US Doctors Familiar With Eagle Syndrome 2019:
THIS IS A LIST OF DOCTORS WHO HAVE HELPED SOME OF OUR MEMBERS FIND SOLUTIONS TO EAGLES OR WHO SOME OF OUR MEMBERS HAVE
HEARD OF. The list is not exhaustive. The intent is to provide a starting point for those of us looking for solutions. THESE ARE NOT RECOMMENDATIONS! Some of these doctors have worked for some members, but not others. Please use your own judgement when determining which doctor to use.
Alabama:
•Dr Joseph Brigance, 201 Whitesport Dr SW, Huntsville, AL 35801, (256) 881-5353, http://www.entofhuntsville.com
Alaska:
•Dr Donald Endres, ENT/ Head & Neck Surgeon. Geneva Woods ENT Associates, Inc., 3730 Rhone Cir # 203, Anchorage. 907- 563- 3515
Arizona:
•Dr John Milligan, Arizona Otolaryngology Consultants, Phoenix 602- 264 -4834, http://www.aocphysicians.com (another possible doctor there is Dr Peter Weisskopf, Neurology)
•Dr. Peter Nakaji, 755 East McDowell Rd., Phoenix, AZ, 602-521-3201, Works w/ vascular ES
https://doctors.bannerhealth.com/provider/Peter+Nakaji/1103456?y_source=1_MTQ4NjU5MDktNzE1LWxvY2F0aW9uLndlYnNpdGU%3D
•Dr. Michael T. Lawton, Barrow Neurological Institute, 2910 North 3rd Avenue, Phoenix, AZ,
(602) 406-3181 https://www.barrowneuro.org/person/michael-lawton-md/
California:
•Dr Hussein Samji, Camino ENT Clinic, San Jose 408- 227- 6300 http://www.caminoent.com/professionals/drhussein-samji-camino-ent.html (one of the most experienced ES surgeons in the US, does external surgery.) Contact his medical assistant Yerelin@caminoent.com for a faster response.
•Dr. Edward Joseph Damrose, 801 Welch Rd, Palo Alto, CA 1-650-723-5281 https://stanfordhealthcare.org/doctors/d/edward-damrose.html?ecid=glocalsearch-ls-google-doctor-all-EdwardJDamrose
•Dr William Lewis, ENT of Los Gatos, Los Gatos 408- 395- 6121
•Dr. Karuna Dewan, 801 Welch Rd, Palo Alto, CA (650) 723-5281 (Did surgery for Hyoid Bone Syndrome on one member)
•Dr G Lekovic, House Ear Clinic, Los Angeles 213- 483- 9930 http://www.houseearclinic.com/lekovic (also in Orange County, see website)
•Dr Dinesh Chhetri, UCLA, Los Angeles (ENT/ Otolaryngologist, Head and Neck Surgeon) https://www.uclahealth.org/dinesh-khatri-chhetri (Also does Hyoid Bone Syndrome surgery)
•Dr Avraham Mendelsohn, Los Angeles https://www.uclahealth.org/avraham-mendelsohn
•Dr Gerald Berke, Los Angeles, UCLA Medical Center 310- 794- 8634 (has reportedly done ES surgery, but not on any forum members that we know of) https://www.uclahealth.org/provider/gerald-berkemd
•Dr Henry Chen, Los Angeles, Cedars-Sinai 1- 800- 233- 2771 http://bio.csmc.edu/view/8040/chenhen.aspx (doesn’t have a lot of experience with Eagles surgery, but did a successful revision surgery on one member)
•Dr Bruce Gewertz, Los Angeles, Cedars Sinai 1- 800- 233- 2771 http://bio.csmc.edu/view/3581/Bruce-L-Gewertz.aspx
•Dr. Ryan Osborne - https://ohni.org/los-angeles-ent-doctors/
•Dr Christopher Yian, Orange County ENT, Irvine/ Laguna Hills 949- 305- 8000/ 949- 679- 9000 http://www.memorialcare.org/apps/docfinder/provider_detail.cfm?site=S&phys_id22472
•Dr Dennis Crockett, Mission Viejo, http://www.hnaoc.com/dennis-crockett-md-faap-facs.html 949- 396- 3110
