Wow. Lots of information, thanks. My dr. Just did a 24plate hr urine test so I will be talking to her in the next day or two. My endocrinologist.
I went to Robert Defatta in Black River Falls but he has many locations. Do a google search for him and it will pop up. He has done 5. Im not sure Im gonna have him do it tho. :/
Hope said:
Hi Lisa,
Did you have the surgery? I also live in Wisconsin, can you please give me the name/hospital you found that knows about this? If you had the surgery, how are you doing?
As far an insurance, if you didn't know already...Often if YOUR Hmo facility can't provide the operation you need your doctor can put through paperwork to get you accepted somewhere else. I have had to do that a couple of times. Then you pay what you would have paid under your insurance with your HMO.
I live in Iowa near Prairie Du Chien Wi. Im 2 hours from Madison.
Hope said:
It is interesting that you mention vitamin D. What have you learned about that? I was Vitamin D deficient for years and have been supplementing in high doses. The last time we checked my levels were at 62 and my pain was reduced,...but Dr. did a 24 hour urine calcium test and I had quite a bit of calcium in my urine, so now I wonder if I've been hurting instead of helping myself.
It gets confusing sometimes doesn't it?
Where do you live in Wisconsin? I am in the Southern part so could go to Madison doctors unless they don't do this surgery. I had a great brain surgeon for my MVD surgery for trigeminal neuralgia in 2013 but now wondering if it was really trigeminal all along or not, or both.
What did you find out at the endo? x
Hope said:
Wow. Lots of information, thanks. My dr. Just did a 24plate hr urine test so I will be talking to her in the next day or two. My endocrinologist.
My urine calcium levels are lower as I decrease the vitamin D. My brain surgeon recommended an ENT at Dean Clinic in Madison. I will see him on June 12TH. My neursurgeon said he knows about eagles and is a hean and neck specialist. I believe that it is important to get the best dr we can especially since nerves are involved. All the best and keep me posted.
Hope, call ahead to the Doc in Mafidon and verify that he treats ES. My doc referred me to 2 places and neither treated ES. That’s happened to many of us and we wasted our time (and money)
Thank you
Hope, Ivy & Lisa,
If you're still looking for options in Wisconsin, you may want to try the UW Hospital - Otolaryngology. They are located 600 Highland Ave.; Madison, WI (608-263-6190). When I saw your postings yesterday, I e-mailed my sister who is a Physician Assistant in Otolaryngology at UW, and she gave me names of three Head & Neck Surgeons that she works with (Greg Hartig, Aaron Weiland and Tim McCulloch). She does not know specifics on who has or has not performed surgeries for Eagle Syndrome, but she did say that all three are fantastic head & neck surgeons and very experienced. It's worth a try? Hope that helps!
Hope said:
Thank you
Hmmm wonder if Dr Hartig is related to me lol! Have a lot of Hartigs in my family tree!
Thanks! I'll call tomorrow. I have an appt in Iowa City on Aug 5th with a surgeon who they said has performed this surgery!!! He's at the U of Iowa Dr Van Daele. I want to find a surgeon who has LOTS of experience.
I too think its best to get one with lots of experience. Do please let us know the Docs name in Madison that your surgeon recommended. Madison is only 2 hours from me! :D
Hope said:
My urine calcium levels are lower as I decrease the vitamin D. My brain surgeon recommended an ENT at Dean Clinic in Madison. I will see him on June 12TH. My neursurgeon said he knows about eagles and is a hean and neck specialist. I believe that it is important to get the best dr we can especially since nerves are involved. All the best and keep me posted.