That’s difficult if you can’t travel far to see an experienced doctor; unfortunately ES is barely mentioned in medical school because it’s supposedly so rare, & many doctors are skeptical about it, so you may well find that the ENT doctor you’re refereed to is in that camp! If you’re able, you could have a look through some of the research papers linked on here- there are some links to papers in the Newbies Guide Section:
ES Information: Background, Anatomy, Styloid Length, Angulation, Classic and Vascular - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
And we also have a section with more research papers:
Latest General/Research Papers topics - Living with Eagle
It might be worth printing off some which are relevant to your symptoms or your radiology report to take with you to show the doctor. Doesn’t always help, but some doctors have been open to learning more about it!
There are suggestions for meds/ tips to help with pain relief in the Newbies Guide Section, but the only real cure for ES is surgery. Some members have been able to manage their symptoms with meds etc & haven’t opted for surgery as it does have risks. Here’s a link to the section:
ES Information- Treatment: Pain Relief - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
If you find the ENT either isn’t helpful or isn’t confident with operating, & you can’t travel, if there’s a head & neck cancer or vascular surgeon in your area they might be worth seeing, as often they have to remove the styloids to access the cancer, so would have experience.
I hope this helps!
2 Likes