I’m sorry that it took you a long time to recover from your ES surgery, as @Isaiah_40_31 says, doctors do misjudge the healing process. We have had some members with nerve damage post-surgery, although the risk of this can be alleviated a bit by using nerve monitoring. Which nerves were damaged during surgery?
It might be worth getting a new CT with contrast done, timed to show the venous and arterial phases as headaches can sometimes be caused by vascular compression, and this could possibly have an impact on a second surgery, whether you consider seeing one of the VES surgeons.
We do have lots of members with hypermobility, Ehlers Danlos Syndrome, there does seem to be a link.
@Snapple2020 is knowledgeable about EDS and has posted links to info about this if you’re interested:
FREE EDS RESEARCH Symposium April 9th & 10th - General / Research Papers - Living with Eagle
Podcast — Hypermobility MD
Unfortunately many doctors don’t look at the body as a whole, just their little specialism!
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