# New User Help **URL:** https://forum.livingwitheagle.org/c/welcome/new-user-help/26.md [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) --- ## [FAQ - Frequently Asked Questions](https://forum.livingwitheagle.org/t/faq-frequently-asked-questions/14004)
**Author:** [@vdm](https://forum.livingwitheagle.org/u/vdm)\ **Replies:** 0\ **Last updated:** [August 22, 2023, 11:53pm UTC](https://forum.livingwitheagle.org/t/faq-frequently-asked-questions/14004 "2023-08-22T23:53:53Z")
How to use the forum How is this forum organised?The forum is a list of “discussions” (or “topics”, “conversations”, “threads”). Any registered member can create a new discussion. Each of them has a “topic line”/“subje… --- ## [About the New User Help category](https://forum.livingwitheagle.org/t/about-the-new-user-help-category/7112)
**Author:** [@Rose\_BensFriends](https://forum.livingwitheagle.org/u/Rose_BensFriends)\ **Replies:** 4\ **Last updated:** [October 20, 2020, 12:42pm UTC](https://forum.livingwitheagle.org/t/about-the-new-user-help-category/7112 "2020-10-20T12:42:33Z")
Are you a new user? Don’t worry we will guide you through the following videos. How to Create An Account? Click the image to watch the video on creating a new account. How to Use this Site? Watch these short video… --- ## [CSF leak after C1 revision](https://forum.livingwitheagle.org/t/csf-leak-after-c1-revision/24363)
**Author:** [@Hamonrye](https://forum.livingwitheagle.org/u/Hamonrye)\ **Replies:** 18\ **Last updated:** [October 16, 2026, 6:34am UTC](https://forum.livingwitheagle.org/t/csf-leak-after-c1-revision/24363 "2026-10-16T06:34:46Z")
I recently had a C1 shave. Prior to this I suffered from raise compression and what I believe to be a cranial leak, but at the time my neurologist was looking for spinal leak. After C1 shave, I experienced high pressur… --- ## [Image evaluation](https://forum.livingwitheagle.org/t/image-evaluation/24552)
**Author:** [@Anon](https://forum.livingwitheagle.org/u/Anon)\ **Replies:** 13\ **Last updated:** [October 10, 2026, 1:55pm UTC](https://forum.livingwitheagle.org/t/image-evaluation/24552 "2026-10-10T13:55:19Z")
Hi All, I have been having symptoms for around 3 years now, varying from; One sided neck pain Nerve pain on the same side TMJ like symptoms Ear popping Lightheaded Dizzy when looking down / to the side too quick Inten… --- ## [Learning about options](https://forum.livingwitheagle.org/t/learning-about-options/21826)
**Author:** [@RickAZ](https://forum.livingwitheagle.org/u/RickAZ)\ **Replies:** 53\ **Last updated:** [September 13, 2026, 2:56pm UTC](https://forum.livingwitheagle.org/t/learning-about-options/21826 "2026-09-13T14:56:28Z")
Hi all, I’ve been reading quite a bit on this forum. After a very long time of sporadic diagnoses (HBP, migraines, sleep apnea, etc) but nothing to connect them together, I’ve recently gotten an IJVCs diagnosis that may … --- ## [New here and working toward diagnosis](https://forum.livingwitheagle.org/t/new-here-and-working-toward-diagnosis/23534)
**Author:** [@Hellebore](https://forum.livingwitheagle.org/u/Hellebore)\ **Replies:** 31\ **Last updated:** [September 7, 2026, 10:12pm UTC](https://forum.livingwitheagle.org/t/new-here-and-working-toward-diagnosis/23534 "2026-09-07T22:12:32Z")
Hi all! Wanted to introduce myself and share whats going on. I’ve had a boney fit bump in my tonsil area for a long while. About 7 years? I had some initial pain which is how I discovered it but the pain went away and s… --- ## [Newbie here. Kind of diagnosed](https://forum.livingwitheagle.org/t/newbie-here-kind-of-diagnosed/24200)
