Hi Cherry,
On the Doctors’ List for countries outside the US, I found the information below, but there is no contact info. Perhaps you can do some sleuthing to see if Dr. Michael Elliott is still at the same location(s) or either of the other two doctors mentioned. Since your ENT won’t look into ES for you, you could ask your primary care doctor (PCP) for the name of an ENT in your area who is a cancer specialist. Anthat ENT cancer specialist often knows about ES & is willing to refer a patient for a CT scan to look for it. Please let us know what you learn. I just looked up Dr. Elliott & it looks like he’s practicing in Sydney. A bit far away for you, but you can still see what you can find.
•Dr Michael Elliott, ENT, Royal Prince Alfred Hospital/ or Concord/ or privately at The Mater)? Victoria, with Dr Michael Halmagyi (Neurologist) and Dr Jeff Parker (Radiologist)
Here are another couple of links for doctors in Melbourne which is closer to you, plus there are a number of doctors in Melbourne on our list.
https://forum.livingwitheagle.org/t/doctors-familiar-with-es-countries-outside-us-2019/4753