I’m so sorry that you’ve been dismissed by all these doctors, it’s so crazy when you have a CT showing elongated styloids and calcified ligaments, and symptoms explained by ES- unfortunately we do hear of doctors, even some who have done successful surgeries for some members, who have a fixed idea of one or two symptoms which you must have or it’s not ES!
It does sound as if you might have to accept travelling out of state, although @Katflorida has suggested Dr Bruce Haughey in this discussion:
Anyone have experience with Dr. Rui Fernandes or Dr. Anthony Bunnell in Jacksonville, Florida? - General - Living with Eagle
Not sure who you’ve seen so far! Hoping you get somewhere soon, we do suggest sometimes that members print out research papers which support your symptoms, which might give you the confidence to argue your case, or otherwise do you have someone who could go with you to advocate for you? 
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