**Author:** [@Sascampbell](https://forum.livingwitheagle.org/u/Sascampbell)\ **Replies:** 3\ **Last updated:** [September 5, 2026, 5:15pm UTC](https://forum.livingwitheagle.org/t/newbie-here-kind-of-diagnosed/24200 "2026-09-05T17:15:00Z")
Hi newbie here from New Zealand. I have literally today had confirmation of eagles and a severely compressed jugular vein. From Turkey as no one in nz will see me or tell me it’s, all in my head. Symptoms are pain in thr… --- ## [Can Eagle Syndrome Cause Strongly Jaw Modulated Tinnitus? My Story](https://forum.livingwitheagle.org/t/can-eagle-syndrome-cause-strongly-jaw-modulated-tinnitus-my-story/24048)
**Author:** [@AkitasRule](https://forum.livingwitheagle.org/u/AkitasRule)\ **Replies:** 11\ **Last updated:** [August 25, 2026, 12:34am UTC](https://forum.livingwitheagle.org/t/can-eagle-syndrome-cause-strongly-jaw-modulated-tinnitus-my-story/24048 "2026-08-25T00:34:10Z")
I’m new to the forum and wanted to introduce myself and see whether anyone here has had a similar situation, particularly involving tinnitus. My Story: Elongated/calcified styloids, severe somatic tinnitus, rear jaw/ne… --- ## [Chronic Migraines, recently heard about Eagle : Asking myself questions now](https://forum.livingwitheagle.org/t/chronic-migraines-recently-heard-about-eagle-asking-myself-questions-now/23702)
**Author:** [@PaulineC](https://forum.livingwitheagle.org/u/PaulineC)\ **Replies:** 20\ **Last updated:** [August 4, 2026, 12:30pm UTC](https://forum.livingwitheagle.org/t/chronic-migraines-recently-heard-about-eagle-asking-myself-questions-now/23702 "2026-08-04T12:30:23Z")
Hi everyone, My name is Pauline, I’m 26 years old and I’m from Luxembourg. Thank you for accepting me in this group. I have been suffering from chronic migraines since I was about 19–20 years old, when I started univer… --- ## [What Type of Specialist Should I see?](https://forum.livingwitheagle.org/t/what-type-of-specialist-should-i-see/23606)
**Author:** [@MisterFrodo](https://forum.livingwitheagle.org/u/MisterFrodo)\ **Replies:** 27\ **Last updated:** [July 25, 2026, 2:05am UTC](https://forum.livingwitheagle.org/t/what-type-of-specialist-should-i-see/23606 "2026-07-25T02:05:43Z")
A few years back I saw Dr. Hackman for a consult for the elongated styloids only. But now I know that so many of my issues are also due to compression of the left internal jugular vein at the C1 transverse. During a rec… --- ## [Realistic recovery timeline from those who hav had surgery](https://forum.livingwitheagle.org/t/realistic-recovery-timeline-from-those-who-hav-had-surgery/23505)
**Author:** [@RitaPita](https://forum.livingwitheagle.org/u/RitaPita)\ **Replies:** 2\ **Last updated:** [July 2, 2026, 6:39pm UTC](https://forum.livingwitheagle.org/t/realistic-recovery-timeline-from-those-who-hav-had-surgery/23505 "2026-07-02T18:39:16Z")
Hi! I am preparing to schedule a surgery for a styloidectomy. My surgeon says that recovery looks like this: -Same day up and walking -2 weeks until you can return slowly into normal life/tendencies -6 months for ner… --- ## [Images from CBCT scan](https://forum.livingwitheagle.org/t/images-from-cbct-scan/23460)
**Author:** [@Jem](https://forum.livingwitheagle.org/u/Jem)\ **Replies:** 7\ **Last updated:** [June 27, 2026, 7:09pm UTC](https://forum.livingwitheagle.org/t/images-from-cbct-scan/23460 "2026-06-27T19:09:35Z")
Here are some photos of my scans - I took pictures because we weren’t sure how to send the actual scans to me due to the size. As you can see, the culprit to my troubles is clear as day :wink: these scans were taken as p… --- ## [Next steps after first discovering calcified ligament](https://forum.livingwitheagle.org/t/next-steps-after-first-discovering-calcified-ligament/23373)
