# New Member - input on scans pls **URL:** \ **Category:** Eagle Syndrome Stories\ **Tags:** treatment, symptoms\ **Created:** [March 20, 2026, 4:11am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480 "2026-03-20T04:11:08Z")\ **Posts on this page:** 20\ **Page:** 1
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 20, 2026, 4:11am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/1 "2026-03-20T04:11:08Z")
Hi all, Very new member here and I’m currently in the process of being investigated for CCI/AAI and IJV compression. Short story, I’ve had migraines from childhood, autoimmune issues, now diagnosed with hEDS, POTS and MCAS, and have thoracic outlet syndrome as well. I’m having a STACK of symptoms and have been down many many rabbit holes of information gathering (thanks late-diagnosed ADHD 😆 ) and have ended up here. I’m in Australia, and have an appointment with a neurosurgeon next week who “apparently” is well versed in EDS, IJV compression and CCI, so I’m hoping I won’t be dismissed. I’d love it if peeps could take a look at my scans and let me know what you guys see. I’m asking him to rule out (or in) the following: CCI / AAI Chiari Malformation Internal jugular vein compression Jugular vein aneurism and Eagle syndrome of course… If folks could let me know what is obvious to you, I’ll feel more prepared. THANKS!!! ![image 12.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/4/4ff6824f7f5f102e8ace2bc3f4ee75adfa7c616c.jpeg) ![image 25.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/2/2947a8c06312b963b3af205bcf3400adccd5847c.jpeg) ![image 24.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/c/cd4539ae502125c9e830359db166ec0963b36dbc.jpeg) ![image 23.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/a/a245ddf3f788548784e8fa71613b0a05150290fc.jpeg) ![image 22.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/b/b57be94dea68b5e2cb2582ffd8b9323cadf9ebe6.jpeg) ![image 7.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/8/8f8e2502c8b923823bf25c6290a1882222105987.jpeg) ![image 5.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/6/67763ecd8f26d3bd4c3bdba2b0cff85fdefd4b3e.jpeg) ![image 10.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/2/2f57aa07af42c8f503e7754a41f5393f4c28d863.jpeg) ![image 6.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/a/a35f1122e44e39591fc9b7b9ad5b7581bffda2c6.jpeg) ![image 16.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/3/35db330bdac0b1cb811f01bcfbb84fc532a97192.jpeg) ![IMG_5314.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/7/7c18ab844defa1e314ab4cf478b83c78ccd0170c.jpeg) ![IMG_5313.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/5/5437ffcd6f12360250066769e1c2d77cc037b107.jpeg) ![IMG_5173.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/2/28b1742bcb6ab0a78fbd629efbbd6348325228ff.jpeg) ![IMG_5167.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/d/db9e82e859942070b6aaf5b28cda9c1fbcbcd203.jpeg) ![IMG_5310.PNG](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/8/8387bb4e5f90495b3fed2b6936e3e41751c6bf4e.jpeg) ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 20, 2026, 4:54am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/2 "2026-03-20T04:54:42Z")
Is there a way to upload video? I have both .mov an .mp4, but I can’t upload them (even with fewer images) ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [March 20, 2026, 2:27pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/3 "2026-03-20T14:27:25Z")
Your styloids are pretty long, I’m sorry that I’m not able to label any of the images though… It looks like they’re also quite close to the C1 process, so in the second image you can see compression of the IJV . You can also see what looks like collateral veins which are common with IJV compression. The left side isn’t so clear , you can see that area as well, the IJV looks smaller so could be the non-dominant IJV. Compression of the more dominant IJV can have a more significant effect. I don’t know about spotting CCI or Chiari on images, so can’t comment on those, but your styloids are definitely elongated & look quite pointy, and it does look like you have IJV compression on the right. Hope this helps! ---
**Author:** ![lsheep](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/lsheep/32/14121_2.png) [@lsheep](https://forum.livingwitheagle.org/u/lsheep)\ **Post date:** [March 20, 2026, 6:47pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/4 "2026-03-20T18:47:29Z")
They do look long, and I am so sorry you have been through so much! Hoping that your appointment goes well and you get more answers. ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 20, 2026, 10:41pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/5 "2026-03-20T22:41:22Z")
