# Latest **URL:** https://forum.livingwitheagle.org/latest.md [Latest](https://forum.livingwitheagle.org/latest.md) · [Categories](https://forum.livingwitheagle.org/categories.md) · [Tags](https://forum.livingwitheagle.org/tags.md) --- ## [Welcome To Our New Eagle Syndrome Discourse Site](https://forum.livingwitheagle.org/t/welcome-to-our-new-eagle-syndrome-discourse-site/1541)
**Author:** [@Mod\_support](https://forum.livingwitheagle.org/u/Mod_support)\ **Replies:** 0\ **Last updated:** [August 22, 2016, 8:07pm UTC](https://forum.livingwitheagle.org/t/welcome-to-our-new-eagle-syndrome-discourse-site/1541 "2016-08-22T20:07:34Z")
Were you a member of our old Eagle Syndrome - Online Support Group site? Simply LOG IN with your old user name and click on “Forgot password”. We will send you a link to claim your old profile. First time visitor? Pleas… --- ## [Welcome to Discourse](https://forum.livingwitheagle.org/t/welcome-to-discourse/8)
**Author:** [@system](https://forum.livingwitheagle.org/u/system)\ **Replies:** 0\ **Last updated:** [April 22, 2016, 4:49pm UTC](https://forum.livingwitheagle.org/t/welcome-to-discourse/8 "2016-04-22T16:49:39Z")
The first paragraph of this pinned topic will be visible as a welcome message to all new visitors on your homepage. It's important! Edit this into a brief description of your community: Who is it for? What can they … --- ## [Update: Revision surgery woth Hackman](https://forum.livingwitheagle.org/t/update-revision-surgery-woth-hackman/24443)
**Author:** [@Asumhannah](https://forum.livingwitheagle.org/u/Asumhannah)\ **Replies:** 3\ **Last updated:** [September 23, 2026, 8:38pm UTC](https://forum.livingwitheagle.org/t/update-revision-surgery-woth-hackman/24443 "2026-09-23T20:38:17Z")
Last post: Leftover 1.5cm between arteries and new complications post 5 years after bilateral styloidectomy Hey everyone, I had my revision surgery as well as removal of right thyroid ligament and I’m finally discharged… --- ## [I'm desperate- does this sound like Eagles Syndrome?](https://forum.livingwitheagle.org/t/im-desperate-does-this-sound-like-eagles-syndrome/24430)
**Author:** [@jessicah](https://forum.livingwitheagle.org/u/jessicah)\ **Replies:** 18\ **Last updated:** [September 23, 2026, 7:13pm UTC](https://forum.livingwitheagle.org/t/im-desperate-does-this-sound-like-eagles-syndrome/24430 "2026-09-23T19:13:48Z")
Just looking for advice I suffer severely with auditory symptoms I hear my heartbeat nonstop left ear My ear feels clogged off and on all day with severe pressure Ear pops a lot. If i turn my neck or any little movem… --- ## [Hepworth or aghayev](https://forum.livingwitheagle.org/t/hepworth-or-aghayev/24103)
**Author:** [@Jordan](https://forum.livingwitheagle.org/u/Jordan)\ **Replies:** 74\ **Last updated:** [September 23, 2026, 3:23pm UTC](https://forum.livingwitheagle.org/t/hepworth-or-aghayev/24103 "2026-09-23T15:23:42Z")
Hello, I was wondering if you consider Dr. Aghayev to be as good as Hepworth, because the cost for foreigners to see Hepworth is far too high. Thank you very much. --- ## [First Timer Questions](https://forum.livingwitheagle.org/t/first-timer-questions/4773)
**Author:** [@Christy](https://forum.livingwitheagle.org/u/Christy)\ **Replies:** 203\ **Last updated:** [September 23, 2026, 2:47pm UTC](https://forum.livingwitheagle.org/t/first-timer-questions/4773 "2026-09-23T14:47:51Z")
Hello, I’ve been reading a lot about Eagles Syndrome since my Oral Surgeon pointed out that my styloids we’re showing up on my pano x-rays which may be ES. My chronic pain and healing journey started 3 years when sudden… --- ## [Has anyone had a sudden onset of symptoms?](https://forum.livingwitheagle.org/t/has-anyone-had-a-sudden-onset-of-symptoms/24445)
