# Living with Eagle's syndrome study..any volunteers **URL:** \ **Category:** General\ **Created:** [January 7, 2014, 8:05pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262 "2014-01-07T20:05:07Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![Amy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/amy/32/392_2.png) [@Amy](https://forum.livingwitheagle.org/u/Amy)\ **Post date:** [January 7, 2014, 8:05pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/1 "2014-01-07T20:05:07Z")
Anyone interested in filling out a questionnaire about Eagle syndrome? There are so many obvious but similar vague symptoms that we all have. I want to make it head to toe questionnaire. Also, have a human body that we could mark on. Also, compare before and after surgery symptoms. I am interested in posting my styloids on CT SCAN. This is all volunteer. Any suggestions to make this easier or to compile all information please add. ---
**Author:** ![TexasNani](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/texasnani/32/300_2.png) [@TexasNani](https://forum.livingwitheagle.org/u/TexasNani)\ **Post date:** [January 7, 2014, 8:16pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/2 "2014-01-07T20:16:19Z")
I’m interesting 🙂 that’s a really good idea. ---
**Author:** ![Smithy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/smithy/32/401_2.png) [@Smithy](https://forum.livingwitheagle.org/u/Smithy)\ **Post date:** [January 7, 2014, 11:46pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/3 "2014-01-07T23:46:19Z")
Yep ---
**Author:** ![Tee](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/tee/32/256_2.png) [@Tee](https://forum.livingwitheagle.org/u/Tee)\ **Post date:** [January 7, 2014, 11:59pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/4 "2014-01-07T23:59:59Z")
Ang did a survey back in July. I am not sure where the results are: [http://forum.livingwitheagle.org/forum/topics/eagle-syndrome-survey?commentId=6309075%3AComment%3A33230](http://forum.livingwitheagle.org/forum/topics/eagle-syndrome-survey?commentId=6309075%3AComment%3A33230) ---
**Author:** ![Amy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/amy/32/392_2.png) [@Amy](https://forum.livingwitheagle.org/u/Amy)\ **Post date:** [January 8, 2014, 2:52am UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/5 "2014-01-08T02:52:09Z")
Tee, Let me know if you can find the survey results. Or is it possible to have new ES patients after 6/2013 to answer the survey questions? Thank you! ---
**Author:** ![polly](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/polly/32/277_2.png) [@polly](https://forum.livingwitheagle.org/u/polly)\ **Post date:** [January 8, 2014, 5:30pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/6 "2014-01-08T17:30:12Z")
I'll do it. Anything I can do to help? Maybe break down the symptoms into categories like ear pain/fullness, neck pain, foreign body in throat, eye pain, headache, dizziness, vertigo, trouble swallowing, visual problems, palpitations etc... just to name a few with a section to comment on each area and a pain scale or scale of disruption of daily life as a way to quantify how severe the symptoms are. Also what about misdiagnoses on a separate sheet? Number of trips to GPs, ENTs, neurologists. I have a great pain scale. I can also find a scale for daily life. I am really busy through the end of this week and am leaving to see Dr. Samji on Sunday. But when I get back after my trip I can help. Thanks so much Amy. PS Pics are good too. I will have before and after pics of my left styloid process after my visit :) Just have to find a PC to download them as I have a Mac. ---
**Author:** ![Amy](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/amy/32/392_2.png) [@Amy](https://forum.livingwitheagle.org/u/Amy)\ **Post date:** [January 8, 2014, 8:46pm UTC](https://forum.livingwitheagle.org/t/living-with-eagles-syndrome-study-any-volunteers/262/7 "2014-01-08T20:46:30Z")
Maybe we could post pics on here with length. Is it possible to add an survery icon to click on here?? If not, maybe making a Facebook page just for posting our images and posting survey.