I’m sorry that you’ve been dismissed when you’re obviously having bad symptoms of ES!
It does sound as if you could have IJV compression from your symptoms, but as your doctor doesn’t understand this, you could try sending him some of the research papers about vascular ES that we have on here, but it might not make a difference as some doctors will still ignore these… We can’t say for sure though if you have IJV compression without a CT with contrast being done, timed to show the veins, is it at all possible to have this done in Latvia? It would be very helpful as for some members it’s not just the styloid processes which are causing compression, but the C1 processes as well (or mostly ). It does look from your images you’ve posted that there is a reasonable gap between the styloids and the C1 processes, but it’s not possible to say for sure…
If you do have IJV compression, then it could well be that the increased head pressure that this causes has caused a CSF leak, lots of members have had this, so it’s worth bearing in mind if you do get to see a neurologist for this, perhaps this could be a way of getting the CT with contrast done?
With regard to doctors doing ES surgery with IJV compression, unfortunately most of our members who have vascular es either have consultations and surgery with Dr Aghayev in Turkey, or Mr Axon in England, but I would presume neither would accept cross border health care funding…
There are doctors in other European countries who have done ES surgeries-
Dr Henrik Stenwig Li, Rikshospitalet, Oslo , Norway,
Dr. Nils Heim and Dr. Markus Martini in Germany
Dr. Thierry Ladner in Belgium
Professor Sherif Sultan in Ireland
Professor H.A.M. (Henri) Marres in The Netherlands
and Dr. Jakub Bargiel in Poland have all been mentioned on the forum, and others in Europe especially Italy, but I don’t think any of these are that aware of Vascular ES and certainly none of them would do a C1 shave if this is needed.
Here’s a link to the full Doctors List:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
I’m sorry that we can’t be more helpful with supplying doctors names ![]()