… [Previous page](https://forum.livingwitheagle.org/c/welcome/10.md) [Next page](https://forum.livingwitheagle.org/c/welcome/10.md?page=2)