Thanks so much for your input @Jules, I appreciate your response. Yes, from my laypersons research this is what I see too, to me it also looks like the right styloid is more angled than the left, which could also be adding to what I also see as compression of the IJV. ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 20, 2026, 10:42pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/6 "2026-03-20T22:42:56Z")
Thanks @lsheep. Decades of medical gaslighting and dismissal certainly isn’t fun, but the last year has been progress, so I’m feeling more optimistic. 😊 ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 20, 2026, 10:51pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/7 "2026-03-20T22:51:56Z")
I always find it interesting reading the radiology reports. I never trust them as they never cover everything. I also don’t trust Doctors who solely rely on the reports, and don’t look at the scans (rare for surgeons, but I’ve seen others). This is an extract, the rest is fine… “The jugular veins have normal appearances, draining into the subclavian veins, and these into the superior vena cava. There is normal enhancement and no filling defect. No obvious cervical venous abnormality. Other findings: There is a tortuous right internal carotid artery with a retropharyngeal course, causing bulging of the posterior wall of the oropharynx. There is asymmetry of the palatine tonsils, which are slightly larger on the left with partial effacement of the left palatoglossal fold.” ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 21, 2026, 3:03am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/8 "2026-03-21T03:03:58Z")
@Gina1961 here are the scans… ---
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [March 21, 2026, 4:29am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/9 "2026-03-21T04:29:09Z")
@htren - We’ve had members upload videos before but I don’t know how they did it. They’re usually just videos of their skulls rotating around an axis sometimes 360º & sometimes 180º. Is that what you’re trying to upload? I also don’t know anything about detecting CCI/AAI, or Chiari in imaging so I’m sorry I can’t help with that either. I can tell you that your C1 is quite irregularly shaped w/ the left side being more unusual than the right side & your C2 vertebra is also quite different than most others I’ve seen. I don’t know if those facts are contributing at all to the symptoms you have. You’re also correct that your right styloid is quite a bit more angled inward than the left one. I’ve annotated several of your images: ![htren](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/6/62150e83bcbd16de220d3472aa06d556d1ee176f.jpeg) ![htren1](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/5/5ab7b8fcbf48efaed8346dbecceae45353c813da.jpeg) ![htren2](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/2/2f46aef323296a051c2ebd392b8c9820cc9e5586.jpeg) Though C1 isn’t always perfectly symmetrical, I’ve never seen one as asymmetrical as yours is. As I said, this may be irrelevant, but it may also be contributing to your symptoms. ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 21, 2026, 4:40am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/10 "2026-03-21T04:40:53Z")
Thanks so much for your feedback @Isaiah_40_31. I also looked at the C1 and C2 and wondered what the heck…!! Perhaps something went weird rendering the 3D images…? Or maybe they’re just screwed 🤣 And Yes, it was just the 3D rotation video I was attempting to upload. I do have migraines, head, shoulder and neck pain, raging tinnitus, dysautonomia, weird nerve stuff, and more, so fingers crossed these scans may be the start of an explanation, past “just Hypermobile”. Thanks again 🙏 ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 21, 2026, 5:04am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/11 "2026-03-21T05:04:18Z")
![IMG_5595](https://canada1.discourse-cdn.com/flex027/uploads/ben_eagle/original/2X/b/b91b025f53d79385d32bf8cd8ae3376712cde129.jpeg) @Isaiah_40_31 would it be unusual for the c1 joint (where it sits on c2), to be rounded like this? ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [March 21, 2026, 12:03pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/12 "2026-03-21T12:03:52Z")
