Ernest & Eagles syndromes have similar symptoms…have you had a CT done to show the styloids? that could help with differentiating between the two.
Here’s a link to the doctors list:
https://forum.livingwitheagle.org/t/us-doctors-familiar-with-es-2019/4752
Dr Jeffrey Scott Magnuson, Florida Hospital Celebration has done intraoral robotic surgery, &
Dr Rui Fernandes, University of Florida and Shands Hospital has also done surgeries on several members & is supposed to be very nice, so either would be worth a try!
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