Oops, sorry about saying Cleveland clinic…at any rate, he seems to be the go to guy!
I get how you feel, but I couldn't have made it 10 years.... When I first got this it became unbearable immediately, I went to at least 30 GP appointments and 2 ENT's, the second ENT immediately new it was ES. There are too many doctors in their profession that do it for the money. What I mean by that is they treat all the common illness' and other rare illness' that they are TRAINED to look for. They down play people with Eagle's syndrome and send us to 4 different types of doctors even a dentist before we arrive at an ENT who can properly diagnose eagle's syndrome. Until that point people like us, and many people my age (21 at time of onset, now 27) are looked at as seeking pain meds or a person who just goes to the doctor at the slightest drop of a hat.
art4u said:
YES! and yes...
I have been going to my ENT, reg Doc, Ortho for the last 10 years complaining of stabbing pain in back of my skull...
along with ear-ache, neck ache, etc. etc...
My Ortho suspected Eagles when he did the exam for tmj...he sent a letter to my ENT 3 years ago who just ignored it...I told this Ear specialist that it felt like a KNIFE in my head..he laughed and said, "I am sure you know what a knife would feel like?" He said, "Oh, I don't do headaches...you may want to try massage, chiro, PT," ....so after 3 sets of ear tubes, bleeding ears and now a NEW ENT, I have been confirmed that Eagles is for sure. I am researching where to go for surgery, as I ponder writing a letter to ALL the PAST doctors and health care professionals?? who treated me like I was whacko!!! I hate to cry over spilt milk, but so many years of suffering...feel i missed so much...but on to the POSITIVE...for you, I recommend demanding a CT scan so you can SEE and learn for yourself what is going on...ASK a lot of questions to everyone...don't give up- you know your own body and if you have horrible headaches, SOMETHING is going on!!!