Experiences of completed surgery for those with Ehler-Danlos

@Snapple2020 has had surgery & has EDS, so you could look up some of her posts using the search function, here’s one though:
New. Scared. Welcome advice (maybe a little comfort?) - General - Living with Eagle
There have been quite a few discussions about EDS as well if you want to use the search function for that.
I think if I remember right @Snapple2020 had the most trouble with her jaw after surgery as obviously the mouth has to be opened wide for intubation, and some doctors partially dislocate it to get better access to the styloids.
Hopefully others can give you advice!

1 Like