Hi Njess, welcome, this is the best place for ES. Great job advocating for yourself, seriously!!! The only think I will point out is is the DR list Doctor Lists -- no discussion. This is no way a negative against Dr Puram, he is well qualified. Its just a matter of experience with ES surgery itself, its rare disease and the # of Drs with experience and a history of good results is small. The list is imperfect, so always read testimonials here and if you are on FB there is an Eagles group. I’m next door in KS, if you click my profile you can read my entire story that started just last September. Unfortunately our area isn’t a great hub for medicine, but there are very good options in nearby states. But, if there is jugular involvement it is wise to go to certain Drs, and that is a tiny group within ES.
The best mods ever will see this soon, comment, and can approve you to post images if you want.