**Author:** [@Sue99](https://forum.livingwitheagle.org/u/Sue99)\ **Replies:** 2\ **Last updated:** [September 23, 2026, 2:47pm UTC](https://forum.livingwitheagle.org/t/has-anyone-had-a-sudden-onset-of-symptoms/24445 "2026-09-23T14:47:31Z")
Eagles In the middle of May this year, I thought I got a pill stuck in my throat. Then I thought I scratched my throat while eating some rather tough snow peas. I have referred ear pain on the right as well. This has ha… --- ## [Compression of the two IJV and unsuccessful surgery in Russia](https://forum.livingwitheagle.org/t/compression-of-the-two-ijv-and-unsuccessful-surgery-in-russia/23637)
**Author:** [@Filya](https://forum.livingwitheagle.org/u/Filya)\ **Replies:** 115\ **Last updated:** [September 23, 2026, 2:42pm UTC](https://forum.livingwitheagle.org/t/compression-of-the-two-ijv-and-unsuccessful-surgery-in-russia/23637 "2026-09-23T14:42:54Z")
Good afternoon, friends! My name is Egor, I am from Russia, I am 38 years old. For many years, I have been suffering from serious health problems, which, as I already believe, are related to compression of the two inter… --- ## [I’m throwing the ball in your court!](https://forum.livingwitheagle.org/t/i-m-throwing-the-ball-in-your-court/24431)
**Author:** [@Rosa](https://forum.livingwitheagle.org/u/Rosa)\ **Replies:** 10\ **Last updated:** [September 23, 2026, 11:19am UTC](https://forum.livingwitheagle.org/t/i-m-throwing-the-ball-in-your-court/24431 "2026-09-23T11:19:55Z")
Good evening! Our daughter had a right side styloidectomy and C-1 shave with Dr Hepworth in June. Preop symptoms drastically improved for several weeks, followed by a slow downward slide. I assumed it was because she nee… --- ## [Newly diagnosed with eagles, symptoms for over a decade](https://forum.livingwitheagle.org/t/newly-diagnosed-with-eagles-symptoms-for-over-a-decade/23911)
**Author:** [@Krixen](https://forum.livingwitheagle.org/u/Krixen)\ **Replies:** 28\ **Last updated:** [September 23, 2026, 11:17am UTC](https://forum.livingwitheagle.org/t/newly-diagnosed-with-eagles-symptoms-for-over-a-decade/23911 "2026-09-23T11:17:20Z")
I have recently been diagnosed with eagles syndrome. I have calcified elongaged styloids on both sides, although my right side is longer. I had a CT angiogram as the final diagnosis by a thoracic outlet specialist, but … --- ## [Eagle Syndrome diagnosis and have surgery scheduled with Dr Annino](https://forum.livingwitheagle.org/t/eagle-syndrome-diagnosis-and-have-surgery-scheduled-with-dr-annino/23821)
**Author:** [@joswan70](https://forum.livingwitheagle.org/u/joswan70)\ **Replies:** 22\ **Last updated:** [September 23, 2026, 11:11am UTC](https://forum.livingwitheagle.org/t/eagle-syndrome-diagnosis-and-have-surgery-scheduled-with-dr-annino/23821 "2026-09-23T11:11:40Z")
Hi there! I actually joined the group a few months ago but have been sitting back and reading discussions while awaiting my appointment. I have had some very helpful conversations with Isaiah\_40\_3. I met with Dr Annino… --- ## [Finally Getting Answers...So Far I'm Just Numb](https://forum.livingwitheagle.org/t/finally-getting-answers-so-far-im-just-numb/23233)