•Dr Christopher Duma, Newport Beach, Hoag Hospital, (was mentioned by a member, but we don’t know how much experience he has)
•Dr Brendan Gaylis, Scripps Clinic, Torry Pines, La Jolla 1- 800- 727- 4777 http://www.scripps.org/physicians/4128-brendangaylis-md-facs
•Dr. Brian Jian (Neurosurgeon) & Dr. Balough (Neurotologist) & Dr. Ji (Neurosurgeon/Neurointerventional Radiologist) - KAISER SACRAMENTO, 6600 Bruceville Rd, Sacramento, CA, 916-688-2000
•Kaicheng Lawrence Yen, MD, UC Davis Health Department of Otolaryngology, 2521 Stockton
Blvd, Suite 5200, Sacramento, CA 95817, 916-734-5400 tel, 916-734-6774 fax, Assistant/Receptionist - Ivy Hamilton, 916-734-1759, Dr. Kaicheng Lawrence Yen, M.D., Ph.D. for UC Davis Health
Colorado:
•Dr. Edward Hepworth, IMMUNOe, 3150 E 3rd Ave, Denver, CO 80206 (303) 224-4711 http://www.immunoe.com
•Dr. Robert Breeze, Neurosciences Center - Anschutz, 1635 Aurora Ct 4th Floor, Aurora,
720-848-2080, https://www.cumedicine.us/providers/neurosurgery/robert-breeze
Connecticut
*Dr Mark DeLacure, Otolaryngologist, 24 Hospital Ave Danbury, CT, (646) 761-9548, https://www.healthcare4ppl.com/physician/connecticut/danbury/mark-d-delacure-1326049453.html He has done many surgeries from NYU; recently moved to Danbury.
Florida:
•Dr Jeffrey Scott Magnuson, Advent Health Medical Group Otolaryngology and Head & Neck Surgery at Celebration, 410 Celebration Pl, Suite 305, Kissimmee, FL, (407) 303-4120, https://www.adventhealthcancerinstitute.com/meet-our-cancer-team/j-scott-magnuson (Did intraoral robotic surgery for pinkeagle)
•Dr. Bruce Haughey, Advent Health Medical Group Otolaryngology and Head & Neck Surgery at Celebration, 410 Celebration Pl, Suite 305, Kissimmee, FL, (407) 303-4120, https://www.adventhealthmedicalgroup.com/central-florida/physician/npi/1174549398?reason=1&department=778
•Dr Dzigielewski, UF Health, ENT, Shands Hospital, Gainsville 352- 265- 0920 www.ufhealth.org/peter-dziegielewski (does intraoral surgery, wouldn’t help two members; believes there must be pain upon styloid palpation for surgery to be necessary).
•Dr Gilberto Alemar, Cleveland Clinic, Weston 954- 659- 5786 (has done many ES surgeries, but other doctors at the Cleveland Clinic don’t believe in vascular ES, so we don’t know if he does) https://my.clevelandclinic.org/staff/4109-gilberto-alemar
•Dr Raam Lakhani, Watson Clinic, Bella Vista Building, Lakeland 863- 680- 7468 https://www.watsonclinic.com/physicians/raam-s-lakhani.html
•Dr David Arnold U of Miami Health Systems, Miami 305- 243- 4000 (mentioned by one member but don’t know how surgery went, successful surgery with another.) http://uhealthsystem.com/doctots/profile/1288
•Dr Rui Fernandes, University of Florida and Shands Hospital, 653-1 8th St W, Jacksonville, (904) 383-1018, https://hscj.ufl.edu
• Dr. Anthony Bunnell, 653 W. 8th St., Jacksonville FL, (904) 244-3218 https://www.baptistjax.com/doctors/oral-and-maxillofacial-surgeon/dr-anthony-bunnell-md
•Dr. Jonathan M. Morgan, 1330 S Ft Harrison Ave, Clearwater, (727) 441-3588, https://entflorida.com/doctor/jonathan-m-morgan-md/. Dr. Morgan knows about & diagnoses ES but doesn’t do ES surgery.
