# Considering going to Dr. Liu after failed styloidectomy on left side

**URL:** <https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174>\
**Category:** General\
**Tags:** stories, treatment, internal-jugular-vei\
**Created:** [May 26, 2026, 12:38pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174 "2026-05-26T12:38:27Z")\
**Posts on this page:** 18\
**Page:** 1

<div class="post-metadata">

**Author:** ![harrisonboy](https://avatars.discourse-cdn.com/v4/letter/h/df705f/32.png) [@harrisonboy](https://forum.livingwitheagle.org/u/harrisonboy)\
**Post date:** [May 26, 2026, 12:38pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/1 "2026-05-26T12:38:27Z")

</div>

Here are images from one of the CT’s. The left side was removed by Dr. Hepworth in 2024, but I actually got much worse after the surgery. He recommended stints, but I refused those because of the failure rate. I am almost completely homebound and unable to do anything. I am considering one more try to see if this can be fixed.

 ![Screenshot20260526183309OneDrive](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/3/38e2862ffafc1c381e4d21abb18c9c128fb07573.jpeg)  
 ![Screenshot20260526183254OneDrive](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/5/59fd9932aecbd9d317cff006558b042bf7e6ff7b.jpeg)  
 ![20260527093048](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/9/98aa4db5280732c8684c2de0a5c7ca3d747783bd.jpeg)  
 ![20260527094119](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/7/7624303a48aba9ee4b14f5f21c8c03de3cadcee8.jpeg)  
 ![Screenshot20260527174858Yahoo Mail](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/2/23eeb3d066b47c40ea42c9fab19fc43d8801fdb0.jpeg)  
 ![Screenshot20260527174831Yahoo Mail](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/0/05e34a737a8c60bef1e49c998107b1aee8fc98ef.jpeg)

---

<div class="post-metadata">

**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [May 26, 2026, 5:53pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/2 "2026-05-26T17:53:54Z")

</div>

I’m sorry that you’re so much worse, & I agree that stents should be an absolute last resort…  
I can’t see any images though, have you been unable to attach them?

---

<div class="post-metadata">

**Author:** ![harrisonboy](https://avatars.discourse-cdn.com/v4/letter/h/df705f/32.png) [@harrisonboy](https://forum.livingwitheagle.org/u/harrisonboy)\
**Post date:** [May 26, 2026, 8:41pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/3 "2026-05-26T20:41:51Z")

</div>

No, I was unable to see how to attach the images.

Someone replied to your post.

> ![](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/45/404_2.png "Jules") | [Jules](https://forum.livingwitheagle.org/u/jules)  
> May 26 |
> 
> - | - |

I’m sorry that you’re so much worse, & I agree that stents should be an absolute last resort…  
I can’t see any images though, have you been unable to attach them?

---

<div class="post-metadata">

**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\
**Post date:** [May 26, 2026, 9:35pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/4 "2026-05-26T21:35:54Z")

</div>

@harrisonboy - to attach images you can either drop & drag them into the text box from your computer desk top, or you can upload them using the underlined up-arrow at the top of the text box when you write your next post. Please let me know if one of those approaches doesn’t work for you.

---

<div class="post-metadata">

**Author:** ![Chrickychricky](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/chrickychricky/32/15581_2.png) [@Chrickychricky](https://forum.livingwitheagle.org/u/Chrickychricky)\
**Post date:** [May 27, 2026, 1:08pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/5 "2026-05-27T13:08:48Z")

</div>

@harrisonboy do stents have a high failure rate after decompression surgery? I know they do prior to decompression.

---

<div class="post-metadata">

**Author:** ![harrisonboy](https://avatars.discourse-cdn.com/v4/letter/h/df705f/32.png) [@harrisonboy](https://forum.livingwitheagle.org/u/harrisonboy)\
**Post date:** [May 27, 2026, 2:59pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/6 "2026-05-27T14:59:01Z")

</div>

Yes. Dr. Fargen has written about the issues with the stints. Even after surgery, as in my case, I have severe compression and the stints are not designed for the jugular but for other parts of the body and they can collapse under the pressure and cannot be removed later. It can work, but I have a friend who had stints in both sides, and they both are migrating after they collapsed. There is nothing they can do to help her.

---

<div class="post-metadata">

**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [May 27, 2026, 9:41pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/7 "2026-05-27T21:41:23Z")

</div>

Your poor friend, it is a worry having these done…

---

<div class="post-metadata">

**Author:** ![Jwshackel](https://avatars.discourse-cdn.com/v4/letter/j/bb73d2/32.png) [@Jwshackel](https://forum.livingwitheagle.org/u/Jwshackel)\
**Post date:** [May 28, 2026, 3:07am UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/8 "2026-05-28T03:07:42Z")

</div>

Hi, I am so sorry the surgery failed. Have you also considered Dr. Costantino? From your images, it looks like the C1 transverse process is a big part of the compression, and I know Dr. Costantino takes that much more seriously and resects a larger section instead of just shaving. Best of luck with everything!  
Oh, and Dr. Costantino has a really good video explaining it all which I found posted here (thanks to the original person who posted, I found it very helpful!)