**Author:** [@Kmarty14](https://forum.livingwitheagle.org/u/Kmarty14)\ **Replies:** 27\ **Last updated:** [September 23, 2026, 11:08am UTC](https://forum.livingwitheagle.org/t/finally-getting-answers-so-far-im-just-numb/23233 "2026-09-23T11:08:17Z")
I WASN’T CRAZY. After an entire lifetime of terrible headaches and after 3 years of trying to get somebody, anybody to look at my styloids, today I got an answer. I’d finally decided I was tired of begging and just book… --- ## [Updated venogram](https://forum.livingwitheagle.org/t/updated-venogram/24420)
**Author:** [@Brandy](https://forum.livingwitheagle.org/u/Brandy)\ **Replies:** 11\ **Last updated:** [September 22, 2026, 12:43pm UTC](https://forum.livingwitheagle.org/t/updated-venogram/24420 "2026-09-22T12:43:58Z")
This is the official report, including measurements. --- ## [Neurological form of es](https://forum.livingwitheagle.org/t/neurological-form-of-es/24439)
**Author:** [@Richard123](https://forum.livingwitheagle.org/u/Richard123)\ **Replies:** 3\ **Last updated:** [September 22, 2026, 12:36pm UTC](https://forum.livingwitheagle.org/t/neurological-form-of-es/24439 "2026-09-22T12:36:25Z")
Does anybody have the neurological form of es. Mots of the stories in the site seem to be the vascular form --- ## [ES diagnosis and symptoms](https://forum.livingwitheagle.org/t/es-diagnosis-and-symptoms/24225)
**Author:** [@Mitchmunchies](https://forum.livingwitheagle.org/u/Mitchmunchies)\ **Replies:** 17\ **Last updated:** [September 22, 2026, 12:17pm UTC](https://forum.livingwitheagle.org/t/es-diagnosis-and-symptoms/24225 "2026-09-22T12:17:50Z")
Hi everyone! I’d like to know from everyone how they suspected ES or their doctor suspected ES and what would be symptoms that you didn’t think were related (maybe a resolution of them after surgery)? Thank you! --- ## [Experts for post-OP treatment in Germany](https://forum.livingwitheagle.org/t/experts-for-post-op-treatment-in-germany/24376)
**Author:** [@Sebastian](https://forum.livingwitheagle.org/u/Sebastian)\ **Replies:** 11\ **Last updated:** [September 22, 2026, 3:49am UTC](https://forum.livingwitheagle.org/t/experts-for-post-op-treatment-in-germany/24376 "2026-09-22T03:49:10Z")
Hello everyone, I am a patient from Saxony, Germany, and am currently 4.5 months post-stylectomy. While the surgery itself went well, I am now completely without local post-op care. My main struggle is a severe, pre-exi… --- ## [I'm in Doc Hell and Can't Get Help](https://forum.livingwitheagle.org/t/im-in-doc-hell-and-cant-get-help/24393)
**Author:** [@DawnSue](https://forum.livingwitheagle.org/u/DawnSue)\ **Replies:** 19\ **Last updated:** [September 21, 2026, 9:17pm UTC](https://forum.livingwitheagle.org/t/im-in-doc-hell-and-cant-get-help/24393 "2026-09-21T21:17:12Z")
Timeline first, then maybe you can help me logic out a plan with specific docs. TIMELINE: Age 11 - head injury with LOC for hours and weeks of amnesia. No doc. Broke nose and years later found out I had broken cheekbon… --- ## [Went to the dentist now more pain](https://forum.livingwitheagle.org/t/went-to-the-dentist-now-more-pain/24416)
**Author:** [@petrichorrr](https://forum.livingwitheagle.org/u/petrichorrr)\ **Replies:** 5\ **Last updated:** [September 21, 2026, 6:04pm UTC](https://forum.livingwitheagle.org/t/went-to-the-dentist-now-more-pain/24416 "2026-09-21T18:04:10Z")
Went to the dentist finally to get some fillings done on my lower right side. The first day was bad. The second day not so bad. And now the third day my ear and my styloid/jaw area hurt so much I can’t stand it, I haven’… --- ## [CSF leak after C1 revision](https://forum.livingwitheagle.org/t/csf-leak-after-c1-revision/24363)
