Get the Doctor-ENT to inject the xylocaine or (xxx-caine) directly into the nerve behind the tonsils. It is called a selective nerve block and probably has the most potential for lasting relief. It lasted for 6 months in 1998 and 1999 until my doctors didn't want to do it any more when I asked "just because". If they can't/won't remove the structure they should provide the best direct pain relief. All the pain pills just made me sick and to do any of that to an 11 year old is horrible. The pain is reduced as you wait for the proper surgery.
Botox is to stop a nerve impulse that is causing a muscle to spasm--is it for ES? The nerve itself is being scraped.
Also if you've read my past posts----ENT's are for EarNoseThroat infections, normally, not surgery. Look for a skull base surgeon or head and neck surgeon-even if they are also ENT's, they need the extensive surgical background-not just prescribing Flonase. This is a semi-quote from my group ENT who knew he couldn't operate but sent me anywhere I needed to go to find a doctor. These specialties were the ones that did the only surgeries that worked in 1990 and 2013.
In 1990 I read that if this nerve injection worked, it was an indication of Eagles. I had to do a lot of library work before the internet. Just by describing my symptoms to my orthodontist in 1990 he knew what I had and the solution-very easy. People do know what do do-its just hunting them down among the chaff. He called a Dr. in LA and I had a panorex in August 1990 and removal in November 1990. Why is it still so hard 25 year later?
I don't have much pain now but can sure feel it reading these posts. The 25 years of memories and solutions.
My picture post----3cm is enough to drive you crazy with pain-this was removed in September 2013. I had this in my throat for 15 years. Show this to any doctor-it was originally 6-7cm and only 3cm was removed in 2003. If its longer than you were born with it needs to be shortened. NOT DISCOUNTED.
Never ever let a doctor tell you it is not long enough to cause the symptoms. Its there take it out. Their explanations as to other causes fall flat.
shaw said:
My picture post----3cm is enough to drive you crazy with pain-this was removed in September 2013. I had this in my throat for 15 years. Show this to any doctor-it was originally 6-7cm and only 3cm was removed in 2003. If its longer than you were born with it needs to be shortened. NOT DISCOUNTED.
I know you wrote this post a long time agoā¦ hopefully you will see this and be able to respond. I would really, really love referrals for great surgeons/doctors in the Los Angeles area. I have been to countless ENTs this last yearā¦ my whole life has been on hold. No one doctor has offerered to help. My CT scan isnāt clearly showing Eagles but it is showing calcification on the involved bones/area and I have ALL of the symptoms associated with the diagnosisā¦ and more! I am local in LA and would love to look into your doctor since you had such a positive experience. I am not seeing his/her name.
Thank you so much-- I hope to hear from you!
Shawās doctor was Dr Henry Chen at Cedars Sinai. Heās on the Doctors List. I went to see him too. He was very nice, but he turned me down because he thought I should go to someone more experienced. But I think it would be worth it to see him and see what he says.
Thank you so much for letting me knowā¦ I just got home from seeing Dr.
Snyderman and he also wasnāt very helpful (but i think he is much more
experienced than Dr. Chen), so perhaps I shouldnāt waste time at Dr. Chen.
I really appreciate you getting back to me-- so sweet and helpful!
Well, you never know. Shaw had an unusual case and needed a 5th surgery and Dr Chen really helped him a lot. I had a different kind of unusual case and needed a 5th surgery as well, but he wasnāt sure about doing mine. Itās hard to remember because itās been several years, but I think Shaw had a longer styloid at that point than I did. I donāt know - it may not be a bad idea to try. The doctor who finally did my fifth surgery (in Chicago) wasnāt that experienced with Eagles, but was a very good surgeon with experience in that area.
My doctor was Henry Chen at Cedars. heidemt is right I was complex and he was willing to do it and did a great job, Thing is now that that is 4 years ago (wow!) I now feel the damage the first left side surgeon (ie: butcher) did. Because of my history, Doctors at UCLA, USC and cedars wouldnāt touch me but Dr. Chen was willing and able. So if you arenāt getting help from others, try him.
Experience aināt all its cracked up to be. The Dr. who took my styloid out in 1990 did it great. In 2002 he butchered my throat by taking out left side of my hyoid bone. With styloid removed, I feel the effects of his failure and that will always be there.
Hi again. Of all the views I had, CT, MRI, X-rays, Panoramic xray, the Panoramic one showed it best. But that was also because I had my head turned so the styloid area would be in the picture. If you do a straight shot on panoramic x-ray the styloid still might not make it into the picture.
Hi there Iām near Seattle also Iām currently seeing a neurosurgeon but he has never even experienced eagles.says he thinks Iām suffering from thoracic outlet symdrome.Even though he said hed never seen styloid as long as mine clear to my hyoid and one past.
Did you get any help from U.W
shindig last posted in 2014 so there is a possibility that you may not hear back.
People in WA typically have not had the good fortune of finding an experienced ES surgeon in that state so several people have traveled out of state to have their ES surgeries done. I know at least two flew to San Jose, CA, to see Dr. Samji (one of the most experienced ES surgeons in the US). Not sure about the others.
Iām curious about your styloid growing past your hyoid bone. Iām not sure thatās possible as the stylohyoid ligaments anchor at the lesser horns of the hyoid bone & thatās what would be calcified at that end. It is possible you have something going on w/ your hyoid bone itself or w/ a cervical vertebra which is causing the elongated styloid/calcified s-h ligament to appear to extend beyond the hyoid bone.
