im a 15 almost 16 year old girl in Calgary suffering from eagles syndrome. my pain is right beg=hind my ears, down my jaw, in my neck and shoulders. Me and my family have been searching for years now and we found a medication!
this medication is Trileptal (oxcarbazepine) is an anticonvulsant or antiepileptic it wroks really well for my eagles syndrome and pain I personally take 150mg of it.
Hi glad you found something that works! Are you able to find a surgeon in Alberta? I saw one in Ontario but they did not think it was main problem. Said my styloïds were not long enough to consider surgery. I do not have swallow pain, but have constant ringing in ears and bilateral shoulder pain. I am so confused. Would like a 2nd opinion but hopefully by a surgeon in Canada
sense im only 15 my mom took me to the children’s hospital and I seen Dr.Yanker
Thank you so much for this information. We do have members who’ve been helped by taking carbamazepine which must be a relative of Trileptal. Knowing what dosage is helpful for you is also good information. I’m glad you’re having symptoms relief w/o needing surgery. Hopefully you’ll never need it!
That’s great, so pleased you’ve found a medication to help you! How long have you had symptoms? You’re very young to have ES
like 4 and a half years im pretty sure…
Wow, that would make you about the youngest patient we’ve heard of I think…a dubious honour!
Sorry you’ve had to suffer starting from such a young age, kayleeg22!
thanks Isaiah! it has definitely been a rocky road lol