Hi Sarah,
I am very sorry to read that you’re in so much pain. Controlling that certainly becomes life’s focus, doesn’t it. 
There are others on this forum who’ve been diagnosed w/ fibromyalgia & ES. Some of those have had their FM symptoms reduce after ES surgery. Surgery is the only way to get rid of the pain & other symptoms ES can cause as removing the elongated styloid(s) &/or calcified stylohyoid ligament(s) is the only way to stop irritation to the cranial nerves which cause the symptoms. Additionally, there can be compression of the internal carotid artery &/or the jugular vein which causes other challenging symptoms. I will include the link to the ES Doctors’ List which has the names of doctors familiar w/ ES in your country. Mr. Axon in Cambridge area is the most experienced ES doctor in the UK, & some members have traveled a distance to see him. There are other competent ES doctors in the UK though.
https://forum.livingwitheagle.org/t/doctors-familiar-with-es-countries-outside-us/4753
Hopefully someone w/ a similar health combo will chime in as well.
