# After jugular vein compression surgery, still having problems

**URL:** <https://forum.livingwitheagle.org/t/after-jugular-vein-compression-surgery-still-having-problems/15915>\
**Category:** General\
**Tags:** stories, symptoms, internal-jugular-vei\
**Created:** [April 15, 2024, 6:52pm UTC](https://forum.livingwitheagle.org/t/after-jugular-vein-compression-surgery-still-having-problems/15915 "2024-04-15T18:52:03Z")\
**Posts on this page:** 1\
**Showing post:** 3

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**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [April 16, 2024, 4:30pm UTC](https://forum.livingwitheagle.org/t/after-jugular-vein-compression-surgery-still-having-problems/15915/3 "2024-04-16T16:30:26Z")

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So sorry that after the hunt for someone to help and pushing for surgery that it’s not been enough to help with your husband’s symptoms…  
I agree with @Isaiah_40_31 about the other anatomy which could be causing compressions, and that stenting should maybe be the last resort. If you have copies of your husband’s scans, & if he can get new imaging done otherwise some members have sent their images to Kjetil Larsen at MSK Neurology, here’s a link:  
[Home - MSK Neurology](https://mskneurology.com/)  
He seems to spot things in scans which other radiologists miss!  
The doctor you saw for your husband’s surgery has authored a research paper although we’d not heard of anyone having surgery with him. There’s one other on our list but don’t know much about them so not sure if they’d be any help, or you might have already heard of them:  
Dr. Thierry Ladner, Hospital CHIREC, [https://www.doctoranytime.be/d/stomatologue/ladner-thierry?utm\_source=gmb&utm\_medium=organic&utm\_campaign=profile](https://www.doctoranytime.be/d/stomatologue/ladner-thierry?utm_source=gmb&utm_medium=organic&utm_campaign=profile)  
Hopefully others will chip in as well, but you mention pain at the back of the skull; if there is compression of the IJVs, other veins can swell and take over (collateral veins), so that could perhaps be causing problems and pain. Other members have had issues with the transverse sinuses in the brain

 ![image](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/8/8b4018520093841b7263b8650fa72127897bb4ca.jpeg)  
Here’s a link to one discussion where @KoolDude has talked about compressions of the IJVs, and transverse sinus issues, which might be interesting for you.

> [@Surgery with Hepworth coming up in early May](https://forum.livingwitheagle.org/t/surgery-with-hepworth-coming-up-in-early-may/15891):
>
> It’s been way too long since I updated here. I continuously struggle with balancing increasing pain and muscle spasms that go all the way up to my neck (no good!) from thoracic outlet syndrome from typing and scrolling with researching and keeping up with this and the Facebook group. It’s a no win situation blush My surgery is in just under one month with Dr Hepworth. I did the catheter angio venograms with Dr Fargen toward the end of last year. He found more compression points than expected,…

I hope that your husband is able to find some treatment to help, thinking of you both 🤗

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