# Cracking sounds when laying on bed
**URL:** https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935
**Category:** General
**Created:** [April 18, 2024, 8:51pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935 "2024-04-18T20:51:34Z")
**Posts on this page:** 20
**Page:** 1
### Author:  [@Eli](https://forum.livingwitheagle.org/u/Eli)
#### Post date: [April 18, 2024, 8:51pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/1 "2024-04-18T20:51:34Z")
started Pregabalin last night again , after only taking it gfor 2 weeks months ago
I feel awful , worse than yesterday . Can feel more every grinding , movement and popping /crackling sound in head ( assuming has to be the neck ) . Has anyone experienced cracking, popping zapping sounds that feel that they are coming from their head as a symptom in general w calcified ligaments that they after they happen severa times they become a headache? could it be coming from the stylois or ligaments or its def a neck or tmj issue? Thank you , this is no fun
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### Author:  [@Susinc](https://forum.livingwitheagle.org/u/Susinc)
#### Post date: [April 19, 2024, 1:41pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/2 "2024-04-19T13:41:04Z")
My head and neck sound like a musical instrument sometimes! Lots of noise, and, sorry to say, lots of pain.
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### Author:  [@Jules](https://forum.livingwitheagle.org/u/Jules)
#### Post date: [April 19, 2024, 1:45pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/3 "2024-04-19T13:45:54Z")
Crunching in the neck isn’t necessarily ES, and isn’t necessarily anything serious, it can be air trapped in the joints, or tight tendons rubbing. There are lots of articles online about when to be concerned:
[When Neck Cracking Needs Medical Attention | Spine-health](https://www.spine-health.com/conditions/neck-pain/when-neck-cracking-needs-medical-attention)
The headache may be that tight tendons are causing a tension headache?
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### Author:  [@Skatkat](https://forum.livingwitheagle.org/u/Skatkat)
#### Post date: [April 20, 2024, 2:52pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/4 "2024-04-20T14:52:29Z")
I get this, one of my very first symptoms was whenever I led down I would get lots of popping sounds from my nose. Then it was my throat, a bit like popping bubbles or something. Then over a few months I started to get more of a creaking noise (a bit like an frog) but feels like a door creaking open, along with the popping, all from the throat area at the front rather than the back of the neck. Now the popping bubbles sound isn’t so frequent, but the creaking noise is worse. Sometimes the muscles at the front twang when I turn my neck. I have heard that this could be acid reflux which I intend to talk to my doctor about next week, but the creaking noise sounds more mechanical than reflux if that makes sense.
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### Author:  [@Eli](https://forum.livingwitheagle.org/u/Eli)
#### Post date: [April 21, 2024, 9:00pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/5 "2024-04-21T21:00:59Z")
hi@skatkat thanks . yeah i think might have acid refkux but doubt that it would cause grinding
im scheduled for a ph test but doubt ill do it since in so much pain
please lemme kmow what you find out
thank you !
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### Author:  [@Eli](https://forum.livingwitheagle.org/u/Eli)
#### Post date: [April 22, 2024, 1:11am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/6 "2024-04-22T01:11:30Z")
@jules
thank you for your reply. im feeling awful. the grinding and poking is bad and dense almost like something is disintegrating.I had scheduled a face to face visit w Constantio , I know he doesnt have Telehealth till may 16th but im feeling awful , so not sure I can take a plane to ny in my condition
I also can’t stop spitting thick salivation this so uncomfortable ;/
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### Author:  [@Skatkat](https://forum.livingwitheagle.org/u/Skatkat)
#### Post date: [April 22, 2024, 6:19am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/7 "2024-04-22T06:19:24Z")
Will do, I do have slightly long styloid processes (Right 36mm and left 32mm) and the ligament has discontinuous calcification both sides. I saw Dr Jonathan Hughes in London but he wasn’t concerned about it and wasn’t convinced that it was causing my symptoms. Sometimes mines worse when I’ve been looking down a lot, especially if I tuck my chin. Most of the time I feel as though the front of my neck is collapsing inwards and on really bad days I get a choking feeling and a lots of tightness. I’ve had a lots of different tests, scans, etc but nothing significant has shown so far, nothing that corresponds with what I’m feeling. It’s been going on for over two years now.
