# New User Help **URL:** https://forum.livingwitheagle.org/c/welcome/new-user-help/26.md?page=2 [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) **Page:** 3 --- ## [Can anybody help me to confirm if my CT shows elongated styloids?](https://forum.livingwitheagle.org/t/can-anybody-help-me-to-confirm-if-my-ct-shows-elongated-styloids/14963)
**Author:** [@Warrick](https://forum.livingwitheagle.org/u/Warrick)\ **Replies:** 105\ **Last updated:** [May 16, 2025, 4:54pm UTC](https://forum.livingwitheagle.org/t/can-anybody-help-me-to-confirm-if-my-ct-shows-elongated-styloids/14963 "2025-05-16T16:54:49Z")
Good afternoon. I’ve been struggling along with a myriad of symptoms which began after a bang on the back of the head / neck. I’ve been suffering dizziness headaches and fatigue, which have now progressed to tinnitus an… --- ## [Seeking any help and advice - again](https://forum.livingwitheagle.org/t/seeking-any-help-and-advice-again/18981)
**Author:** [@SKC100](https://forum.livingwitheagle.org/u/SKC100)\ **Replies:** 4\ **Last updated:** [May 3, 2025, 6:44pm UTC](https://forum.livingwitheagle.org/t/seeking-any-help-and-advice-again/18981 "2025-05-03T18:44:49Z")
Hi All, I just realised I put my scans on here back in 2018, and you kindly commented on them then, I didn’t realise my past posts were still here. So apologies to be asking for advice again - but I’d welcome any furthe… --- ## [Vaskulær eagels Tyrkia Dr Kamran](https://forum.livingwitheagle.org/t/vaskulaer-eagels-tyrkia-dr-kamran/18173)
**Author:** [@Lenaj](https://forum.livingwitheagle.org/u/Lenaj)\ **Replies:** 21\ **Last updated:** [April 28, 2025, 1:21pm UTC](https://forum.livingwitheagle.org/t/vaskulaer-eagels-tyrkia-dr-kamran/18173 "2025-04-28T13:21:34Z")
hi I’m new here but want to tell my story and symptoms of vascular eagles. in 1995 I crashed in a car race. got hit on the left side of the neck. I went and had an x-ray of my neck but they didn’t see anything in the pi… --- ## [New here from Scotland](https://forum.livingwitheagle.org/t/new-here-from-scotland/13859)
**Author:** [@Lemontree](https://forum.livingwitheagle.org/u/Lemontree)\ **Replies:** 21\ **Last updated:** [February 20, 2025, 10:26pm UTC](https://forum.livingwitheagle.org/t/new-here-from-scotland/13859 "2025-02-20T22:26:00Z")
Sorry if I’m posting in the wrong place - I’m not very tech sav, it took me ages working out how to post. Thanks for this website, it’s amazing and so helpful already. Here’s my story - desperate for some advice. At t… --- ## [New Eagle Syndrome Diagnosis - happy to find community!](https://forum.livingwitheagle.org/t/new-eagle-syndrome-diagnosis-happy-to-find-community/18105)
**Author:** [@Pamela](https://forum.livingwitheagle.org/u/Pamela)\ **Replies:** 10\ **Last updated:** [January 23, 2025, 9:40pm UTC](https://forum.livingwitheagle.org/t/new-eagle-syndrome-diagnosis-happy-to-find-community/18105 "2025-01-23T21:40:13Z")
Hi, I was diagnosed with Eagle Syndrome last week by Dr Bolognese at Mt Sinai. I originally sent him my scans because my doctor at Mayo thought I have CCI (which it appears I do, along with tethered cord and IIH). A bit… --- ## [Hello! Toadall Newb questions](https://forum.livingwitheagle.org/t/hello-toadall-newb-questions/18048)
**Author:** [@Tamasaurus](https://forum.livingwitheagle.org/u/Tamasaurus)\ **Replies:** 5\ **Last updated:** [January 16, 2025, 11:16pm UTC](https://forum.livingwitheagle.org/t/hello-toadall-newb-questions/18048 "2025-01-16T23:16:08Z")
Hi there, I’m new here, so I have a few questions because I have never before considered that I could have ES or internal jugular vein compression. I tried reading around a bit for answers but I couldn’t find some info.… --- ## [Need guidance ! Hyoid Bone](https://forum.livingwitheagle.org/t/need-guidance-hyoid-bone/17915)
**Author:** [@chiku248](https://forum.livingwitheagle.org/u/chiku248)\ **Replies:** 2\ **Last updated:** [January 1, 2025, 10:21am UTC](https://forum.livingwitheagle.org/t/need-guidance-hyoid-bone/17915 "2025-01-01T10:21:06Z")
I am glad that I found this community. I am sharing my symptoms and evaluation below and I will appreciate any guidance :pray: I am a 32 years old man. Since few days I am having cold and a runny nose. And while self e… --- ## [Wait time for seeing Nakaji?](https://forum.livingwitheagle.org/t/wait-time-for-seeing-nakaji/17653)