Georgia:
•Dr. Rishi Gupta, Wellstar Vascular Neurologist, https://www.wellstar.org/global-search?q=Rishi%20Gupta&cat=p
•Dr. Michael Vick, Wellstar ENT, 699 Church Street NE, Suite 340, Marietta, GA, (678) 355-1620. https://www.wellstar.org/physicians/michael-vick-md
,
Hawaii:
•Dr Scott Newman, Kaiser Permanente, Wailuku, Maui 808- 243- 6000 (only takes Kaiser patients)
•Dr Lawrence Burgess, Honolulu (did intra-oral surgery, but just broke tip off, so check he would remove more & smooth tip)
Idaho:
•Dr Jeff Burry, Valley ENT, Lewiston 208- 746- 0193 http://valleyentgroup/providers/index.html
Illinois:
•Dr Jason Cundiff, 27790 IL-22 Ste 27, Barrington, IL, (847) 649-6000, (Does intra-oral and external surgery) https://theentcc.com
•Dr Miloro, University of Illinois, Chicago 312- 996- 7640 http://hospital.uillinois.edu/Find_a_Doctor/Michael_Miloro.thm
Iowa:
•Dr Douglas Van Daele, ENT, University of Iowa Hospitals and Clinics, 200 Hawkins Dr, Iowa City, IA 52242, (319) 353-8162 https://uihc.org/douglas-van-daele (mentioned by Hawk87 & amsriesen)
Kansas:
•Dr Eric Purdom, NE Kansas Facial Plastic and ENT 785- 539- 3504
•Dr Keith Sale, KU Medical Centre , Kansas City 913- 588- 6701 (mixed results)
http://www.kumc.edu/school-of-medicine/otolaryngology/about-the-department/faculty-and-staff/faculty/keith-sale.html
Kentucky:
•Dr Bumpous, U of L Physicians, 401 E Chestnut St # 710, Louisville, KY 40202, (502) 583-3687 https://www.uoflphysicians.com/ear-nose-throat
Louisiana:
•Dr Daniel Nuss, Lake Head and Neck Center, Baton Rouge, Mary Bird Perkins Cancer Center (Skull base surgeon) ~ 5/29/21 - We were told by a member that Dr. Nuss is not currently accepting new patients. https://marybird.org/doctor/nuss/
•Dr Moore, New Orleans- has done a research paper but we don’t know about whether he’s done surgeries.
•Dr. Stephen Hernandez, 4950 Essen Ln # 400, Baton Rouge, LA 70809, Our Lady of the Lake Regional Medical Center, (225) 765-1765, https://marybird.org/doctor/hernandez/
Maryland:
•Dr Elizabeth Guardriani, University of Maryland Medical Centre, Baltimore 1- 866-408- 6885 http://www.medschool.umaryland.edu/profiles/Guardiani-Elizabeth/
•Dr Rodney Taylor, University of Maryland Medical Centre, Baltimore 1- 866- 408- 6885
http://www.medschool.umaryland.edu/profiles/Taylor-Rodney/
Massachusetts:
•Dr Timothy Anderson, Lahey Clinic 744- 781- 8467 https://physicians.lahey.org/details/1565/timothy-anderson-otolaryngology_ear_nose__throat-burlington
•Dr Timothy Osborne, Boston University Medical Center, 617- 638- 4350 https://www.bmc.org/about-us/directory/doctor/timothy-m-osborn-md-dds-facs
•Dr Donald Annino, Brigham and Womens, Boston (surgeries on several members), (617) 525-6500 https://physiciandirectory.brighamandwomens.org/details/1975/donald-annino-jr-otolaryngology_ears_nose_and_throat-boston
Dr Jalisi, Beth Israel, Boston. Has done a research paper on Eagles, but don’t know about surgery.
