New here and wondering

@tjrusure - I’m glad you found our forum & that you’ve finally been believed. Your styloids are significantly long! I would enter your appointment w/ “the smartest ENT/a walking brain” that your neurologist knows w/ a bit of skepticism. Many brilliant doctors know about ES but don’t have a clue about proper treatment for it. @Jules has written many good & extensive posts which are in our Newbies Guide to help new members inform themselves prior to making a commitment for surgery w/ a doctor who may not do the best job due to lack of experience or lack of understanding of best surgical practices for ES. Here is a link to one of her posts: ES Information- Treatment: Surgery

There are a number of doctors on our Doctors List in your state (maybe even the ENT you’ll see later this week), however, we recommend getting a second opinion. Several of the doctors on our Doctors List do telehealth initial consults so you could “see” someone who is outside of your state if you chose to for a second opinion.

Please come back to let us know how your appointment goes.

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