**Author:** [@Maddy](https://forum.livingwitheagle.org/u/Maddy)\ **Replies:** 5\ **Last updated:** [December 3, 2024, 4:52am UTC](https://forum.livingwitheagle.org/t/wait-time-for-seeing-nakaji/17653 "2024-12-03T04:52:03Z")
If you saw Dr Nakaji or Dr Lawton in AZ how soon did they get you in and have you in for the surgery? --- ## [Hello, new here](https://forum.livingwitheagle.org/t/hello-new-here/17599)
**Author:** [@Bcats0318](https://forum.livingwitheagle.org/u/Bcats0318)\ **Replies:** 2\ **Last updated:** [November 21, 2024, 4:26pm UTC](https://forum.livingwitheagle.org/t/hello-new-here/17599 "2024-11-21T16:26:04Z")
What brought me here was consult with interventional radiologist in oct to review my brain ct at the urging of my neuro early in june after brain mri showed some vessel irregularities and she had me get the ct w/wo contr… --- ## [I have surgery tomorrow🙏](https://forum.livingwitheagle.org/t/i-have-surgery-tomorrow/16999)
**Author:** [@Misael](https://forum.livingwitheagle.org/u/Misael)\ **Replies:** 47\ **Last updated:** [November 20, 2024, 4:34pm UTC](https://forum.livingwitheagle.org/t/i-have-surgery-tomorrow/16999 "2024-11-20T16:34:15Z")
Tomorrow I will undergo stylloidectomy surgery in the city of Barranquilla (initially on the left side, which compresses the internal jugular vein). I am very distressed and at the same time excited. With doubts and fear… --- ## [Dr. Hepworth and Vascular ES](https://forum.livingwitheagle.org/t/dr-hepworth-and-vascular-es/9457)
**Author:** [@Eagle1](https://forum.livingwitheagle.org/u/Eagle1)\ **Replies:** 69\ **Last updated:** [November 4, 2024, 1:23pm UTC](https://forum.livingwitheagle.org/t/dr-hepworth-and-vascular-es/9457 "2024-11-04T13:23:43Z")
Hi everyone, I just want to tell you all how grateful I am to have discovered this forum! I have gone undiagnosed for 9 years now. My symptoms of daily head pressure, rocking sensation (as if I were standing on a moving… --- ## [UK post…](https://forum.livingwitheagle.org/t/uk-post/16816)
**Author:** [@Anaairam17](https://forum.livingwitheagle.org/u/Anaairam17)\ **Replies:** 3\ **Last updated:** [August 14, 2024, 6:33pm UTC](https://forum.livingwitheagle.org/t/uk-post/16816 "2024-08-14T18:33:03Z")
UK post I’m considering going to see Dr. Axon privately to discuss surgery, but I have a few questions for anyone that had surgery with him. I was initially put on a waiting list for a local ENT surgeon to do a trans-o… --- ## [Image help](https://forum.livingwitheagle.org/t/image-help/16501)
**Author:** [@Janetjeaux](https://forum.livingwitheagle.org/u/Janetjeaux)\ **Replies:** 4\ **Last updated:** [June 27, 2024, 4:53am UTC](https://forum.livingwitheagle.org/t/image-help/16501 "2024-06-27T04:53:22Z")
Does anyone see elongated styloids in any of these scans? Thank you. --- ## [New here, help please :)](https://forum.livingwitheagle.org/t/new-here-help-please/16443)
**Author:** [@Kmb](https://forum.livingwitheagle.org/u/Kmb)\ **Replies:** 3\ **Last updated:** [June 22, 2024, 3:00am UTC](https://forum.livingwitheagle.org/t/new-here-help-please/16443 "2024-06-22T03:00:09Z")
Hi, thank you for approving me. I am so overwhelmed by this diagnosis, not gonna lie!! I have been suffering for 2.5 years and while I have 100 other chronic health issues and rare things, it’s impossible to know what is… --- ## [Cbct viewer application](https://forum.livingwitheagle.org/t/cbct-viewer-application/16453)
**Author:** [@Kmb](https://forum.livingwitheagle.org/u/Kmb)\ **Replies:** 2\ **Last updated:** [June 21, 2024, 9:16pm UTC](https://forum.livingwitheagle.org/t/cbct-viewer-application/16453 "2024-06-21T21:16:06Z")
Hi! New here! I am confused about sharing scans and images. All i have currently is a CBCT, which is on a disk and opens up into the viewer application. No dicom files. Is there a way to extract images from this? Can som… --- ## [Figured I would see what ya'll think](https://forum.livingwitheagle.org/t/figured-i-would-see-what-yall-think/15837)