Michigan:
•Dr Candice Colby-Scott (co-wrote a research paper on ES/ SHCS, but told one member she’s not doing surgery any more)
•Dr Gregory Artz, Grand Rapids ENT, 1425 Michigan St. NE, Suite A, Grand Rapids, (616) 459-4514,
https://grentpc.com
•Dr Carlos Ramirez, Lakeshore Ear, Nose & Throat Center, 21000 Twelve Mile Road, Suite 111, St. Clair Shores, 586-263-7400 https://www.lakeshoreent.com/provider/carlos-a-ramirez-md-dds-facs
•Dr Dennis Bojrab, Michigan Ear Institute, 3555 13 Mile Rd Suite 210, Royal Oak, 248- 865- 4444 http://www.michiganear.com/ear-doctor-dennis-bojrab-md.html
Minnesota:
•Dr. William Omlie, Surgical Consultants, 6405 France Ave S Ste W440, Edina, MN (952) 927-7004, https://www.sharecare.com/doctor/dr-william-r-omlie Dr. William Omlie works with his nephew, Dr. James Omlie, Maxillofacial Surgeon. They do the ES surgeries together. James is the expert of the skull base area & William is the expert of the jugular & arteries (vascular) areas.
•Dr Cha, Headache Clinic at the U of MN works with Dr Omlie, can diagnose ES & refers to Dr Omlie.
•Dr Frank Ondrey, University of Minneapolis Medical Center 612- 625- 7400 (Does intra-oral surgery in most cases & breaks styloid off close to normal length not at skull base. Also questions whether neurological symptoms are related to ES) https://www.ent.umn.edu/bio/ent-faculty/frank-ondrey
Montana
•Dr. Paul Byorth, 2800 10th Ave N, Billings, MT, 406-238-2500, https://www.billingsclinic.com/find-a-doctor/profile/paul-byorth/
Nebraska:
•Dr Dan Lydiatt, University of Nebraska Medical Centre, Methodist Clinic . Clinic 402- 559- 1700, Office 402- 559- 7775, Methodist Clinic 402- 354- 5890 https://www.md.com/doctor/daniel-lydiatt-md
•Dr Coughlin, Methodist Hospital, Omaha (Head and Neck Oncologist, has done external skull base surgery 7-10 times, and steroid injections) https://www.mhsdoctors.com/physicians/11116003
Nevada:
•Dr Manthei, Nevada Eye and Ear 702- 896- 6043 www.nevadaeyeandear
New Jersey
•Dr. Gary Heir, Orofacial Specialist, 90 Bergen Street Suite 7700, Newark, NJ, (973) 972-2444
https://rutgershealth.org/provider/gary-heir (Familiar w/ ES but doesn’t do ES surgery. Diagnosed 1 member)
New York:
•Dr Yosef Krespi, Lenox Hill Hospital, Manhattan 212- 262- 2929 https://www.northwell.edu/find-care/find-a-doctor/otolaryngology/dr-yosef-krespi-md-11355020
•Dr Peter Constantino, Lenox Hill Hospital, Manhattan 212- 262- 2929 (mentioned by a member, but don’t know if he’s done any surgeries)
http://www.nyhni.org/find-a-physician/Peter-D-Costantino-MD,FACS
•Dr Mark deLacure, NYU, New York City (has done surgery on 2 or 3 members) https://nyulangone.org/doctors/1326049453/mark-d-delacure
•Dr Andrew Tassler, Otolaryngologist, New York City, has done a couple of intra-oral surgeries.
North Carolina:
•Dr Richard Gillespie, Monroe 704- 289- 8220 http://richardgillespie.md.com/
•Dr. Trevor Hackman, UNC Ear, Nose and Throat Oncology Clinic – in the N.C. Cancer Hospital, 101 Manning Drive, Chapel Hill, NC 27514, (984) 974-6484 (Does intraoral robotic surgery - removes styloid to skull base & stylohyoid ligament AND external surgery). Trained Dr. Patel, who is now doing ES surgeries.
•Dr. Matthew Ellison, 3480 Wake Forest Rd #404, Raleigh, (919) 862-5730, https://www.dukehealth.org/find-doctors-physicians/matthew-d-ellison-md
- Dr. Heckler at Duke Health- trained with Dr Hackman, does intra-oral surgery.
