Hi, my specialist has referred me to Mr Axon in Cambridge, I see him in January.I have seen 5 other Specialists but no one will operate as the bone has grown back at an angle and is pressing on the carotid artery.It has pushed into my throat and I’m getting to an urgent situation as it was before my first emergency ops in 2002.I think Mr Axon is my last resort in England as I [quote=“Isaiah_40_31, post:2, topic:6208, full:true”]
Hi Sarah,
I am very sorry to read that you’re in so much pain. Controlling that certainly becomes life’s focus, doesn’t it. 
There are others on this forum who’ve been diagnosed w/ fibromyalgia & ES. Some of those have had their FM symptoms reduce after ES surgery. Surgery is the only way to get rid of the pain & other symptoms ES can cause as removing the elongated styloid(s) &/or calcified stylohyoid ligament(s) is the only way to stop irritation to the cranial nerves which cause the symptoms. Additionally, there can be compression of the internal carotid artery &/or the jugular vein which causes other challenging symptoms. I will include the link to the ES Doctors’ List which has the names of doctors familiar w/ ES in your country. Mr. Axon in Cambridge area is the most experienced ES doctor in the UK, & some members have traveled a distance to see him. There are other competent ES doctors in the UK though.
https://forum.livingwitheagle.org/t/doctors-familiar-with-es-countries-outside-us/4753
Hopefully someone w/ a similar health combo will chime in as well.
