So, in my case. I already had a CCI diagnosis when I went in for styloidectomy bc I was referred for styloidectomy. The surgery HAS helped many people, and Hackman is EXCELLENT. I don’t want anyone to get it twisted, it’s just that in my specific case, eagles syndrome was not the correct diagnosis, despite the elongated styloids and calcified ligaments being present. It was a logical step, but not what eventually started to lead to any form of recovery.
In my case, in hindsight, I would have gone down the path of treating CCI via regenerative medicine, and worked with a CIRS-literate doctor/functional physician to figure out the metabolic issues with my body as well.
I had a gut feeling going into the surgery that it may not be the right solution for me, and in hindsight I should have followed that instinct. But I also do not feel comfortable giving medical advice, as I have no qualifications to do so. I know that’s not super helpful, but the reality is that there are extreme symptom overlap for: CCI, ES, CIRS, Lyme, and many other conditions. My combination was CCI and (awaiting the results of a genetic test, CIRS).
I have worked with 2 MDs for my CCI, both of which have been amazing. A DC/AO for my alignment issues, which has been super helpful. And have also done meridian therapy, functional medicine, detoxes, acupuncture, diathermy, postural correction, diet overhaul, meditation, breathwork, so many modalities all at once (with doctor supervision) to try to give my body a chance to heal.
I do feel like it is finally, and slowly, starting to heal up in a way that has the chance to be lasting. And I do feel like I would be further along without the styloidectomy surgery, but in some cases, it has helped people tremendously. So I will sign off with this:
The surgery is permanent, and can always be rescheduled. But the path for alternate things is long, frustrating, and expensive. I am out of pocket hundreds of thousands of dollars trying to figure things out. Fortunately, I feel like I am finally on my way there, though not where I want/need to be… it’s been a grind. I hope this is helpful!