**Author:** [@Hamonrye](https://forum.livingwitheagle.org/u/Hamonrye)\ **Replies:** 6\ **Last updated:** [September 21, 2026, 5:51pm UTC](https://forum.livingwitheagle.org/t/csf-leak-after-c1-revision/24363 "2026-09-21T17:51:55Z")
I recently had a C1 shave. Prior to this I suffered from raise compression and what I believe to be a cranial leak, but at the time my neurologist was looking for spinal leak. After C1 shave, I experienced high pressur… --- ## [Could this fit jugular Eagle syndrome? Positional brain fog that improves when lying down or doing intense cardio](https://forum.livingwitheagle.org/t/could-this-fit-jugular-eagle-syndrome-positional-brain-fog-that-improves-when-lying-down-or-doing-intense-cardio/24412)
**Author:** [@cecildelpriore](https://forum.livingwitheagle.org/u/cecildelpriore)\ **Replies:** 12\ **Last updated:** [September 21, 2026, 4:39pm UTC](https://forum.livingwitheagle.org/t/could-this-fit-jugular-eagle-syndrome-positional-brain-fog-that-improves-when-lying-down-or-doing-intense-cardio/24412 "2026-09-21T16:39:20Z")
Hey, what’s going on everyone? I just wanted to share what I’ve been dealing with and see if anyone here has experienced anything similar or has any thoughts. At the beginning of 2024, I made a commitment to start exer… --- ## [Worried about an eventual styloidectomy](https://forum.livingwitheagle.org/t/worried-about-an-eventual-styloidectomy/24317)
**Author:** [@Richard123](https://forum.livingwitheagle.org/u/Richard123)\ **Replies:** 6\ **Last updated:** [September 20, 2026, 5:13pm UTC](https://forum.livingwitheagle.org/t/worried-about-an-eventual-styloidectomy/24317 "2026-09-20T17:13:50Z")
I have been reading on this site for nearly 3 weeks now and there is one thing that worries me a lot. Out of all the people that underwent styloidectomy, seems like only half actually got relief from it. The other hal… --- ## [Need revision/ Costantino, Fargen, Nakaji](https://forum.livingwitheagle.org/t/need-revision-costantino-fargen-nakaji/24260)
**Author:** [@birdie1](https://forum.livingwitheagle.org/u/birdie1)\ **Replies:** 25\ **Last updated:** [September 20, 2026, 3:41pm UTC](https://forum.livingwitheagle.org/t/need-revision-costantino-fargen-nakaji/24260 "2026-09-20T15:41:43Z")
HI, Just an update on my latest journey needing IJV revision. (bilateral decompression, styloidectomy, C1 shave, may 2025 and sept 2025) Costantino: Actually scheduled with hospital in Oct. He was ready to proceed. His … --- ## [I need assistance](https://forum.livingwitheagle.org/t/i-need-assistance/24395)
**Author:** [@Taptap123](https://forum.livingwitheagle.org/u/Taptap123)\ **Replies:** 16\ **Last updated:** [September 20, 2026, 2:08pm UTC](https://forum.livingwitheagle.org/t/i-need-assistance/24395 "2026-09-20T14:08:08Z")
Hi. I have posted little things on here but I feel I need to start fresh with my ES journey. I am self diagnosed but with confirmation of ES from my ENT who I was going to for symptoms. Vocal cord, left side of tongue … --- ## [Surgery decision](https://forum.livingwitheagle.org/t/surgery-decision/24418)
**Author:** [@kiwi](https://forum.livingwitheagle.org/u/kiwi)\ **Replies:** 2\ **Last updated:** [September 20, 2026, 1:39pm UTC](https://forum.livingwitheagle.org/t/surgery-decision/24418 "2026-09-20T13:39:03Z")
So thanks to this wonderful group I was led to doctors who diagnosed with bilateral severe jugular compression (Costantino, Liu, and Annino) I was trying to get surgery with Costantino but my insurance battle has been go… --- ## [Can you review my CTA/CTV?](https://forum.livingwitheagle.org/t/can-you-review-my-cta-ctv/24371)
