@MGORNEAU & @Benwt - Have both of you raised your computer screens up so they’re at eye level so you don’t need to look down at all when using your computers? Same with cell phones & hard copy reading materials i.e. hold them at eye level rather than looking down at them. Not as convenient as looking down but could go far toward helping your symptoms not ramp up when you use electronic devices.
@Benwt - It sounds like your neurophysio is onto something! I hope the way (s)he works with you is tremendously helpful. Please remember that even PT can take a number of months to help retrain muscles & undo bad habits of many years so it will require patients & diligence.
I have my computer screen raised up for work but my core is so weak that i often end up learning over into poor positions anyway. Physio have told me to get a standing desk which is doable. Phone is one I constantly need to remind myself about, however I don’t get discomfort for some reason with my phone.
She really seemed to be onto something, so I’m hoping that over months of working on my core and proprioception exercises I can get back to normal. I do have a misalignment at c1-c2 but my surgeons never been concerned with it and he does plenty of CCI fusions etc.
It does make me thing how much of this was coming from eagles but realistically over years it’s caused imbalances and poor habits which now need fixing
I was going to suggest maybe a standing desk if that’s possible, although with a weak core that might be difficult for too long? The neurophysio & test results sound really interesting , others have mentioned post surgery that they’ve had to work on muscle imbalances through the whole body, fascinating how ES can affect everything! I hope that the exercises help you.
That’s really interesting, especially the proprioception piece. It actually made me think of something I noticed a few weeks ago. Before surgery I couldn’t consistently do tandem gait, and now I can.
Which makes me wonder how much of that is more neurological than just muscular, or at least a mix of both.
Did the neurophysio mention anything about that connection?
@Benwt - Re: standing desk - I have one (not using it at the moment but love it!) & bought a foot bar & a seat with a single leg which telescopes so you can adjust the height. The purpose for it is to have a place to sort of sit when your legs are tired but you want to continue to stay mostly standing.
I just found pics of the seat & foot bar I had (had to get rid of them because we moved to a different state ) to give you an idea of what I was talking about:
She didn’t mention it and I haven’t tried myself but I would assume there is some relation. Proprioception is very much linked to our vestibular system she said so I think it would make sense for it to improve post surgery. Thinking about it I think there is a lot of this that relates to proprioception. Presurgery I couldn’t tilt my head without it feeling like it would fall off but after surgery that feelings gone, which seems to be a proprioception thing. I’m interested to talk to my surgeons about it in my next follow ups as they are writing research papers on the majority of our outcomes
I’m a very new member and it’s been interesting to read your journey here.
I’m in Australia too, and have an appointment with Dr Rao next week for CCI/AAI and IJV Compression with a possible JV aneurism (I’ve just posted some 3D scans).
It’s interesting to see you switch from a hypermobile physio to a neurophysio.
Can I ask who you’re seeing?
Just a note, I’ve had both PRP and prolotherapy injections all over, but for my neck instability, my musculoskeletal specialist went with prolotherapy injections.
Hope your recovery is still going smoothly and you’re starting to get more relief.
Yeah I decided to switch to a neurophysio as a believe things such as proprioception are causing a lot of my symptoms which a basic hypermobility physio isn’t able to test. Having seen a neurophysio they were able to confirm a number of issues from running tests and give me exercises to do rather than just strengthening muscle imbalance but train my brain to engage the muscle that support my head. I’m in Melbourne and attend Melbourne Neuro Rehabilitation. Dr Rao is very nice and I’m sure you will find him beneficial. He does mainly recommend PRP and Prolo to people nowadays and is trying to avoid a fusion in people at all costs. Can I ask if you found any improvement in your instability following your injections?
I’m delighted they worked for your SIJ. I’ve heard similar about injections in the neck, it’s so od that it works so well for other areas. Dr Rao is keen to try prp on me depending on how i improve over the next few months even though i have no identified instability but he said he hasn’t seen much success
Thank you! Would she eventually do cervical injections for you?
I will likely be getting my cervical prp with Dr Dan Bates in Melbourne if it comes to the point of needing it. He also works closely with Dr Rao. I would really want to see what the outcomes of it are since he’s done more of it over the last year due to the cost. There was mention of a research paper being written on the effects of it on instability between the two of them. I’m also looking into the possibility of peptides and whether they might be of benefit to me
) to give you an idea of what I was talking about:
