# Anyone here with ES and CSF leak? **URL:** \ **Category:** General\ **Created:** [June 6, 2019, 1:05am UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291 "2019-06-06T01:05:31Z")\ **Posts on this page:** 8\ **Page:** 1
**Author:** ![JustBreathe](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/justbreathe/32/2083_2.png) [@JustBreathe](https://forum.livingwitheagle.org/u/JustBreathe)\ **Post date:** [June 6, 2019, 1:05am UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/1 "2019-06-06T01:05:31Z")
Hi everyone, I have been diagnosed with vascular ES (awaiting a surgical date) as well as have a history of CSF (cerebrospinal fluid) leaks. There is a current hypothesis relating vascular ES and insidious/general intracranial hypertension (IIH) due to stenosis of the internal jugular vein from the styloid process, thus reducing venous drainage from the brain. I have seen a couple people mention it on this platform so far and was wondering if anyone else happens to have both, or who have only had the ES surgery and did not have any improvement? It seems like ES is way more prevalent than only 4%-10% of the population and being recognized more and more. Just curious, thanks to everyone sharing their stories. The support here is truly priceless! ---
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [June 6, 2019, 9:16pm UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/2 "2019-06-06T21:16:09Z")
JustBreathe, There are several people on here who currently have ES & a CSF leak. If you want their screen names, I can pass those I remember along to you. ---
**Author:** ![JustBreathe](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/justbreathe/32/2083_2.png) [@JustBreathe](https://forum.livingwitheagle.org/u/JustBreathe)\ **Post date:** [June 6, 2019, 9:52pm UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/3 "2019-06-06T21:52:31Z")
Thanks, no rush. This is such a good global platform and my clinical brain is wondering if there may be more of a connection between the two. Just thought I would throw it out there. Have a lovely summer day 😊 BTW just received my surgical date - August 19th yipeeeeee, so grateful to have it on the calendar! 🙏✨ ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [June 7, 2019, 6:07am UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/4 "2019-06-07T06:07:11Z")
Great to have a date! Hope that the time passes quickly for you…will make a note of it! ---
**Author:** ![sjlash](https://avatars.discourse-cdn.com/v4/letter/s/5e9695/32.png) [@sjlash](https://forum.livingwitheagle.org/u/sjlash)\ **Post date:** [July 30, 2019, 11:36pm UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/5 "2019-07-30T23:36:03Z")
Still on for August 19th? Can’t remember - where are you having your surgery? ---
**Author:** ![JustBreathe](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/justbreathe/32/2083_2.png) [@JustBreathe](https://forum.livingwitheagle.org/u/JustBreathe)\ **Post date:** [July 31, 2019, 1:24am UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/6 "2019-07-31T01:24:40Z")
Hello @sjlash, Thanks for thinking of me. Yes, I am still on for the 19th in Denver 😂 How are you? Forgive me but I can’t recall if you have had ES surgery? ---
**Author:** ![sjlash](https://avatars.discourse-cdn.com/v4/letter/s/5e9695/32.png) [@sjlash](https://forum.livingwitheagle.org/u/sjlash)\ **Post date:** [July 31, 2019, 1:52am UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/7 "2019-07-31T01:52:32Z")
No worries! I just had my second surgery 7/15. My first was 1/7. Here is the link, in case anything in it helpful to you: > [@My Eagle Journey and Surgery](https://forum.livingwitheagle.org/t/my-eagle-journey-and-surgery/4597): > > As reading other people’s stories has been so helpful to me, I thought I should share my story as well. In the spring of 2008, I had dental x-rays taken at my 6-month cleaning. The dentist noticed a long stick-like shadow on each side of my neck. As this perplexed him, he wanted a second opinion, so he sent me to another dentist for a Panoramic x-ray. Both of the long, stick-like shadows were even more visible and essentially identical. After much discussion, they concluded the structures i… ---
**Author:** ![JustBreathe](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/justbreathe/32/2083_2.png) [@JustBreathe](https://forum.livingwitheagle.org/u/JustBreathe)\ **Post date:** [August 1, 2019, 10:03pm UTC](https://forum.livingwitheagle.org/t/anyone-here-with-es-and-csf-leak/5291/8 "2019-08-01T22:03:48Z")
Wow, you have been through so much. Thank you for sharing your story and still supporting so many on this platform, a true blessing! I wish you complete healing and great expectations for what is yet to come in your fabulous life! Have a lovely day 🍉🍓🍒