@Robinevalon - I searched for your previous posts & the only other one that came up was this one which did receive responses:
If you posted other times, the posts must have somehow not ended up on our forum. I’m sorry you felt neglected or perhaps missed the replies to the post I linked above.
It sounds to me like your symptoms are coming from vascular compression. We’ve had other members who had bilateral styloidectomies perhaps not knowing they also had internal jugular vein (IJV) compression & symptoms continued & got worse post op because the IJV(s) didn’t decompress from the styloidectomies alone. Very often, the transverse process(es) of C1 cause more of the compression than the styloids do so the C1 vertebra needs to be “shaved” back somewhat to provide more room for the IJV(s) to open fully.
Have you had a follow-up CT scan with contrast to see if there’s anything else visible going on in your neck? If not, that will likely be necessary to see the condition of your IJVs. Dr. Cognetti in Philadelphia, PA, or Dr. Costantino in White Plains, NY, are the two doctors closest to you who specialize in IJV decompressions with or without styloidectomies. You could try following up with one or both of them.
•Dr David Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. David M Cognetti MD | Jefferson Health
•Dr Peter Costantino, 4 Westchester Park Dr, 4th floor, White Plains, (914) 517-8056
http://www.nyhni.org/find-a-physician/Peter-D-Costantino-MD,FACS .