**Author:** [@Jem](https://forum.livingwitheagle.org/u/Jem)\ **Replies:** 5\ **Last updated:** [June 20, 2026, 1:25am UTC](https://forum.livingwitheagle.org/t/next-steps-after-first-discovering-calcified-ligament/23373 "2026-06-20T01:25:28Z")
Edit to add: after looking around, it seems my next steps are to get a CT scan, and next contacting a doctor, I am thinking Dr. Osborne in CA at this point. :slight\_smile: Hello everyone! I am so grateful to have found … --- ## [Balloon Occlusion Test Venogram for Jugular](https://forum.livingwitheagle.org/t/balloon-occlusion-test-venogram-for-jugular/23310)
**Author:** [@mogulmama](https://forum.livingwitheagle.org/u/mogulmama)\ **Replies:** 2\ **Last updated:** [June 11, 2026, 4:13pm UTC](https://forum.livingwitheagle.org/t/balloon-occlusion-test-venogram-for-jugular/23310 "2026-06-11T16:13:55Z")
Hi All. I’m still trying to find someone within driving distance to do this test for my daughter. Dr. Costantino hasn’t come up with any recommendations. Does anyone think Dr. Mehta might do it per Dr. Costantino’s proto… --- ## [Dental Pano images almost ten years apart, is it ES?](https://forum.livingwitheagle.org/t/dental-pano-images-almost-ten-years-apart-is-it-es/16912)
**Author:** [@BLPICCOL71](https://forum.livingwitheagle.org/u/BLPICCOL71)\ **Replies:** 54\ **Last updated:** [June 9, 2026, 2:49am UTC](https://forum.livingwitheagle.org/t/dental-pano-images-almost-ten-years-apart-is-it-es/16912 "2026-06-09T02:49:09Z")
Hi, I’d like you all’s opinion on the attached images. One is from 10/14 and one is from 3/23. First is it possible to have ES and have zero symptoms? Here is my story. I have had zero symptoms until October of 2023. My … --- ## [Dr Osborne- Blue Cross Blue Shield Out of Network Waiver-2025](https://forum.livingwitheagle.org/t/dr-osborne-blue-cross-blue-shield-out-of-network-waiver-2025/19658)
**Author:** [@vcp02](https://forum.livingwitheagle.org/u/vcp02)\ **Replies:** 99\ **Last updated:** [June 3, 2026, 11:23pm UTC](https://forum.livingwitheagle.org/t/dr-osborne-blue-cross-blue-shield-out-of-network-waiver-2025/19658 "2026-06-03T23:23:28Z")
I know insurance limitations that make this entire process even more difficult. I was fortunate to receive care with Dr. Osborne on the 25th and 30th. Though he was considered out of network there are “Waivers” that can … --- ## [New user, desperate for help with diagnosis](https://forum.livingwitheagle.org/t/new-user-desperate-for-help-with-diagnosis/20942)
**Author:** [@Deggui](https://forum.livingwitheagle.org/u/Deggui)\ **Replies:** 99\ **Last updated:** [May 7, 2026, 11:08pm UTC](https://forum.livingwitheagle.org/t/new-user-desperate-for-help-with-diagnosis/20942 "2026-05-07T23:08:15Z")
Hello everyone in this wonderful forum, It’s truly a blessing to have found this place, as I was feeling very alone in dealing with this issue. My name is Sebastián, I’m 36 years old and from Argentina. For about a yea… --- ## [Post op 6 months](https://forum.livingwitheagle.org/t/post-op-6-months/22556)