Ohio:
•Dr Lamarre, Cleveland Clinic Head and Neck Institute, Main Campus https://my.clevelandclinic.org/staff/17359-eric-lamarre
•Dr Brian Burkey, Cleveland Clinic, 216- 444- 6691 ( Otolaryngologist/ ENT, Head and Neck surgeon. At least one successful surgery, but only believes in Classic ES, not vascular) https://health.usnews.com/doctors/brian-burkey-12088
•Dr Lorenz, Otolaryngology, Cleveland Clinic Main Campus https://my.clevelandclinic.org/staff/4447-robert-lorenz
•Dr Eugene Choi, Ohio State University, Columbus 614- 366- 3687 (external, successful surgery, but I couldn’t find any record of him at this facility & previous web address for him no longer valid, see Dr Old below. Here’s the Otolaryngology website: https://wexnermedical.osu.edu/departments/otolaryngology/team )
•Dr Matthew Old, Otolaryngology, Ohio Sate University, James Cancer Hospital, Columbus (one surgery that we know of) *Dr. Old reportedly used a novel approach on a FaceBook ES Forum member where he removed styloid regrowth to the skull base & packed the skull base w/ cadaver bone (May 2021).
https://cancer.osu.edu/find-a-doctor/search-physician-directory/matthew-o-old
•Dr Arick Forrest, Ohio Sate University 614- 366- 3687 (has done several successful surgeries) https://wexnermedical.osu.edu/find-a-doctor/l-arick-forrest-md-2677
•Dr Richard Nelson, Toledo ENT, Maumee 419- 578- 7555 http://www.toledoent.com/rjnelson.htm
•Dr Brad deSilva, OSU Wexner Hospital, https://wexnermedical.osu.edu/find-a-doctor/brad-desilva-md-22675 He has also done hyoid bone surgery.
•Dr. Yash Patil, 222 Piedmont Ave #5200, Cincinnati, OH, (513) 475-8400, https://www.uchealth.com/physician/yash-patil/
Oklahoma:
•Dr Greg Krempl, Stephenson Cancer Centre/ OU Physicians Otorhinlaryngology Clinic, Oaklahoma City 405- 271- 7559 (otolaryngologist, need a physicians referral) https://stephensoncancercenter.org/Patients/Clinics-Services/Head-and-Neck-Cancers/Treatment-Team/greg-krempl-md
Oregon:
•Dr Erik Dierks, Head and Neck Surgical Assoc., Portland 503- 244- 1371 https://head-neck.com/eric-dierks/ - now semi retired, but Dr. Baber Khatib is now doing surgery here (has done bilateral intra-oral surgery without removing tonsils).
•Dr Andrew Patel, PDX ENT, Pacific Northwest Portland 503- 222- 3638 (Otolaryngologist) https://pdxent.com/
•Dr Joshua Schindler, 3303 SW Bond Ave OHSU Northwest Clinic for Voice and Swallowing, South Waterfront Center for Health and Healing Building 1, Suite 15, Portland, OR 97239, (503) 494-5947, https://www.ohsu.edu/providers/joshua-s-schindler/9EF420F1ED06418895F18EF1278ED60A?utm_source=gmb&utm_medium=organic&utm_content=59c4959b-a363-53b5-8065-7cbeb0ecee7d Has apparently done 18 sucessful surgeries, intra-oral and external.
•Dr. Sunshine Dwojak, 9900 SE Sunnyside Rd, Clackamas, OR, (503) 653-2880, She is a Kaiser doctor.
https://healthy.kaiserpermanente.org/oregon-washington/clinicians/sunshine-dwojak-4710839
Pennsylvania:
•Dr Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. https://hospitals.jefferson.edu/find-a-doctor/c/cognetti-david-m.html
•Dr Kevin Leahy U of Pennsylvania, Philadelphia https://www.pennmedicine.org/providers/profile/kevin-leahy
Also another doctor at U of Pennsylvania, Philadelphia, doesn’t want to be named, but contact scheduler Lindsay Flood 215- 829- 5180/ 800- 789- 7366, ask for her & say you have ES and would like scans to be reviewed by the appropriate surgeon.
