Bilateral Intraoral post op 6mo

Hi Dannib,

I want to reinforce what Jules said about nerve pain meds taking time to help. It can take some “tweaking” of the dose of the meds as well as some weeks to figure out what type works best. A knowledgeable doctor will start you on a low dose that may not work well then gradually increase it over weeks so your body can get used to it w/o bad side effects. At some point it may reach a level where it works well for you. Also as Jules said, there are several types of nerve pain meds & some work better for a given person than others. The two main categories of nerve pain meds are anti-convulsants (anti-seizure meds) & anti-depressants. I completely understand your need to be mentally clear so you can care for your child. That is definitely a priority. When you move, seeing a neurologist might be helpful to pinpoint where your pain is originating.

Regarding your surgery - if you have constant headaches that are possibly coming from vascular compression, then most likely, you will need to revisit the styloid situation. Intraoral surgery has been helpful for many of our members but in cases where vascular compression (usually internal jugular vein(s) is involved, external surgery is necessary as the styloids cannot be cut back as close to the skull base w/ intraoral surgery as they can be w/ the external type, thus, the IJV(s) continue to be compressed. There is quite a bit of information on our forum about IJV compression & it’s symptoms.
Intraoral surgery often doesn’t allow for removal of calcified stylohyoid ligaments so if you’re feeling pain where the ligaments would be, it’s possible some part of those were left behind, too. Bottom line is that once you’re settled in Maine, try to get a new CT scan w/ contrast & w/ your head in the position(s) that make your headache & other symptoms worse. This can help reveal if the styloids or s-h ligaments are pressing on vascular tissues that may be contributing to your symptoms.

Dr. Annino in MA is the closest ES doc to Maine on our Doctors List. You may be able to get a Telemed consult w/ him w/o having to travel to MA. The types of doctors who usually know about & potentially deal w/ ES are skull based ENT surgeons, Maxillofacial surgeons, Head & Neck surgeons, some vascular surgeons & neurosurgeons.

I hope you’re able to find a solution for your pain, even temporarily, till you get moved & can research further. :pray: :heart: