# Hemifacial Spasms turned out to be Eagles Syndrome **URL:** \ **Category:** General\ **Created:** [June 9, 2025, 1:04am UTC](https://forum.livingwitheagle.org/t/hemifacial-spasms-turned-out-to-be-eagles-syndrome/19405 "2025-06-09T01:04:16Z")\ **Posts on this page:** 1\ **Showing post:** 19
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [September 5, 2025, 2:20am UTC](https://forum.livingwitheagle.org/t/hemifacial-spasms-turned-out-to-be-eagles-syndrome/19405/19 "2025-09-05T02:20:36Z")
How exciting for you to have a surgery date that’s coming up very soon, @babsbr! Time to get that nasty thing out of your neck!! You should be fine to walk up & down stairs after your surgery. You may feel a bit lightheaded so hang on to the bannister or have someone walk with you if you’re feeling unsteady on your feet & take it slowly. You can always stop to rest, too, if you need to. In case you haven’t seen this post that @Jules wrote about ES surgery, here’s the link: > [@ES Information- Treatment: Surgery](https://forum.livingwitheagle.org/t/es-information-treatment-surgery/1385): > > ES Information: Treatment Available For ES- Surgery Disclaimer: These answers to common questions were put together for new members to gain a head start in finding information about Eagle Syndrome; to give you confidence to discuss issues with your medical team and to encourage you to research issues further for yourselves. It was compiled by a volunteer Moderator, who does not claim to be a medical professional, merely an informed observer and patient! The sources used are personal experiences… If you scroll down, you’ll find a section that talks about Recovery from surgery. The following section which is called Vascular ES post-surgery and Stenting which discusses recovery from those. Here’s a suggested surgery shopping list which you can, of course, tweak to fit your dietary needs/desires: > [@Surgery shopping list](https://forum.livingwitheagle.org/t/surgery-shopping-list/2074): > > Here is a simple shopping list for pure-surgery: Wedge pillow 2-3 Icepacks (I put mine in a pillow case that was thin enough to feel the cold and long enough to wrap around my neck) Neck pillow Puréed soup Muscle milk Vanilla yogurt Popsicles Throat lozenges Throat soothing tea Good books, magazines, music, movies Mederma for scar repair and has sunscreen too I Hope this helps future surgery members Feel free to add your favorite items to the list Seamom The key things that will help you post op is to sleep w/ your head elevated up to 30º if possible (a wedge pillow is helpful with this), ice your neck for 15-20 min. every couple of hours w/ a thin cloth or towel between your skin & the ice pack to prevent ice burns, take your pain meds on schedule, including in the middle of the night. Get a stool softener/laxative to take daily if you opt to take opioid pain meds. Having your “plumbing” back up is miserable when your neck is sore. If your pain is too severe in the first week after surgery, request a tapering course of dexamethasone or prednisone from either Dr. C or your local doctor. It will help reduce swelling which in turn helps decrease pain. I think that’s all I’ve got for now. I’m putting your surgery date on my calendar so I can pray for you on Monday. 🤗 --- _[View the full topic](https://forum.livingwitheagle.org/t/hemifacial-spasms-turned-out-to-be-eagles-syndrome/19405)._