•Dr Carl Snyderman, Uni of Pittsburgh 412- 647- 2100 (Otolaryngologist, brain surgeon, neurologist, skull base. Diagnosed one member) http://www.neurosurgery.pitt.edu/centers-excellence/cranial-base-center/carl-snyderman
•Dr Roger Levin, Harrisburg https://health.usnews.com/doctors/roger-levin-535963
•Dr. Raj Dedhia, 3400 Spruce St, 5 Ravdin, Philadelphia, (215) 662-2777
•Dr. David Goldenberg, 200 Campus Dr Suite 400, Entrance 2, Hershey, PA 17033, (717) 531-6822, https://hmc.pennstatehealth.org/otolaryngology
South Carolina:
•Dr Eric Lentsch, Medical University of South Carolina, Charleston 843- 792- 3531 (Otolaryngologist, Head and Neck Cancer) https://muschealth.org/muscapps/providerdirectory/lentsch-eric Does intra-oral surgery, but does several incisions to get as much of the styloid out as possible.
•Dr Jason Newman, 135 Rutledge Ave, Charleston, SC 29425, (843) 792-9300, https://providers.muschealth.org/sc/charleston/jason-g.-newman-md
Tennessee:
•Dr Mark Williams, Southern Hills, Nashville (615) 832- 2200 http://entson.net/contact-us/
•Dr. Kyle Mannion, 1215 21st Ave S #7209, Nashville, (615) 322-6180 https://vanderbilthealth.com
•Dr. David Armstrong, 901 Riverfront Pkwy #300, Chattanooga, TN, (423) 698-8981 http://chattanoogasinusrelief.com
Texas:
•Dr Donald T Donovan, Baylor College of Medicine 713- 795- 5900 (external surgery, successful on one member, but not helpful to another) https://www.bcm.edu/people/view/donald-donovan-md-facs/b16ef3bb-ffed-11e2-be68-080027880ca6
•Dr Newberry, SAMCC Army Hospital, San Antonio
•Dr. David Hayes, SAMCC (Brooke Army Medical Center), 3851 Roger Brooke Dr # 3600, Fort Sam Houston, (210) 916-6874
•Dr Teresa Chan-Leveno, University Of Texas Southwestern Medicine Centre, Dallas 214- 645- 8898 (Otolaryngologist) https://utswmed.org/doctors/teresa-chan-leveno/
•Dr Agan, University Of Texas Southwestern (says she has had success with ES surgery- one member saw her but opted to travel to someone more experienced) https://utswmed.org/doctors/ashley-agan/
•Dr Lawrence Weprin, Dallas (Otolaryngologist) http://www.entnorthtexas.com/Pages/DocView.aspx?ProvID=10977
•Dr Richard Ragsdale, Presbyterian Hospital, Allen 972- 747- 4646 (ENT/ Otolaryngologist, successful surgery reported) May be retired
Dr Ron Karni, UT Physicians, Memorial Hermann Surgery Center, Houston
•Dr Frank Miller, https://directory.uthscsa.edu/academics/profile/millerfr
Utah:
•Dr Marshall Smith, Salt Lake City (Successful thyroid cartilage surgery on ramblinman)
Virginia:
•Dr Stephen Early, University of VA, Charlottesville 434- 243- 6098 (Successful surgery reported, but is now only taking pediatric patients) https://med.virginia.edu/otolaryngology/faculty/stephen-v-early-m-d/
•Dr John Sinacori, EVMS Otolaryngology, 600 Gresham Dr Suite 1100, Norfolk 757- 388- 6200, https://www.chkd.org/Our-Doctors/Surgical-Specialists/CHN-Practices/EVMS-Otolaryngology/John-Sinacori,-MD/?utm_source=local-listing&utm_medium=organic&utm_campaign=website-link
Washington:
•Dr Neil Futran UW Medical Center, Seattle 206- 598- 4022 (successful intra-oral surgery) http://www.uwmedicine.org/bios/neal-futran
Washington, D.C.
Dr Bruce Davidson, Georgetown University Hospital Gorman Building 1st Floor, Georgetown,
Office: 202-444-8186, https://www.medstarhealth.org/doctor/dr-bruce-j-davidson-md/
We believe one member has had intra-oral surgery with him.
Wisconsin:
•Dr Robert DeFatta, Chippewa Falls (says he’s done at least 5 ES surgeries, but not on any members that we know of) https://defattaent.com/
•Dr. S Nalwa, 512 S 28th Ave, Wausau, WI 54401, (715) 847-202, https://entwausau.com
