I’m astounded that it was dismissed by the doctors you’ve seen recently, that’s crazy!
@SCJeff suggested a couple of doctors in the US - Dr Osborne and Dr Hackman- both are great surgeons and have done lots of successful surgeries, but neither are Vascular ES surgeons and neither do a C1 shave. You might get a relief of symptoms without this, but given that you’re potentially paying for the surgery and would have to travel, then I think it’s worth getting the best chance of success and having it done right first time… so it sounds like you might have to have just one side done at a time, as the East coast doctors on do unilateral surgery… As far as we’re aware, none of our Canadian members have managed to get the funding for surgery in the US, it’s crazy as there’s no option in Canada! We are seeing more doctors doing bilateral surgery now, so although many like to leave it for a few months, it does seem to go well for quite a few members!
I hope you’re able to try one of the medications that @Isaiah_40_31 mentioned. If you’re not already sleeping propped up, that can help so is worth a try.
Incidentally, as you mentioned TN, @Hellebore posted a link to this research paper yesterday:
IJV Compression - a cause of trigeminal Neuralgia? - General / Research Papers - Living with Eagle