New member from New Zealand

Hi, sorry but I’ve just deleted the images as personal info was on them, to protect your privacy! I did have a quick look, we’re not used to seeing the CTs from that angle, but they did look long from what I could judge, & it looks like there might be quite a long section of the stylo-hyoid ligament calcified each side too!

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Thank you Jules, ive edited my info, im to trusting…

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Your styloids are very long & one appears to be jointed. We’ve seen that in several of our members’ images so it’s not unheard of. The other side looks to me to be more angled inward & has a bit of a bend which likely gives it more opportunity to contact nerves & vascular tissues.

The feeling of something stuck in your throat is definitely an ES symptom, & I’m not surprised you have that one with how long your styloids are.

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Thank you so much I really appreciate your input. It’s looking like I’ll have to go back and do another scan I’d say with the contrast so we can see the nerves etc….
The first pic is my left hand side which up until now has been the side with all the problems.
The second pic is the right hand side and this is now the side that feels like there is something stuck in my throat.
I have stopped all massage on my neck and it seems to have helped to not upset anything further so far.
It’s such a waiting game over here, won’t see the specialist till April 2025……

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So sorry that you have to wait so long, it’s similar in the UK…a CT scan with contrast will show any compression of the blood vessels, to show nerves you would need a very high resolution MRI, like a FIESTA MRI/ Ciss MRI, they’re very hard to get it seems!

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Thank you Jules, sorry yes that’s what I was meaning….
I’m learning more and more about this dam condition everyday, it’s really incredible what it does to the body.
Thank you very much for all the effort you and others put in to this site, it’s truly inspiring.

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You’re welcome, paying it back for the help I had on here when I was first diagnosed & had surgery, & @Isaiah_40_31 feels the same! :hugs:

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Well you are both very amazing people.

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