@MyStylishStyloid - I’m really sorry the surgeon who did your surgery wasn’t more aggressive in removing your styloid(s). We have other members who’ve had to have revision surgeries for the same reason. I can only imagine how difficult it is to work w/ the pain you have. I hope the nerve ablation helps you if you aren’t able to find a surgeon to do a revision styloidectomy for you. It is more difficult since you can’t travel & are confined to an area where we don’t know of any resources for ES except Dr. Futran. Did you actually call his office to set up an appointment with him to discuss ES surgery, or was it someone outside of his office who told you he’s no longer doing surgery for ES? I’m asking in part because we still have him on our Doctors List & will need to remove his name if he isn’t doing the surgeries any longer.
Here’s a discussion from 2019 w/ the names of a couple of Seattle doctors who might be able to help you:
Old Discussions from US Doctors Familiar With ES - #17 by Gwendolyn
One of our members @Snapple2020 would be a good person to ask re: doctors in your area who would do the type of studies you want/need. You can send her a private message by clicking on her screen in this paragraph. That will take you to a page where you can start a conversation with just her.
I hope you’re able to find someone to help reduce your symptoms substantially. Please let us know how things go with the nerve ablation.