Eagle Syndrome in Minnesota

@Deb7 - I’m glad you’re doing so much better! I’m sorry you’ve got dysphagia now, but it could be from your remaining styloid even if it feels like the problem is mostly on the left side. Some of us have experienced “cross-over symptoms” once one styloid is removed i.e. some of the symptoms from the remaining styloid occur on the side where the previous styloid was shortened. We’re not sure why that happens but it does.

The vagus nerve plays a role in swallowing. It’s possible your vagus nerve is being irritated by your right styloid now, or that it hasn’t fully recovered from the compression by your left styloid. There are simple exercises that can be done to help stimulate the vagus nerve like humming, gargling, ending a shower w/ 30 seconds of cold water (not my favorite :cold_face:), singing, & some others I can’t think of right now, but you can Google vagus nerve stimulation for a more extensive list.

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@Deb7 I am so glad that your surgery in 2025 went well, but sorry to hear you are experiencing new symptoms. My first surgery (left side) was May 2019 and it fixed all of my symptoms at that time. Mine was specifically with swallowing and it felt like a nerve was being shocked deep inside my ear. My PCP definitely thought I was crazy for the 2 years I had complained (I think we have all been there with ES :face_exhaling: ). When I couldn’t swallow even saliva without pain, I went to the ER and the radiologist diagnosed me. Both sides were elongated and both ligaments were calcified down to the hyoid. Symptoms on the right side are much different, so I didn’t realize they may be coming from the right side because I had been good for so long. Symptoms now are feeling something is caught in my throat, voice changes, ear pain, dizziness (even when sitting), headaches, trouble sleeping due to neck pain, the minute I wake up I am in a constant sweat (much different than hot flashes) and nausea. My styloid broke the day before my last surgery and he confirmed that after surgery. My PCP mention something about PT and I told her no since I am very concerned about the other one breaking - it’s probably an unhealthy fear, but I am just super anxious about it. My last surgery was external - I didn’t care about the scar. I would rather them be able to see more of the structures better that they need to stay away from, so I plan to ask him if he would be able to do an external approach. Thank you so much for your input on Dr. Chang and for allowing me to vent and I hope your appointment goes well on April 2nd. Many blessings to you:)

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It’s a good idea to be wary of PT, & not an unhealthy fear- if they’re not fully aware of ES then a PT could possibly make things worse. As @Isaiah_40_31 has mentioned, it does sound like you could have vascular ES, so definitely an external surgery would be best, and it might be worth consulting with one of the doctors who are more experienced with this- I think Dr Costantino in NY and Dr Cognetti in PA do virtual consults?

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