**Author:** [@Shugs](https://forum.livingwitheagle.org/u/Shugs)\ **Replies:** 3\ **Last updated:** [March 31, 2026, 1:52pm UTC](https://forum.livingwitheagle.org/t/post-op-6-months/22556 "2026-03-31T13:52:28Z")
Hi everyone — I’m about 6 months out from styloidectomy + IJV decompression and I’m still struggling more than I expected. Structurally things seem “fixed,” but my body doesn’t feel normal. I’m dealing with what feels l… --- ## [Not sure which route to take?](https://forum.livingwitheagle.org/t/not-sure-which-route-to-take/22531)
**Author:** [@Hamonrye](https://forum.livingwitheagle.org/u/Hamonrye)\ **Replies:** 11\ **Last updated:** [March 25, 2026, 7:03pm UTC](https://forum.livingwitheagle.org/t/not-sure-which-route-to-take/22531 "2026-03-25T19:03:21Z")
I just saw my neurosurgeon who was investigating me for leak after I felt I had intercranial hypertension. He hasn’t heard of eagles. He wants to refer me to another neurologist: I’m not sure which way to go now? Doe… --- ## [Help with Bupa](https://forum.livingwitheagle.org/t/help-with-bupa/22543)
**Author:** [@Hamonrye](https://forum.livingwitheagle.org/u/Hamonrye)\ **Replies:** 0\ **Last updated:** [March 25, 2026, 11:00am UTC](https://forum.livingwitheagle.org/t/help-with-bupa/22543 "2026-03-25T11:00:37Z")
I have Bupa health insurance. I wanted to see Dr Axon, but he’s not in the open referral network. I think if I can convince my GP that it needs to be him because it could be eagles, then they might accept it. Has anyo… --- ## [Insurance advice needed for syloidectomy w/Dr.Osborne](https://forum.livingwitheagle.org/t/insurance-advice-needed-for-syloidectomy-w-dr-osborne/22528)
**Author:** [@cw777](https://forum.livingwitheagle.org/u/cw777)\ **Replies:** 1\ **Last updated:** [March 24, 2026, 2:29pm UTC](https://forum.livingwitheagle.org/t/insurance-advice-needed-for-syloidectomy-w-dr-osborne/22528 "2026-03-24T14:29:36Z")
Hi all, Last week I was diagnosed with Eagle Syndrome by Dr. Osborne, the answer to the torturous pain I’ve been experiencing for years. Last December, I lost my health insurance through my father’s employer after he su… --- ## [Help with possible diagnosis in the UK](https://forum.livingwitheagle.org/t/help-with-possible-diagnosis-in-the-uk/22516)
**Author:** [@Hamonrye](https://forum.livingwitheagle.org/u/Hamonrye)\ **Replies:** 5\ **Last updated:** [March 23, 2026, 11:34pm UTC](https://forum.livingwitheagle.org/t/help-with-possible-diagnosis-in-the-uk/22516 "2026-03-23T23:34:04Z")
I haven’t been diagnosed with eagles yet? But I just wanted to check a couple of things. I am being investigated for a CFS leak, but they cannot find any evidence of this. What I think is happening is that I have high… --- ## [To C1 or not C1?](https://forum.livingwitheagle.org/t/to-c1-or-not-c1/22492)
**Author:** [@Rehri](https://forum.livingwitheagle.org/u/Rehri)\ **Replies:** 3\ **Last updated:** [March 21, 2026, 7:54pm UTC](https://forum.livingwitheagle.org/t/to-c1-or-not-c1/22492 "2026-03-21T19:54:36Z")
I was just in a meeting with Dr. Ryan Osborne from Los Angeles for a second opinion about my stylogenic jugular vein compression previously diagnosed by Dr. Kamran Aghayev. Dr. Ryan Osborne also believed I had Eagle syn… --- ## [Looking for Advice Again](https://forum.livingwitheagle.org/t/looking-for-advice-again/22387)
**Author:** [@Gina1961](https://forum.livingwitheagle.org/u/Gina1961)\ **Replies:** 22\ **Last updated:** [March 21, 2026, 4:30am UTC](https://forum.livingwitheagle.org/t/looking-for-advice-again/22387 "2026-03-21T04:30:58Z")
Hello everyone - I haven’t been on here for quite a while as I unfortunately find the site difficult to navigate and I didn’t have anything worthwhile to share. However I think this update may help some people as they tr… --- ## [Hyoid Bone Pain](https://forum.livingwitheagle.org/t/hyoid-bone-pain/22363)
