Hi @virenlondon, & welcome to the site!
So frustrating that you’ve been seen by so many doctors & been dismissed or fobbed off, that’s crazy, but sadly not unusual!
I can’t see the styloids clearly in your images, so can’t comment on that, but hopefully when you get the new CT done we can have a look…it will be interesting to look at the hyoid bone processes & to see if there’s any calcification on your stylo-hyoid ligament too given that it was a blow to the throat which set your symptoms off.
We have definitely had members whose voices have been affected by ES, we’ve had some professional singers who have had to stop until after surgery & also several teachers , so ES can certainly cause pain talking. If you use the search function to look up ‘professional singer’, it will come up with lots of discussions!
Pain exercising is common too, and lifting. Swimming (if you’re keeping your head up & out the water), & cycling will have your head in an awkward position which aggravates everything in your neck- I had to give up cycling which I loved because of the neck pain, & I believe it contributed to a prolapsed disc in my neck, which I think then contributed to vascular ES…
The best/ most experienced surgeons in the UK are Mr Axon at Addenbrooks in Cambridge, & Mr Hughes at UCH London. Both do NHS and private practice. For NHS treatment Mr Hughes would probably be the best to get referred to as Mr Axon has a really long waiting list, & doesn’t seem to be allowed to do as many ES surgeries as he was doing before, & has strict criteria for when he is able to offer surgery. He also shortens the styloids when needed, but I don’t know that he removes stylo-hyoid calcified ligaments so that would be something to consider if yours are. Mr Hughes I believe will & will look at hyoid bone resection if necessary.
Here’s a discussion about Mr Hughes:
First appointment with Dr Jonathan Hughes - General - Living with Eagle
Several members have had surgery with him recently, you can click on their avatars to send them a private message. I don’t think any of them have had a complete ‘cure’ with all symptoms going, but then many of us have had other neck issues alongside ES & sometimes ES is one step in the process…
As @JugularEagle says, I was very lucky & had really good results from my surgeries with Mr Axon on the NHS, my surgeries were a few years a go so before he started having to refuse some patients. I would definitely recommend him if you were to see him …
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