Hi,
We have a list of doctors familiar with ES in the Doctors Info Section , here’s a link:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
There are 3 that we’ve been told about in Illinois, you can use the search function on the site too look up any discussions about them… Would your neuro be able to get a CT scan for you, if you could be getting one it might save you some time- preferably with contrast, from the base of the skull down to the hyoid bone.
I hope you can get some help!