Dr Michiel Bove, Northwestern Medical Group, Chicago 312- 695- 8182
Thank you. I am in Indiana so if I do get a diagnosis I have him as an option. Not sure, but I think there are very few options in Indian.
Dr. Luke Philippsen is the only doctor on our list from Indiana. That said, any ENT who is a skull based surgeon (often a cancer specialist) would be familiar w/ the area of the neck where the styloids are. The trick is to find one who is familiar w/ ES & is willing to remove the styloids as close to your skull base as possible & also remove the stylohyoid ligaments if they’re calcified.
If you’re having trouble getting diagnosed, you can send a copy of your CT scan to Dr. Samji in CA or Dr. Cognetti in PA. They are two of the most experienced ES surgeons on our doctors’ list. Both do phone/video consults & will give you a second opinion. There is a charge for this but most insurance companies will at least help pay for a second opinion appt. where major surgery is in question.
When you ask for copies of CT scan, do they come in electronic form? Paper printed copy?
Thank you!
Was your surgery endoscopic?
The CT scan usually comes on a CD (disc) but it can be sent electronically to a doctor. It seems many doctors prefer receiving the info on a disc though. There is also a written radiology report which you can get in hard or soft copy as well.
That is awesome!!! I too, went through 17yrs. of being told that I was depressed because I had just had a baby on December 8, 1987 and the onset of ES happened on December 24th, 1987. I also made my rounds with dentists, ENT’s and several emergency room visits with a bunch of jerks.
I finally moved to Oklahoma and it was then that I found Dr. Greg Kremple, who prayed with me and told me he would find what was wrong with me. I was in so much pain that all I wanted to do was go to sleep and never wake up. He did find out that I wasn’t crazy or emotional, I got diagnosed with ES.
A week later, he sent me to my surgeon Dr.R. Layton Runkle in Norman, OK. He did the surgery through my mouth, took my tonsils out and carved out the elongated styloid on both sides. He did it all in one day. Was it a hard surgery? Yes it was because I am also a Diabetic and we do not heal quickly and so, it took me 4 monhs to heal.
The quality of my life changed after I healed and I no longer have problems eating or, pain. Unfortunately, Dr. Runkle passed a few years ago and I moved back to Texas for a few years while my husband finished his degree. I still do see Dr. Kremple to make sure everything is okay. His words to me last year were; “This is NEVER going to come back”, he is an outstanding physician and he is always so down to earth when he talks to me. I am his only ES patient. He now is part of the Stephenson Cancer Hospital. When he diagnosed me, he was a physician at the University of Oklahoma Physicians. I think my surgery was in 2006?
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Don’t give up! Pursue your healing with everything you have…Doctors can be “fired”!!! Their job is to listen to your concerns and act on them. I have had to fire doctors because of their dismissive attitudes toward me. Had I not pushed and pushed to get the answers, I would still be suffering…
I moved to Oklahoma after being in Texas, all of my life. I had some terrible resistance from my husband but, in the end, God ordered my steps to move our whole family to Oklahoma. It was there that I finally found the right doctor and I had my surgery. Dr. Greg Kremple diagnosed me and Dr. R layton Runkle did my surgery.
Perhaps you can contact Dr. Krempl to see if he can correct what was done and you still have pain…
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My dr just put me on morphine and it made my pain worse! Incredibly worse. So much pressure.
Don’t know for sure if I have eagles but suspect possibly.