Yes thank you all
Feeling confident in the doctor you chose is vital. I’m glad you found someone you believe will help you. I’m sure evening shortening your styloid process a bit will help.
Sorry for the delayed response on this - I haven’t had a chance to keep with the group. I didn’t get to see the doctor I had an appointment with in the end - My appointment was delayed until last week but when I arrived, the system was down and I couldn’t see the specialist. I got to have a quick chat with another doctor, but it was difficult as they weren’t able to access my files. Typically on that day I had no symptoms and was told there was nothing that they’d be willing to do as they’d be worried about nerve damage. He also said that the boney lumps in my throat are not styloid but hyoid. Feels like a real disappointment for the 5 months wait. This week its all flared up again and its getting me down - @Anash1966 what was the name of the specialist you saw? Did you discuss possible options for relieving symptoms?
Mafre -
How FRUSTRATING! I’m sorry you had to wait so long to basically be turned away. You’d think they’d do something to accommodate your original appt. like reschedule you much sooner. I know the medical system is different in the UK than in the US, but I would have made a fuss it had been me (also realizing that the system being down wasn’t the doctors’ or their staffs’ fault)!
I don’t recall if you’ve had a CT scan to check for ES, & I don’t know the experience of the doctor you talked to, but w/o a CT scan, I’m not sure the hyoid bone could be fully differentiated from calcified stylohyoid ligaments just from the type of exam he did. Since I’m not a doctor, I could also be very wrong about this.
I hope you’re able to get a second opinion appt from another doctor very soon.
Hi I saw doc Saunders. He is giving me a steroid injection in my on 29th May. If this does not work out then an operation orally to take out my ride sided styloid x x good luck Mafre
Shame you have to keep waiting, but hope that you get surgery eventually!
Where will they inject? Has anyone had success with the shot? I really hope it gives you relief!
The injections are usually in the tonsillar fossa area, but occasionally doctors do it differently. Some members have had good results, but it doesn’t help everyone.
This is the place I’m having my injection. I’m sure it’s more like a tick list. We will give you an injection then if this doesn’t work we will proceed with the operation. I’ll give it a try. It will be better than being in pain I’m sure.
Yes I had a ct scan in 2017 which was how I was diagnosed with ES. I keep on getting different information from different doctors dentists - from styloid to hyoid to it’s all in my head. Really frustrating. @Anash1966 Are you seeing doc through NHS or privately?
NHS Mafre x
Ok that’s reassuring
Mafre
I had my surgery last Wednesday interoral all went well. .Mr Saunders from st Michaels hospital Bristol gave me a steroid injection as well. The pain has been horrendous. The pain killers have been changed to more powerful ones. I’m healing well x x
Thinking of you- inta-oral can be more painful than external. Hope you soon feel the benefits of surgery soon & that the steroids & painkillers help. God bless …
Hi Mafre, I had the same problem which got worse over a short period of time. My calcified process was growing into my throat and used to make me gag and sometimes my food would get stuck. In the end I started to change my diet and avoid certain foods. I had my styloidectomy last July.
Glad to hear the surgery went well. Sorry to hear you’re in a lot of pain and hope that will settle down for you soon.
Please keep us updated on your progress. Is it a soup and smoothie diet while your throat heals?
Is there a sense of it feeling better despite the pain?
That sounds like it was really uncomfortable. Is it noticeably better since surgery? Weirdly, I think because I’ve had this protrusion in my throat for so long, my gag reflex is pretty tolerant - not something I thought I’d ever be writing down at any point in my life but my dentist seems impressed.
Hi Mafre,
Interesting side effect of ES - a reduced gag reflex. It makes sense though in light of the feeling of a bone stuck in your throat over the long term. I hope you’re able to get that bone removed soon!
I can feel the bone in my throat with my finger, it freaks me out. And OUCH!!
Hi Mafre, I did have some initial problems following surgery. However, my swallowing improved. It’s only the past few days that I’ve noticed that I’m finding it difficult when swallowing a tablet. I think the right side is now playing up. As I write this I am now in hospital with weird symptoms, mainly to the right side of my face. My left side had to be removed because it started giving me unbearable swallowing problems, I would also gag a lot. Take care.