Yes, it does. It use to happen to me a lot.
Kellx, how are you doing these days? I donāt think weāve heard from you in a while.
Seenie
Hi!! Im hereā¦lolā¦dealing with a Major Health Issue besides Eagles Syndrome nowā¦A CSF Spinal Leakā¦And it was Spontaneousā¦So its been a battle here in Canada with the diagnosesā¦My neurological symptoms got worse and I ended in the hospital for 2 weeksā¦they Figured I might have a leak based on my symptoms but my scans were āNORMALā too themā¦I knew I had a leak but no one believed me, So I send my scans too the Top CSF specialists in The US and they diagnosed me with an Extensive Spinal leakā¦So my scans were very āAbnormalā. its really badā¦Beginning to wonder if my spine is the cause of āEagles Syndromeā as I have a Anterior Thoracic Spine as wellā¦This may be causing pressure on those areas of the neckā¦as I believeā¦All my pain and symptoms happened the EXACT same timeā¦even the Spinal Leak symptomsā¦I didnāt know I had a leak 2 years ago as the symptoms were not very apparent but now they progressed so its very apparent if you know what I meanā¦Why did I get passed the worldās unluckiest person in the world :ā( ā¦I have a neuro surgeon appointment in 2 daysā¦so we shall seeā¦its been a 2 1.2 year battle of these symptomsā¦sucksā¦at least I fought too get answers when no one believed meā¦I still wish I had the other styloid out but if its my spine causing the pain of eagles then that should be fixedā¦ Thanks for asking how I wasā¦Means a lot
Hey, thanks for replying! I hate losing track of people, although I know that once a crisis is over, itās easy just to wander off into the sunset and live happily ā¦ oh wait, youāre not at the āhappily ever afterā part yet. Oh Kellx, none of what youāre going through sounds very nice at all. Iām so sorry.
And add to that the fact that itās winter in Saskatchewan! Didnāt you just have a brutal storm out there? Here in Eastern Ontario, we had an ice storm yesterday, and then rain today so you can imagine what a mess it is. None of that makes any of it easier to deal with, does it?
Great to hear from you!
Seenie
Yes still snowing hard in Saskatchewan!! I thought we were done with the snow but we are having a great snow stormā¦lol Glad I donāt have too leave my house in that aspect lol
No Im not a happily ever after, I probably will never be, and I will have too at some point accept it, not yet I canāt, but Hopefully there will help too this never ending battle of sickness.
1 Like
Sorry to hear that youāve had so much to deal with Kelx, but well done to you for not giving up and pushing to get a proper diagnosis. I hope that you get some help from the neuro appt.- let us know how it goes. Thinking of youā¦
2 Likes
Mascot of Ehlers Danlos Syndrome is the ZEBRA.
What? I donāt understand your answer or questionā¦
Took me a minute too, Kelx! 
Thereās a saying amongst doctors that āwhen you hear hoofbeats, think horses, not zebrasā. That is, when a patient has symptoms you are trying to figure out, think about the ordinary explanations, not the exotic ones. The trouble with that aphorism is, there ARE zebras, and if a doctor never considers that s/he may have a zebra in front of them, they will never get the right diagnosis.
H is saying that E-D Syndrome is a medical zebra, along with so many of the conditions that Benās FRiends members have. Maybe we need to have a zebra alongside our Benās Friends butterfly!