Anyway, here is that video: [https://www.youtube.com/watch?v=1xFzBp0oHwA&t=648s](https://www.youtube.com/watch?v=1xFzBp0oHwA&t=648s)

---

<div class="post-metadata">

**Author:** ![harrisonboy](https://avatars.discourse-cdn.com/v4/letter/h/df705f/32.png) [@harrisonboy](https://forum.livingwitheagle.org/u/harrisonboy)\
**Post date:** [May 28, 2026, 11:14am UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/9 "2026-05-28T11:14:03Z")

</div>

He was the first person talked with when this started years ago. He said i had the worst case he had ever seen and he was afraid to do surgery on me because he thought I also may have a spinal csf leak. He said surgery would make me worse and I did get much worse after the surgery with Hepworth. I don’t know if I have a csf leak or not. I have been everywhere and I am near bead bound now. I have sent everything to Dr. Liu because I am believing I need a neurosurgeon to look at not only VES but also my neck and spine.  
Thanks

---

<div class="post-metadata">

**Author:** ![Jwshackel](https://avatars.discourse-cdn.com/v4/letter/j/bb73d2/32.png) [@Jwshackel](https://forum.livingwitheagle.org/u/Jwshackel)\
**Post date:** [May 28, 2026, 2:14pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/10 "2026-05-28T14:14:39Z")

</div>

That makes a lot of sense and it sounds like Dr. Liu is a great person to help sort it all out. I also know Dr. Jenkins in NYC looks into both CCI and jugular vein compression and have heard good things about him as well (just in case you want a third opinion). Dr. Jenkins office does telehealth and will look at all your images for a very reasonable fee. (I think $250).

I hope you can get this all sorted out - it is so complex and hard!

---

<div class="post-metadata">

**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\
**Post date:** [May 30, 2026, 6:50pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/11 "2026-05-30T18:50:49Z")

</div>

@Jwshackel - Thank you for sharing Dr. Jenkins name w/ @harrisonboy. His struggle for help has gone on for a long time now. Hopefully he’s on the right track for a solution now either from Dr. Liu or Dr. Jenkins or maybe a bit from both!

---

<div class="post-metadata">

**Author:** ![harrisonboy](https://avatars.discourse-cdn.com/v4/letter/h/df705f/32.png) [@harrisonboy](https://forum.livingwitheagle.org/u/harrisonboy)\
**Post date:** [May 31, 2026, 12:42pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/12 "2026-05-31T12:42:05Z")

</div>

I have submitted everything to Dr. Liu for review. I am unsure how long it takes for a consultation, but I know he is only available one day per week to look at records, office visits, consultations. I have spoken to people who he has completed surgery on and they have indicated he is very knowledgeable and looks deeper than most ENT’s for causes. I am also providing a link where he diacusses his appeoach and shows actual cases he has solved. Hopefully this will help other. I believe his lecture starts at 16:30 of this video. [https://www.youtube.com/live/nGFDx88RvnM?si=ZaqIaa-AsqnMDnwg](https://www.youtube.com/live/nGFDx88RvnM?si=ZaqIaa-AsqnMDnwg)

---

<div class="post-metadata">

**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [May 31, 2026, 2:02pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/13 "2026-05-31T14:02:51Z")

</div>

Thank you for sharing that info, I’ve added the link to the doctors list!

---

<div class="post-metadata">

**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\
**Post date:** [May 31, 2026, 5:42pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/14 "2026-05-31T17:42:50Z")

</div>

I’m glad you-'ve gotten everything sent to Dr. Liu, @harrisonboy. I hope you hear back from him sooner than you might expect.

I watched Dr. Liu’s video presentation & was impressed by his knowledge & intrigured by his comparison of two approaches to IJV decompression + his explanation of why he prefers one over the other. With this knowledge of how he approaches the surgery, I hope he will take you on as his patient so that you can benefit from his expertise in doing successful styloidectomy/IJV decompression surgeries.

---

<div class="post-metadata">

**Author:** ![k.p.c](https://avatars.discourse-cdn.com/v4/letter/k/22d042/32.png) [@k.p.c](https://forum.livingwitheagle.org/u/k.p.c)\
**Post date:** [October 21, 2026, 10:20pm UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/15 "2026-10-21T22:20:58Z")

</div>

Have any more folks worked with Dr Jenkins? Curious about him but don’t see much here when I search. Is he newer to ES surgery?

---

<div class="post-metadata">

**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\
**Post date:** [October 22, 2026, 1:43am UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/16 "2026-10-22T01:43:56Z")

</div>

I’m sorry we don’t have more information about Dr. Jenkins. Perhaps @Jwshackel ended up seeing him & can give some input.

---

<div class="post-metadata">

**Author:** ![Jwshackel](https://avatars.discourse-cdn.com/v4/letter/j/bb73d2/32.png) [@Jwshackel](https://forum.livingwitheagle.org/u/Jwshackel)\
**Post date:** [October 22, 2026, 2:21am UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/17 "2026-10-22T02:21:57Z")

</div>

Thanks for tagging me! We saw one of Dr Jenkins PAs for a consult. He said Dr Jenkins usually refers to Dr Costantino for jugular vein de-compression surgery if he feels it’s needed. They do work out of the same office and it sounds like they try to coordinate care if a person needs both CCI and jugular vein decompression surgery. My understanding is Jenkins does not do stand alone decompression surgery on his own. But, please verify all my information as I am not positive. I do know someone else who is working with Dr Jenkins for CCI surgery and she says he is amazing. Best of luck!

---

<div class="post-metadata">

**Author:** ![k.p.c](https://avatars.discourse-cdn.com/v4/letter/k/22d042/32.png) [@k.p.c](https://forum.livingwitheagle.org/u/k.p.c)\
**Post date:** [October 22, 2026, 3:10am UTC](https://forum.livingwitheagle.org/t/considering-going-to-dr-liu-after-failed-styloidectomy-on-left-side/23174/18 "2026-10-22T03:10:12Z")

</div>

Thank you! That was the impression I was getting after watching the YouTube video posted recently and digging around here.