**Author:** [@rebelscum44](https://forum.livingwitheagle.org/u/rebelscum44)\ **Replies:** 16\ **Last updated:** [April 10, 2024, 12:05pm UTC](https://forum.livingwitheagle.org/t/figured-i-would-see-what-yall-think/15837 "2024-04-10T12:05:31Z")
Hello, still pretty new here. It’s been a really weird week for me. I’ve had jaw pain and tinnitus for quite some time but ignored it because I thought it was related to my autoimmune disease. I wound up getting a CT sca… --- ## [Help Please!](https://forum.livingwitheagle.org/t/help-please/15373)
**Author:** [@Stevesmith](https://forum.livingwitheagle.org/u/Stevesmith)\ **Replies:** 3\ **Last updated:** [May 14, 2024, 5:55pm UTC](https://forum.livingwitheagle.org/t/help-please/15373 "2024-05-14T17:55:18Z")
I was recently diagnosed with severe bilateral internal jugular vein compression. My c1 is abnormally big on both sides and is compressing the jugular veins up against the styloids. I have went through a year and a half … --- ## [Dr Stepan in Chicago](https://forum.livingwitheagle.org/t/dr-stepan-in-chicago/15661)
**Author:** [@Eli](https://forum.livingwitheagle.org/u/Eli)\ **Replies:** 3\ **Last updated:** [March 20, 2024, 4:24pm UTC](https://forum.livingwitheagle.org/t/dr-stepan-in-chicago/15661 "2024-03-20T16:24:14Z")
Has anyone seen Dr Stepan at Northwestern in Chicago and do you have any feedback?OR really any other dr in Chicago? thanks in advance --- ## [Hi from Canada - Searching for answers](https://forum.livingwitheagle.org/t/hi-from-canada-searching-for-answers/15544)
**Author:** [@Nicole\_40237](https://forum.livingwitheagle.org/u/Nicole_40237)\ **Replies:** 10\ **Last updated:** [March 15, 2024, 7:23pm UTC](https://forum.livingwitheagle.org/t/hi-from-canada-searching-for-answers/15544 "2024-03-15T19:23:22Z")
Hello! I am from Montreal, Quebec, Canada. I joined Living with Eagles last July; however, this is my first time posting and sharing my experience. I am tremendously grateful for all the knowledge I have gained from thi… --- ## [MRI images](https://forum.livingwitheagle.org/t/mri-images/14803)
**Author:** [@kel34ban](https://forum.livingwitheagle.org/u/kel34ban)\ **Replies:** 156\ **Last updated:** [February 28, 2024, 5:22am UTC](https://forum.livingwitheagle.org/t/mri-images/14803 "2024-02-28T05:22:02Z")
HELP (images now uploaded in comments) Hi thought I’d start with uploading images before going into detail about the hell I’m going through :cry: Not sure if I have jugular compression? I am being investigated for a cs… --- ## [6 weeks post jugulars still narrowed](https://forum.livingwitheagle.org/t/6-weeks-post-jugulars-still-narrowed/15164)
**Author:** [@Kay0531](https://forum.livingwitheagle.org/u/Kay0531)\ **Replies:** 1\ **Last updated:** [January 18, 2024, 7:44am UTC](https://forum.livingwitheagle.org/t/6-weeks-post-jugulars-still-narrowed/15164 "2024-01-18T07:44:31Z")
6 weeks post had a mrv my jugulars are still narrowed and running through collaterals. Anyone else experience this? Or know how long it takes to reroute? Doesn’t look right to me =S --- ## [C1 shave- Lateral Altanto Occipital Ligament](https://forum.livingwitheagle.org/t/c1-shave-lateral-altanto-occipital-ligament/14882)
**Author:** [@Kay0531](https://forum.livingwitheagle.org/u/Kay0531)\ **Replies:** 19\ **Last updated:** [December 21, 2023, 9:00am UTC](https://forum.livingwitheagle.org/t/c1-shave-lateral-altanto-occipital-ligament/14882 "2023-12-21T09:00:58Z")
In c1 shave of the TP- does the LAOL ligament get cut off as well? Asking as this adds to the stability from c0/c1 --- ## [Admin help](https://forum.livingwitheagle.org/t/admin-help/14812)
**Author:** [@kel34ban](https://forum.livingwitheagle.org/u/kel34ban)\ **Replies:** 1\ **Last updated:** [December 7, 2023, 6:00pm UTC](https://forum.livingwitheagle.org/t/admin-help/14812 "2023-12-07T18:00:15Z")
Hi :wave: I have uploaded my images and description in the comments of my last past. I’m not sure how to repost it with my images at the top so people can see and comment :woman\_facepalming: sorry my brain isn’t working… --- ## [Feeling sorry for myself](https://forum.livingwitheagle.org/t/feeling-sorry-for-myself/14727)
