We have had some members who have been turned away by Dr Nakaji unfortunately, & he does seem to be reluctant to treat patients with MCAS. We’ve heard mixed things about what testing he needs to see to consider taking on a patient too; some have been asked to get a dynamic CT venogram pressure testing manometry beforehand, some asked to travel there and have the testing done with Dr Mehta who he works with, so that would be quite invasive to have done if he might not take on your daughter’s case?
Here’s a link to @jyoti 's post about being turned down by Dr Nakaji;
NGL slightly triggered by all the posts about people getting diagnosed 2-3 years in… I’m at a decade and a half - General - Living with Eagle
You could get in touch with Dr Costantino otherwise, I don’t know if his waiting lists are any shorter?
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