Oh boy, I am so so sorry to hear this.
Okay, how to move forward.
Below is the doctor list from a FB page for jugular venous outflow disorders which has a good moderator. That may be a place for you to find further information as well. I hope this is helpful. I have worked with Dr. Annest (Denver 
) who partners with Dr. Hepworth on his ES surgeries. Dr. Annest is a pioneer in vascular surgery (and the surrounding soft tissue) and people fly in to see him from all over.
You are such an amazing person, you will move past this but it will take some additional work. I am relieved to hear you are on blood thinners, they have always helped me. Please stay on this forum…we are here for you! Be well 
Baltimore, Maryland
-Dr. Ferdinand Hui (Neurointerventional radiology [NIR] - Cerebrovascular)
-Dr. Peter Vosler (Otolaryngology - styloid surgery)
-Dr. Sheng Fu “Larry” Lo (Neurosurgery - C1)
Sacramento, California
-Dr. Ji (NIR - cerebrovascular)
-Dr. Jian (Neurosurgery - C1 & styloids)
Phoenix, Arizona
-Dr. Peter Nakaji (Neurosurgery - C1 and styloids)
-Los Angeles, California
-Dr. Kenneth Liu (NIR - Cerebrovascular)
Manhasset, New York
-Dr. Athos Patsalides (NIR - Cerebrovascular)
Denver, Colorado
-Dr. Stephen Annest (NIR - Cerebrovascular) Vascular Institute of the Rockies
Salem, North Carolina
-Dr. Kyle Fargen (NIR - Cerebrovascular)