**Author:** [@emaz](https://forum.livingwitheagle.org/u/emaz)\ **Replies:** 30\ **Last updated:** [September 19, 2026, 7:40pm UTC](https://forum.livingwitheagle.org/t/can-you-review-my-cta-ctv/24371 "2026-09-19T19:40:25Z")
Hi all! I ended up going to the ER last night because my symptoms had escalated so much. They did a cta/ctv but told me that there’s no way that I have eagle. I just did a 3D scan and I believe I have Eagle on my left si… --- ## [Tingling, numbness, burning pain and poor balance ? Have you ruled out Vitamin B6 toxicity?](https://forum.livingwitheagle.org/t/tingling-numbness-burning-pain-and-poor-balance-have-you-ruled-out-vitamin-b6-toxicity/24403)
**Author:** [@Emerald](https://forum.livingwitheagle.org/u/Emerald)\ **Replies:** 6\ **Last updated:** [September 19, 2026, 6:30pm UTC](https://forum.livingwitheagle.org/t/tingling-numbness-burning-pain-and-poor-balance-have-you-ruled-out-vitamin-b6-toxicity/24403 "2026-09-19T18:30:31Z")
Vitamin B6 is commonly found in supplements such as multivitamins, migraine products, nerve health products, and energy drinks. It is often present in amounts that exceed the recommended daily intake, leading to a bui… --- ## [Post-acute sequelae of COVID infection and cerebral venous outflow disorders:](https://forum.livingwitheagle.org/t/post-acute-sequelae-of-covid-infection-and-cerebral-venous-outflow-disorders/24417)
**Author:** [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Replies:** 0\ **Last updated:** [September 19, 2026, 6:25pm UTC](https://forum.livingwitheagle.org/t/post-acute-sequelae-of-covid-infection-and-cerebral-venous-outflow-disorders/24417 "2026-09-19T18:25:12Z")
Thanks to @cecildelpriore for posting this article: Post-acute sequelae of COVID infection and cerebral venous outflow disorders: Overlapping symptoms and mechanisms? - PMC --- ## [Updated Venogram](https://forum.livingwitheagle.org/t/updated-venogram/24394)
**Author:** [@Brandy](https://forum.livingwitheagle.org/u/Brandy)\ **Replies:** 5\ **Last updated:** [September 19, 2026, 8:50am UTC](https://forum.livingwitheagle.org/t/updated-venogram/24394 "2026-09-19T08:50:38Z")
I had my post op venogram done over 2 weeks ago. I do not have a following up with the ordering provider for another few weeks. From what I can gather as a lay person, I now have complete occlusion of my right internal j… --- ## [Elongated styloids in CBCT](https://forum.livingwitheagle.org/t/elongated-styloids-in-cbct/24405)
**Author:** [@Hopee](https://forum.livingwitheagle.org/u/Hopee)\ **Replies:** 6\ **Last updated:** [September 19, 2026, 8:30am UTC](https://forum.livingwitheagle.org/t/elongated-styloids-in-cbct/24405 "2026-09-19T08:30:24Z")
Hello I have been in quite pain, I got my cbct test done and it said i have enlarged styloids around 3.5 and 4cm in length, i am based in india and all doctors are shrugging it off that pain is not due to this because th… --- ## [Making Your Own 3D Images from CT Scan- 3D Slicer Tutorial](https://forum.livingwitheagle.org/t/making-your-own-3d-images-from-ct-scan-3d-slicer-tutorial/988)
**Author:** [@SnappleofDiscord](https://forum.livingwitheagle.org/u/SnappleofDiscord)\ **Replies:** 53\ **Last updated:** [September 18, 2026, 7:52am UTC](https://forum.livingwitheagle.org/t/making-your-own-3d-images-from-ct-scan-3d-slicer-tutorial/988 "2026-09-18T07:52:28Z")
The Amazing 3D Slicer Tutorial! This is a step by step walk-thru for anyone who wants to render or play with their CT scans. I'm going to focus specifically on rendering a model to view the styloids. I'm using Windo… [Next page](https://forum.livingwitheagle.org/latest.md?page=1)