I’m sorry that you’re still suffering with the dizziness and fatigue, it must be horrible 
@Isaiah_40_31 has given you info, I don’t know as much so can’t suggest anything, other than have you been evaluated for POTS? Maybe you might find some of the hEDS info in this discussion by @stoeserm1 & @Snapple2020
New here, hanging on to life by a thread, don’t know where to go next - General - Living with Eagle
I hope that you hear back from Dr Hepworth’s office soon, it seems to be a real hassle getting through to them!
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