**Author:** [@Sunflower50](https://forum.livingwitheagle.org/u/Sunflower50)\ **Replies:** 11\ **Last updated:** [December 7, 2023, 1:17pm UTC](https://forum.livingwitheagle.org/t/feeling-sorry-for-myself/14727 "2023-12-07T13:17:10Z")
Why do I feel so incapacitated? Why do I feel so exhausted all the time? Why does my head and neck feel so weird. Is this how people really feel? So, so sick. Practically bedridden. I’m at a loss. I need hope. I need he… --- ## [I'm newly diagnosed and new here: I have so many questions](https://forum.livingwitheagle.org/t/im-newly-diagnosed-and-new-here-i-have-so-many-questions/14744)
**Author:** [@gnriggs79](https://forum.livingwitheagle.org/u/gnriggs79)\ **Replies:** 4\ **Last updated:** [November 29, 2023, 2:27am UTC](https://forum.livingwitheagle.org/t/im-newly-diagnosed-and-new-here-i-have-so-many-questions/14744 "2023-11-29T02:27:00Z")
Hello everyone! I am new to the group and newly diagnosed. I see Dr. Hackman in January at UNC. I have a few questions/thoughts (okay, a lot): I have severe TMJD (diagnosed finally 8 months ago) and currently in treatm… --- ## [New User](https://forum.livingwitheagle.org/t/new-user/14641)
**Author:** [@Sunflower50](https://forum.livingwitheagle.org/u/Sunflower50)\ **Replies:** 8\ **Last updated:** [November 15, 2023, 2:28pm UTC](https://forum.livingwitheagle.org/t/new-user/14641 "2023-11-15T14:28:47Z")
What symptoms have you experienced…just want validation that what I’m experiencing is related to Jugular vein compression. I can’t be upright much .I just feel like activity causes more pulsating Tinnitus, throbbing of … --- ## [New and unsure](https://forum.livingwitheagle.org/t/new-and-unsure/14029)
**Author:** [@Maaa](https://forum.livingwitheagle.org/u/Maaa)\ **Replies:** 6\ **Last updated:** [October 1, 2023, 12:10pm UTC](https://forum.livingwitheagle.org/t/new-and-unsure/14029 "2023-10-01T12:10:15Z")
Hello Everyone, I’m not certain I have Eagles Syndrome but I do have something happening that is very troubling, and there is actually a hard protruding area that forms when I turn my head to the right and sometimes whe… --- ## [Right Side Eagle](https://forum.livingwitheagle.org/t/right-side-eagle/14150)
**Author:** [@ola](https://forum.livingwitheagle.org/u/ola)\ **Replies:** 3\ **Last updated:** [September 12, 2023, 6:29pm UTC](https://forum.livingwitheagle.org/t/right-side-eagle/14150 "2023-09-12T18:29:35Z")
Hello, I have right side eagle syndrome - 3.2cm. Left side is 1.9cm (normal). I also have neck and shoulder muscle tightness. I am also told of the tech neck problem. The main problem likely due to ES to me is speech an… --- ## [Webinar Follow Up](https://forum.livingwitheagle.org/t/webinar-follow-up/13635)
**Author:** [@Brandy](https://forum.livingwitheagle.org/u/Brandy)\ **Replies:** 12\ **Last updated:** [August 27, 2023, 3:17pm UTC](https://forum.livingwitheagle.org/t/webinar-follow-up/13635 "2023-08-27T15:17:50Z")
Hi, I found the recent webinar so incredibly helpful! One question I have is in reference to the lesions they mention from brain to neck. What type of lesions are they referring to? Thanks! --- ## [Desperate for an answer](https://forum.livingwitheagle.org/t/desperate-for-an-answer/12805)
**Author:** [@painintheneck](https://forum.livingwitheagle.org/u/painintheneck)\ **Replies:** 12\ **Last updated:** [July 29, 2023, 8:23pm UTC](https://forum.livingwitheagle.org/t/desperate-for-an-answer/12805 "2023-07-29T20:23:00Z")
Hi there! I was diagnosed years ago and saw Dr. Cognetti in P.A but decided not to do the surgery. For years I am struggling with fatigue, dizziness, extreme bouts of depression and anxiety, brain fog and especially in t… [Previous page](https://forum.livingwitheagle.org/c/welcome/new-user-help/26.md?page=1) [Next page](https://forum.livingwitheagle.org/c/welcome/new-user-help/26.md?page=3)