Good spot from you & @Isaiah_40_31 , they don’t look right! Worth asking about… we’ve had members with unusual vertebrae before, like Arcuate Foramina Bridge , but these are often dismissed as congenital deformities and don’t cause symptoms… ---
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [March 21, 2026, 7:34pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/13 "2026-03-21T19:34:31Z")
I saw that when I looked at your imaging last night, @htren. Your whole C1 is so different than any I’ve ever seen, I don’t know if it’s a problem or not. It could be contributing to CCI/hypermobility since it’s not a normal shape/connection between C1 & C2. I don’t know if there’s anything that could be done about it w/o causing additional problems in your neck because your body has grown & adapted to your odd upper cervical spine. You could see a physiatrist or orthopedic doctor who specializes in cervical spine issues for an opinion. > [@htren](#): > > I do have migraines, head, shoulder and neck pain, raging tinnitus, dysautonomia, weird nerve stuff, and more, Migraines, tinnitus & dysautonomia go along w/ IJV compression. In cases of IJV compression up near the skull base, the vagus nerve, which is a big player in dysautonomic symptoms, is often squashed alongside the IJV as they closely share space within the carotid sheath there. Neck & shoulder pain are commonly the result of spinal accessory nerve dysfunction being caused by elongated styloids/calcified s-h ligaments. Once the styloid(s) are significantly shortened, those symptoms & others caused by irritated nerves, often go away. ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 22, 2026, 3:02am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/14 "2026-03-22T03:02:23Z")
Thanks again for your insights! I’m weirdly looking forward to my neurosurgeon appt on Thursday so see what he thinks. I’ll be seeing Dr Rao (I’m in Australia). ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 22, 2026, 3:02am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/15 "2026-03-22T03:02:55Z")
Thanks so much @Jules ---
**Author:** ![Jules](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/jules/32/404_2.png) [@Jules](https://forum.livingwitheagle.org/u/Jules)\ **Post date:** [March 22, 2026, 1:31pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/16 "2026-03-22T13:31:42Z")
Hope your appointment goes well & he’s helpful, please let us know how you get on! ---
**Author:** ![Isaiah\_40\_31](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/isaiah_40_31/32/3054_2.png) [@Isaiah\_40\_31](https://forum.livingwitheagle.org/u/Isaiah_40_31)\ **Post date:** [March 22, 2026, 7:22pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/17 "2026-03-22T19:22:05Z")
@htren - You can look forward to your appt on Thursday for another reason, too! Now you have some idea about what’s going on with your neck so you can have a more informed discussion. Maybe even give him some information he doesn’t have! 😉 ---
**Author:** ![Snapple2020](https://avatars.discourse-cdn.com/v4/letter/s/c89c15/32.png) [@Snapple2020](https://forum.livingwitheagle.org/u/Snapple2020)\ **Post date:** [March 22, 2026, 8:49pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/18 "2026-03-22T20:49:49Z")
It almost looks like a portion on the right is broken off? At C1. It looks very strange. (the image looking straight at back of skull) The little circle on the left is missing on the right unless imaging is off. ---
**Author:** ![Snapple2020](https://avatars.discourse-cdn.com/v4/letter/s/c89c15/32.png) [@Snapple2020](https://forum.livingwitheagle.org/u/Snapple2020)\ **Post date:** [March 22, 2026, 8:53pm UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/19 "2026-03-22T20:53:47Z")
htren, you did great job on this imaging. Just an FYI, my daughter has a host of your same DX. She was DX with ADHD caused by POTS. That meaning if you didnt have POTS, you didnt have true ADHD. There is hope…. ---
**Author:** ![htren](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwitheagle.org/htren/32/13911_2.png) [@htren](https://forum.livingwitheagle.org/u/htren)\ **Post date:** [March 23, 2026, 12:40am UTC](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480/20 "2026-03-23T00:40:58Z")
Yes!!! This!!! Absolutely!! I like to be as well informed as I can be, and having found this forum has been great, reading everyone’s stories and getting feedback on my scans. Thanks again!! [Next page](https://forum.livingwitheagle.org/t/new-member-input-on-scans-pls/22480.md?page=2)