# Hello my Saviors :0 :) **URL:** \ **Category:** General\ **Tags:** stories, internal-jugular-vei\ **Created:** [September 4, 2025, 4:06pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365 "2025-09-04T16:06:35Z")\ **Posts on this page:** 20\ **Page:** 3
**Author:** ![TML](https://avatars.discourse-cdn.com/v4/letter/t/f17d59/32.png) [@TML](https://forum.livingwitheagle.org/u/TML)\ **Post date:** [September 12, 2025, 4:01pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/41 "2025-09-12T16:01:22Z")
I’m similar. I’m 180cm, October I was 72kg (which is still thin for 180cm as 27 year old male) and now I’m 61kg. I think the more weight we lose the worst it gets because we get thinner and our vasovagal response to our greater horns gets worse. I’m really not sure regarding surgeons in Korea. @Isaiah_40_31 @Jules do we know much about surgeons in Korea who do ES surgeries? Perhaps one of those doctors would be open-minded regarding the greate horns and would be willing to operate at same time. ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 12, 2025, 5:19pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/42 "2025-09-12T17:19:57Z")
Yeah we friend really thank you ---
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [September 13, 2025, 4:08am UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/43 "2025-09-13T04:08:52Z")
I’m very sorry, but we don’t have the name of even one doctor in Korea who does ES surgeries. @NoneElongatedStyloid the best I can recommend for you is to find an ENT skull-based surgeon (may have a different name in your country). This type of surgeon often does cancer surgeries in the neck so is familiar with the styloids & possibly the hyoid bone. In the US & other countries, there are also head & neck surgeons. We’ve had a few members who’ve had their surgeries done by maxillofacial surgeons or neurologists. Those are the specialties you can look for in your country. Did the doctor who diagnosed you with ES not have someone to refer you to who does the surgery? II’m sorry if you’ve discussed this & I forgot. ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [September 13, 2025, 11:24am UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/44 "2025-09-13T11:24:41Z")
Head and neck cancer surgeons often have to remove styloids to access a tumour, so they would have experience with what’s necessary for ES, or a Head and Neck Neurovascular surgeon, if you can find anyone? Maybe look into teaching hospitals? I’ve found one research paper by Korean doctors at a dentistry school, they did external surgery for a lady with ES, but not sure if they would be able to do hyoid surgery: [KoreaMed Synapse](https://synapse.koreamed.org/articles/1091823) [Eagle’s syndrome: a case report | Journal of the Korean Association of Oral and Maxillofacial Surgeons;: 43-47, 2014. | WPRIM](https://search.bvsalud.org/gim/resource/en/wpr-174885) Are you able to afford treatment at any other country otherwise? ---
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [September 13, 2025, 10:13pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/45 "2025-09-13T22:13:59Z")
@NoneElongatedStyloid - We have had people fly to the US from other countries for surgery but it is expensive. I hope you can find someone in your own country who is knowledgeable to do your surgery. 🙏 ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 12:51pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/46 "2025-09-20T12:51:20Z")
The doctor was able to connect me, but at the time I thought I had Bowhunter syndrome, and I didn’t know about Eagle syndrome. Even the emergency room doctor didn’t know I had a head and neck condition. Thank you for your advice. ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 12:53pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/47 "2025-09-20T12:53:46Z")
Thank you for your advice. I can’t afford to go abroad. I’m going to Asan Medical Center in Seoul next Monday. ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 12:59pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/48 "2025-09-20T12:59:29Z")
How many centimeters of the styloid process and the greater horn are going to be removed?" Are you interested in botox muscle injections?" I’m going to the best hospital in Korea on Monday to get a diagnosis with my scan CD When is your surgery? Wishing you a successful outcome. ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [September 20, 2025, 1:07pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/49 "2025-09-20T13:07:52Z")
That’s good, let us know how you get on, I hope that they’re knowledgeable & will help you 🙏 ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 1:16pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/50 "2025-09-20T13:16:33Z")
Of course thank you From around 2019 to 2023, I experienced knee pain similar to growing pains, but my height did not actually increase. Are there other cases like this?" ---
**Author:** ![TML](https://avatars.discourse-cdn.com/v4/letter/t/f17d59/32.png) [@TML](https://forum.livingwitheagle.org/u/TML)\ **Post date:** [September 20, 2025, 1:29pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/51 "2025-09-20T13:29:33Z")
Not entirely sure how much greater horn will be removed. Styloid will be cut above the level of C1 to ensure the IJV is decompressed. I am interested in getting botox to my anterior scalenes and maybe SCM muscles but I’m going to see how I respond to surgery first. And thank you!! ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [September 20, 2025, 1:32pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/52 "2025-09-20T13:32:41Z")
Not that I’ve heard of… ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 1:35pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/53 "2025-09-20T13:35:33Z")
Yeap thank you jules ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 1:45pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/54 "2025-09-20T13:45:31Z")
The plan seems fine Do I need C1 lateral mass shaving? Do you think it would be okay for me? What is your overall opinion on this surgery? ---
**Author:** ![TML](https://avatars.discourse-cdn.com/v4/letter/t/f17d59/32.png) [@TML](https://forum.livingwitheagle.org/u/TML)\ **Post date:** [September 20, 2025, 2:30pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/55 "2025-09-20T14:30:43Z")
@NoneElongatedStyloid I’m not sure if you’d benefit or not from C1 shave. Some ES surgeons believe they help while others think that a styloidectomy is enough on it’s own. So it really depends on the surgeon. There is an overwhelming amount of research showing that styloidectomy helps reduce symptoms if symptoms are in fact caused by ES. So I think if you’re experiencing ES (symptoms due to your styloids) than a styloidectomy should help. ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 20, 2025, 2:43pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/56 "2025-09-20T14:43:17Z")
Yeap thank you c1 shaving confusing me everyday ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 21, 2025, 5:45pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/57 "2025-09-21T17:45:20Z")
Do surgeons usually perform bilateral styloidectomy and bilateral greater horn resection at the same time? Isn’t the concern about side effects from simultaneous bilateral surgery exaggerated?” ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 21, 2025, 5:46pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/58 "2025-09-21T17:46:51Z")
Jules,Do surgeons usually perform bilateral styloidectomy and bilateral greater horn resection at the same time? Isn’t the concern about side effects from simultaneous bilateral surgery exaggerated? ---
**Author:** ![NoneElongatedStyloid](https://avatars.discourse-cdn.com/v4/letter/n/e68b1a/32.png) [@NoneElongatedStyloid](https://forum.livingwitheagle.org/u/NoneElongatedStyloid)\ **Post date:** [September 21, 2025, 5:47pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/59 "2025-09-21T17:47:57Z")
Isaiah,Do surgeons usually perform bilateral styloidectomy and bilateral greater horn resection at the same time? Isn’t the concern about side effects from simultaneous bilateral surgery exaggerated? ---
**Author:** ![TML](https://avatars.discourse-cdn.com/v4/letter/t/f17d59/32.png) [@TML](https://forum.livingwitheagle.org/u/TML)\ **Post date:** [September 21, 2025, 6:34pm UTC](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365/60 "2025-09-21T18:34:02Z")
Most people with ES have no issues with their greater horns. Very rarely are they removed. So there isn’t any statistics I can share with you on that piece. For just ES, most surgeons do one side at a time due to swelling. Some surgeons wait a few days before doing other side, while others wait months. Few doctors will do both sides at same time but it’s rarer [Previous page](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365.md?page=2) [Next page](https://forum.livingwitheagle.org/t/hello-my-saviors-0/20365.md?page=4)