Thanks, Hadassa, but I didn’t start this community, so can’t take the credit! About the Bens Friends category
Ben started a group for people with AVM, & it’s grown since then to include lots of other rare diseases, like ES. I’m not sure when this ES group was created, but it’s been going quite a long time- I only moderate it along with Isaiah40:31.
I agree about how helpful the site is though, I wouldn’t have found out about vascular ES & the doctor who did my surgery without this place, so I am forever grateful!!
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