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### Author:  [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)
#### Post date: [April 23, 2024, 12:48am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/8 "2024-04-23T00:48:37Z")
@Skatkat - I’m sorry Mr. Hughes didn’t think the ligament calcification could be a significant cause of at least some of your symptoms. I would be willing to wager it is because those calcified sections are tethering your ligaments which means they can’t move freely as they’re meant to thus neither can your hyoid bone. These problems all add up to symptoms of pain & possibly the other sensations you’re experiencing.
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### Author:  [@Skatkat](https://forum.livingwitheagle.org/u/Skatkat)
#### Post date: [April 23, 2024, 5:56am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/9 "2024-04-23T05:56:06Z")
I think so too, I’m wondering whether to get a second opinion…
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### Author:  [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)
#### Post date: [April 23, 2024, 6:28am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/10 "2024-04-23T06:28:51Z")
I absolutely think you should get a second opinion. Mr. Hughes is in the limelight at the moment because he has helped & is helping a number of our UK members, however, we do have several who clearly have ES symptoms whom he has turned away.
I’m not sure who else to refer you to, but there are other doctors in England who have helped members in the past. Here’s the link to the Doctors List so you can make some contacts:
> [@Doctor Lists -- no discussion](https://forum.livingwitheagle.org/t/doctor-lists-no-discussion/10245/2):
>
> DOCTORS OUTSIDE THE US WHO HAVE HELPED SOME OF OUR MEMBERS FIND SOLUTIONS TO EAGLES OR WHO SOME OF OUR MEMBERS HAVE HEARD OF. [US list here.](https://forum.livingwitheagle.org/t/doctor-lists-no-discussion/10245/1) The list is not exhaustive. The intent is to provide a starting point for those of us looking for solutions. THESE ARE NOT RECOMMENDATIONS! Some of these doctors have worked for some members, but not others. Please use your own judgement when determining which doctor to use. Australia: •Dr Andrew Salmon, University of Newcastle, University Drive, Callagh…
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### Author:  [@BabzieAM](https://forum.livingwitheagle.org/u/BabzieAM)
#### Post date: [April 25, 2024, 9:48am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/11 "2024-04-25T09:48:55Z")
Have you tried Patrick Axon in Cambridge… he’s the other UK consultant that operates? He’s at Addenbrooks (NHS) & Spire (private).
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### Author:  [@Skatkat](https://forum.livingwitheagle.org/u/Skatkat)
#### Post date: [April 25, 2024, 12:49pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/12 "2024-04-25T12:49:48Z")
Not yet but I’m thinking to get a second opinion from him. I heard that Mr Hughes was a bit more helpful, but not really in my experience.
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### Author:  [@BabzieAM](https://forum.livingwitheagle.org/u/BabzieAM)
#### Post date: [April 25, 2024, 1:06pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/13 "2024-04-25T13:06:59Z")
I’ve heard Hughes can be hit and miss, but Axon more reliable. I don’t know though. I see Hughes Monday and am very nervous he won’t agree to operate on me. I’m housebound with symptoms, bilateral 4.6cm styloids, trying to work and look after 3 children. It he doesn’t help me I think I will actually have a breakdown. I’m finding the 3 week wait very stressful!! I’m on the NHS list for Axon, but it’s apparently very long!
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### Author:  [@Jules](https://forum.livingwitheagle.org/u/Jules)
#### Post date: [April 25, 2024, 3:32pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/14 "2024-04-25T15:32:45Z")
Mr Axon has changed the criteria for who he will operate on, @Warrick posted some good info about that recently, he will only do surgery for certain symptoms, so for @Skatkat it might be worth checking that out…I’ll see if I can find Warwick’s post!
