# ES having surgery 6 years ago

**URL:** <https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333>\
**Category:** General\
**Created:** [April 4, 2018, 8:44am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333 "2018-04-04T08:44:35Z")\
**Posts on this page:** 20\
**Page:** 1

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 4, 2018, 8:44am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/1 "2018-04-04T08:44:35Z")

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Hallo I had a Eagle syndrome surgery 6 years ago and from 3 months I having again pain and my Pulsatile tinnitus is back (it was nearly disappeared) … i had only MRI, and there was nothing to see… i have light pain around the hyoid, pressures this half of my head, no strength, headache, light pain in clavicle and licht dizzy …  
Was asking by my self what happens to the styloid ligament after the surgery?  
Cut this ligament hanging there be the cause?

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**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [April 5, 2018, 6:08am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/2 "2018-04-05T06:08:55Z")

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The styloid process could have re-grown; it does very occasionally. I think that unless the stylo-hyoid ligament is calcified, it is often left in. If it was calcified & not removed properly I guess that it could cause problems, otherwise there could be some scar tissue?.. but a CT would be a good idea to see what’s going on.

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 5, 2018, 9:08am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/3 "2018-04-05T09:08:29Z")

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Thank you, have a visit doctor the 20/4

I will tell him and let you know…

Thank you very much

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 5, 2018, 9:17am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/4 "2018-04-05T09:17:34Z")

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Jules, one dr says the tissue is inflamed and it need a cortisone injection…

This Dr didn’t see me… talk on the phone… have also maid appointment whit him the 21/4

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 5, 2018, 10:21am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/5 "2018-04-05T10:21:46Z")

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Jules, did you have cases of scar tissue years after surgery? Or problems with the ligaments left?

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![MusicGeek](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/musicgeek/32/704_2.png) [@MusicGeek](https://forum.livingwitheagle.org/u/MusicGeek)\
**Post date:** [April 5, 2018, 7:54pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/6 "2018-04-05T19:54:44Z")

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Hi @Mass, I’m sorry you are having troubles. In case this helps you- I had a problem with scar tissue, and now it’s gone. I had cold laser treatment once a week and a specialist neck massage everyother week. It took about a year of treatments. If you end up getting cold laser treatment - make sure they use the cone attachment to avoid the thyroid. Best wishes.

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**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\
**Post date:** [April 6, 2018, 5:26am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/7 "2018-04-06T05:26:51Z")

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Hi Romano,  
I have a hard time believing that you would be getting symptoms just from scar tissue this long after surgery. I agree w/ what Jules said, you should try to get a CT scan to take another look at your styloids & stylohyoid ligaments.

I find it curious that a doctor would give you any kind of diagnosis over the phone just based on your symptoms. Glad you have an actual appointment later this month. Make sure you at least ask about a follow-up CT scan.

A cortisone or lidocaine shot can relieve the symptoms temporarily but if the cause is something other than inflammation, the pain will come back.

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 9, 2018, 12:56pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/8 "2018-04-09T12:56:09Z")

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Isaiah thanks for your support, will keep you informed! The great problem is to find a doctor with al lot of experience with eagle syndrome surgery… I live in Belgium  
Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [April 9, 2018, 9:09pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/9 "2018-04-09T21:09:40Z")

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Is it not possible to see the surgeon you had surgery with? Your best option really is to try to get another CT, just to see what is going on, & to get it evaluated to see the length of the styloid processes left, & to see if there’s any calcification of ligaments. I don’t know what your health care system is like, would your GP/ primary care doctor be able to order one for you, or refer you to an ENT? Then when you know what’s causing this, you can take it from there. As well as ENTs, Otolaryngologists/ skull base surgeons are a good bet to try & see for ES.  
(Maybe it would be possible for you to travel to Germany otherwise, if the scan shows anything? There’s one doctor on the list, I know of another one that Michael saw, haven’t had a chance to update the list.)

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 10, 2018, 10:11am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/10 "2018-04-10T10:11:31Z")

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Jules, my surgeon has left Belgium for New Zealand … I have appointments with another of his team the 20/4

I will ask for ct scan … I can also go to Germany… what is the name of the doctor?

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [April 11, 2018, 6:12am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/11 "2018-04-11T06:12:17Z")

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The German doctors we have on the list are:  
Dr Liebehenschel at Heidberg Klinic, Hamburg,  
Professor Rudolp Reich, Uniklinik, Bonn,  
Dr Nils Heim & Dr Andreas Schon, Bonn.  
And also we’ve been given the name of Professor Dr Martin Kunkel, Bochum- he’s done a documentary about ES apparently (haven’t seen it myself), not sure if he does surgery as well.  
Hope this helps, shame your original surgeon has left, & let us know how you get on with the CT.  
Jules

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 11, 2018, 9:22am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/12 "2018-04-11T09:22:47Z")

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Thank you very much Jules…

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 14, 2018, 11:02am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/13 "2018-04-14T11:02:07Z")

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Jules, have there been cases of problem with styloid ligament years after surgery styloidectomy?

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\
**Post date:** [April 14, 2018, 7:23pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/14 "2018-04-14T19:23:06Z")

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Often the ligaments are removed when the styloids are shortened so there is no chance that they will calcify later. If they remain, there is a possibility they could create a problem years later. I’m not sure if there are documented cases of this though. Jules may know.

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**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [April 14, 2018, 8:07pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/15 "2018-04-14T20:07:31Z")

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I don’t think I’ve read about any, the only occasional problems post-surgery that I know of has been when pieces of styloid processes haven’t been removed, not enough of the styloid process has been removed originally, or styloid processes have regrown. I guess in theory it’s possible though, maybe other members might have experience with this? I don’t remember reading any on the forum.

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 15, 2018, 8:29am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/16 "2018-04-15T08:29:13Z")

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Thank you  
Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 18, 2018, 8:59pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/17 "2018-04-18T20:59:37Z")

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Dr Diagnose hyoid syndrome … start with NSAIDs for 4 weeks and have ct scan next week

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**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\
**Post date:** [April 19, 2018, 4:58am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/18 "2018-04-19T04:58:00Z")

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Hope the medication helps, & hope the CT will give some clarity…

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [April 19, 2018, 8:23am UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/19 "2018-04-19T08:23:32Z")

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🤞🏻

Met vriendelijk groet,  
Romano Massimo

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**Author:** ![Mass](https://avatars.discourse-cdn.com/v4/letter/m/3ab097/32.png) [@Mass](https://forum.livingwitheagle.org/u/Mass)\
**Post date:** [June 8, 2018, 7:28pm UTC](https://forum.livingwitheagle.org/t/es-having-surgery-6-years-ago/3333/20 "2018-06-08T19:28:26Z")

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Had cortisone injection 3 weeks ago, it helps, symptoms are less but I still have a lot of pain, need to wait 2 months says the doctor…

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