Hi Kerileigh13 -
Obviously you know from reading posts on this forum that the doctor you saw is misguided about ES & surgery to help relieve symptoms. I’m sorry you had to put up w/ his erroneous opinion. If he denies that you have ES after viewing your CT scans, I would send a copy to one of the more experienced ES doctors on the forum’s US ES Doctors’ List to get a second opinion. You can have a consultation appt w/ one of these doctors by phone (there will be a charge). Hearing from a doctor w/ lots of ES experience would be helpful for you. Doctors I would recommend you contact for this are Dr. Samji (CA), Dr. Cognetti/Dr. Newman (PA - they don’t work together), Dr. Milligan (AZ, Someone posted that he doesn’t do phone consults, but asking is free) or Dr. Nuss (Louisiana). Here is the link to our current US ES Doctors’ List: US Doctors Familiar With ES, 2019
Bear in mind that it’s not always the length of the styloid process but can be the thickness, angle, curve/twistiness/pointiness that can also cause symptoms. Too many doctors think it’s all about length. Additionally if you have any calcification on your stylohyoid ligament(s) w/ or w/o styloid elongation, that can also cause ES symptoms & is classified as ES as well (some doctors won’t acknowledge calcified ligaments as ES either…).
When you get your CT scans done, ask the radiology tech to include some 3D images. They will make it easier for you to see your styloids & s-h ligaments.
Please let us know what your radiology report says once you have it in hand.