It’s just beyond dreadful. I feel that unwell today, I just want this all to be over
I have seen
Richard Irving ent - not the most compassionate but the most spot on and arranged mri of brain and spine with contrast
Dr Davies neurologist qe (specialises in iih) awful experience. Basically laughed me out of his office with a diagnosis of tension headaches. Told me from a video I showed him of my nose leaking clear fluid that it was snot
I saw an ent in Droitwich (can’t remember his name sorry) again diagnosed with stress
Dr Simon Ellis neuro Stoke on Trent (specialises in csf leaks And head pain etc) the kindest most compassionate consultant I have come across. Arranged mrv for me and a blind blood patch to see if it would help. Still to this day is supporting me with my referrals and updates from Cambridge
Mr Axon - nothing bad or good to say but listened and did what I wanted to happen. I had to push thou. I think with Mr Axon he has to be very careful at the end of the day he is an ent and not a neuro. So the problem with vascular and intracranial pressure issues, this doesn’t come under his remit. So he likes the referral or diagnosis to come from a neurologist. It was purely based on the fact I have whooshing tinnitus that he expressed and interest as that is one of his specialities
I have also seen mr maloney ent at Halesowen. Such a lovely caring man. This was very early on so didn’t know quite how to describe my symptoms properly and also didn’t know what I know now from mri’s and ct’s etc diagnosed me with vestibular migranes
Hope this helps