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### Author:  [@BabzieAM](https://forum.livingwitheagle.org/u/BabzieAM)
#### Post date: [April 25, 2024, 4:16pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/15 "2024-04-25T16:16:19Z")
Oooh I’ll have to try to find this post @Jules! I’m on his urgent waiting list and would be interested to know if I stand a chance. Thanks.
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### Author:  [@Jules](https://forum.livingwitheagle.org/u/Jules)
#### Post date: [April 25, 2024, 4:37pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/16 "2024-04-25T16:37:09Z")
> [@UK surgeons](https://forum.livingwitheagle.org/t/uk-surgeons/15848/3):
>
> Dr Axon has specific criteria, enforced upon him, so difficult to tell if he really believes in the criteria he sets or just has to stick to those rules.
>
> He says you must have Classic eagles symptoms, and did seem a little dismissive of Vascular eagles. By classic symptoms, you need Whooshing pulsatile tinnitus. I thought I had pulsatile tinnitus, but not by his definition apparently. He also expects you to have a sharp dagger like pain under jaw up into ear, or under tongue.
>
> His definition of vascular eagles is compression of the carotid arteries NOT the jugular veins.
Warwick said this in a recent discussion…
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### Author:  [@BabzieAM](https://forum.livingwitheagle.org/u/BabzieAM)
#### Post date: [April 25, 2024, 6:01pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/17 "2024-04-25T18:01:15Z")
Oh wow so this may or may not get me seen! I have bad tinnitus and some pain from behind my ear down my jaw on one side only. Most of my symptoms are vascular! I just hope Hughes will accept me next week then!!! I’m starting to really worry.
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### Author:  [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)
#### Post date: [April 26, 2024, 2:46am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/18 "2024-04-26T02:46:33Z")
@BabzieAM - Nothing ventured, nothing gained (I’m not saying this tritely). It’s worthwhile seeing Mr. Axon when you can get an appointment with him & especially if your appt. w/ Mr. Hughes doesn’t go well. I think being very clear about how debilitating your symptoms are can be helpful & also a discussion that it’s not just the length of the styloids but also can be angle of growth, thickness, etc. that can influence symptoms. Mr. Hughes, I believes knows that so if he is dismissive you can bring it up, but I hope it won’t be necessary.
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### Author:  [@BabzieAM](https://forum.livingwitheagle.org/u/BabzieAM)
#### Post date: [April 26, 2024, 8:18am UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/19 "2024-04-26T08:18:29Z")
Thank you. I have styloid size in my favour… they’re at least 4.6cm each and pretty thick. I only have a 3d CBCT scan at the moment and the gap between them and my cervical vertebrae looks OK, but I have some classic ES and a huge list of Vascular ES symptoms. I probably have a good case, but until I know, my anxiety is bad. I’ll post after I’ve been Monday.
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### Author:  [@PatientD](https://forum.livingwitheagle.org/u/PatientD)
#### Post date: [April 28, 2024, 12:32pm UTC](https://forum.livingwitheagle.org/t/cracking-sounds-when-laying-on-bed/15935/20 "2024-04-28T12:32:55Z")
Hi, I read above chat & wanted to add that based on my own experience I think that some of these strange/abnormal sensations described may be due to the “vestibular” system. We all know about how our ears can “pop” with altitude changes on a plane. I have had that happen just when walking during my Ill health journey. But I think the pressure systems in our body are much more comprehensive and widespread than that and that many of these strange/abnormal sensations are due to the pressure systems in our body. We know that JVs collapse due to pressure changes when we are upright if we are normally healthy so that’s a known fact that body pressure systems are not just in our ears (eg. On aeroplane). My body is still adapting 9 months post op & as I write this front of neck feels like it is being “sucked inwards”. While it is disconcerting to have these sensations I try to comfort myself that is my body trying to work things out, it is not necessarily causing any harm and I hope in time body will work out how to be “normal” again. But it’s a tough ask as pressure system is subject to positional, altitude & other changes. Of course for members who still have compressions pre op the situation will be more serious. Sharing in case is reassuring on topic of strange sensations. Take care. D
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