**Author:** [@Matt7234](https://forum.livingwitheagle.org/u/Matt7234)\ **Replies:** 12\ **Last updated:** [March 19, 2026, 2:54pm UTC](https://forum.livingwitheagle.org/t/hyoid-bone-pain/22363 "2026-03-19T14:54:13Z")
Hi all. I am new to this forum! I wanted to quickly share my story with the hopes that you all might have some advice for me. I am a 23 year old recent college graduate that moved to New York City. I’m originally from Mi… --- ## [FINALLY! Answers in Denver](https://forum.livingwitheagle.org/t/finally-answers-in-denver/14397)
**Author:** [@Brandy](https://forum.livingwitheagle.org/u/Brandy)\ **Replies:** 22\ **Last updated:** [March 1, 2026, 5:50pm UTC](https://forum.livingwitheagle.org/t/finally-answers-in-denver/14397 "2026-03-01T17:50:35Z")
Let me start out by saying, I am complex. I got 3 opinions: Annino, Costantino and lastly Hepworth. I do not have ES, but Vascular Outflow Obstruction. Annino does not deal with this and his recommendations would not ha… --- ## [New story, seeing Dr. Merati in Seattle, needing some advice](https://forum.livingwitheagle.org/t/new-story-seeing-dr-merati-in-seattle-needing-some-advice/20529)
**Author:** [@qchero](https://forum.livingwitheagle.org/u/qchero)\ **Replies:** 23\ **Last updated:** [February 24, 2026, 12:00pm UTC](https://forum.livingwitheagle.org/t/new-story-seeing-dr-merati-in-seattle-needing-some-advice/20529 "2026-02-24T12:00:46Z")
Hello! I have been browsing this forum and got a ton of useful information. And it’s time I share my story as I go in my own journey. Story About 10 years ago when I was 24, I started to feel something behind both my e… --- ## [New user and unsure of how to proceed](https://forum.livingwitheagle.org/t/new-user-and-unsure-of-how-to-proceed/18360)
**Author:** [@byebyetwenties](https://forum.livingwitheagle.org/u/byebyetwenties)\ **Replies:** 49\ **Last updated:** [February 17, 2026, 5:59pm UTC](https://forum.livingwitheagle.org/t/new-user-and-unsure-of-how-to-proceed/18360 "2026-02-17T17:59:28Z")
Hello all! I am very much unsure if this is the right place for me. I am also pretty desperate at this point. Whether or not I have ES is very much up for debate. But, I’ve had most other common conditions that it could… --- ## [My Full Story](https://forum.livingwitheagle.org/t/my-full-story/20359)
**Author:** [@Drea](https://forum.livingwitheagle.org/u/Drea)\ **Replies:** 79\ **Last updated:** [January 29, 2026, 12:34am UTC](https://forum.livingwitheagle.org/t/my-full-story/20359 "2026-01-29T00:34:39Z")
I posted earlier here asking if I should get a re-read of my CT or a new scan. For anyone who saw that, I’m now sharing my full story here. When I sat down to write this post, my original plan was to share my full story… --- ## [I'm very much dreading this, but here goes my plea for help](https://forum.livingwitheagle.org/t/im-very-much-dreading-this-but-here-goes-my-plea-for-help/20867)
**Author:** [@sbincamp](https://forum.livingwitheagle.org/u/sbincamp)\ **Replies:** 58\ **Last updated:** [January 23, 2026, 4:50am UTC](https://forum.livingwitheagle.org/t/im-very-much-dreading-this-but-here-goes-my-plea-for-help/20867 "2026-01-23T04:50:39Z")
I have been battling daily pain for 3+ years now, and I honestly no longer know where to turn. I dismissed ES about a year or two ago, because it was considered quite rare and because I did not match most common symptoms… [Next page](https://forum.livingwitheagle.org/c/welcome/new-user-help/26.md?page=1)