Here’s the link to our doctors list which includes the UK doctors:
https://forum.livingwitheagle.org/t/doctors-familiar-with-es-countries-outside-us-2019/4753/9
Certainly Mr Axon is the most experienced UK doctor- I can’t remember if you saw him? But waiting list are very long, he does do private work through Spire Health. We don’t know much about him, but there’s a Dr Jonathan Hughes in London, here’s a link to a website with details https://www.topdoctors.co.uk/medical-articles/differential-diagnosis-eagle-syndrome I know he’s seen a member, but can’t remember the outcome I’m afraid.
I’m so sorry that you’ve had to keep searching for the answers…I hope that you can get some help.